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black

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what treatment are you currently on?
Sep 26^th, 2010 at 3:20am

preventative/abortive

you know for these mild migraines you have and you still are in denial to just take a pill and lay down.

and if you like plus a word maybe on how it is going
for example
good or bad or indifferent or i think it is time to rename ch to orgasm headaches cause in this way the more i get eventually the day could leave a stupid smile on my face that probably i did something useful
and it wasn't totally missed Cheesy

so anyway just curious how others are doing

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« Last Edit: Sep 26^th, 2010 at 3:21am by black »

Oh come on!it's just water.It can't be that bad!

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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: what treatment are you currently on? Reply #1 - Sep 26^th, 2010 at 8:12am I'm going to take your question at face value Prevent: Testosterone replacement therapy Abortive: Oxygen with Imitrex injections as a backup May your hits be light on the Kip scale and your cycle end without further fanfare... -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: what treatment are you currently on? Reply #2 - Sep 26^th, 2010 at 9:25am Prevent: Verapamil 360 - 480 mg per day Abortive: Imitrex 6mg shots as needed. *O2 Works but current Neuro will not prescribe it.
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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: what treatment are you currently on? Reply #3 - Sep 26^th, 2010 at 9:39am 02, hot water bottle and imigran nasal spray (have got the verap on hand if I decide I can't cope but don't like the fatigue). Honestly the 02 works wonders and finding that that's pretty much all I need these days (fingers crossed)
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: what treatment are you currently on? Reply #4 - Sep 26^th, 2010 at 10:17am Prevent: 480mg Verapamil daily. Abortive: 100% o2 at 25 LPM with an o2ptimask.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: what treatment are you currently on? Reply #5 - Sep 26^th, 2010 at 10:30am Prevent 1200 mg Lithium a day, blocks 60-70% of hits. Abortive, 02 w/Sugar Free Red Bull and rarely trex shots. Daily supplements: Magnesium, Zinc, Calcium Citrate with Vit D. Joe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: what treatment are you currently on? Reply #6 - Sep 26^th, 2010 at 10:45am Preventative - fungus. Abortive - Energy drinks and the occasional snort of O₂. Never above a K3, and then only for a few minutes. Life has once again become grand.
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bonkers

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What is THIS?

Posts: 308
San Diego, California
Gender: male

Re: what treatment are you currently on?
Reply #7 - Sep 26^th, 2010 at 12:21pm

Good on you Brew! May we know your fungus frequency and for how long your current state of affairs has been the case for you?

Guiseppi: No question that you can quit taking all that stuff as I'm sure you'll never have another HA. It's over with. Kaput.

My son Michael:

Preventive: Fungus every 10 days or so. HA severity diminished by 80-90%.

Abortive: Methadone - not actually an abortive but rather the only substance found to somewhat mask the HAs. The probable reason for the fungus' lack of success in completely eliminating his HAs. Losing the major portion of his last Rx forcing complete withdrawal over the next week-10 days. Yeah! So sad that he lost his Rx - not.

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Excessive sorrow laughs. Excessive joy weeps.
-Blake

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: what treatment are you currently on? Reply #8 - Sep 26^th, 2010 at 1:03pm Last fungus treatment - May 28, 2010, 1g. Since then I can count on one hand the number of times I've been hit (each one a K3 or less). Keep in mind, too, that I was chronic.
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bonkers CH.com Old Timer Offline What is THIS? Posts: 308 San Diego, California Gender:	Re: what treatment are you currently on? Reply #9 - Sep 26^th, 2010 at 1:49pm Hooray! Hooray!
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Callico

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Posts: 4916
Aurora IL
Gender: male

Re: what treatment are you currently on?
Reply #10 - Sep 26^th, 2010 at 4:50pm

Prevent: Testosterone Replacement therapy
                     about a 50%/50% reduction in hits and severity
            Kudzu since I upped the dosage 7 weeks ago I
                     haven't use the O2, and only 4 energy drinks

Abortive: Oxygen at 25lpm with an O2ptimask
            5hr Energy (preference. can use others also)

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Tom_Thumb CH.com Junior Offline I love YaBB 1G - SP1! Posts: 70 x0\|Roanoke Rapids\|USA\|\|0\|0\|NC,North_Carolina Gender:	Re: what treatment are you currently on? Reply #11 - Sep 26^th, 2010 at 5:33pm verapamil 480 mg daily neurontin 900 mg daily prednisone 80 mg tapering down to 10 mg in two day increments. vicks varorub on nose all day. oxygen TRY THE VICKS IT IS AMAZING !!!
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plateglass CH.com Junior Offline Posts: 67 Seaside Heights, NJ Gender:	Re: what treatment are you currently on? Reply #12 - Sep 26^th, 2010 at 7:46pm prevent: Testosterone replacement therapy, Calcium, Vit D3, Magnesium 3x's a day. Also Melentonin 10 mg 30 min pre bedtime. abort: 02, Zomig nasal spray (last resort) PS I started the calcium about 3 wks ago and cut my hits down about 70%
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-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: what treatment are you currently on? Reply #13 - Sep 26^th, 2010 at 9:29pm Brew wrote on Sep 26^th, 2010 at 1:03pm: Last fungus treatment - May 28, 2010, 1g. Since then I can count on one hand the number of times I've been hit (each one a K3 or less). Keep in mind, too, that I was chronic.
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bejeeber

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Gnashville
Gender: male

Re: what treatment are you currently on?
Reply #14 - Sep 26^th, 2010 at 10:47pm

Preventative: fungal (I've tried it this summer for the first time - strong shadows were escalating, concerning me that a full blown episode could be imminent. It has pretty much killed the shadows, and it's not possible to know for sure whether it prevented an impending episode, but I intend to take maintenance doses in hopes of warding off future episodes).

For my last 2.5 month long episode 1 year ago:

Preventative: Neurontin 2400 mg a day (reduced number of hits by maybe 40%)

Abortive: Hi flow 100% O2, 1/2 dose (3 mg) imitrex injections or full dose inhaler when needed as a backup, deep breathing of freezing air (the freezing air can abort hits for me during the first week of an episode before the beast comes on really heavy, buying me time to get my O2 set up).

Number of full blown, full length hits I had to suffer through during that episode: zero.

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« Last Edit: Sep 27^th, 2010 at 9:55pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Kate CH.com Junior Offline I Love CH.com! Posts: 25 Gender:	Re: what treatment are you currently on? Reply #15 - Sep 27^th, 2010 at 1:03am Preventative: None, thinking of trying fungus Abortive: 100% high-flow o2, occasionally DHE injections 1mg, or Migranal nasal spray. I didn't realize so many people here were on testosterone replacement therapy!
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MJ CH.com Hall of Famer Offline Posts: 1205 x1\|\|USA\|usa\|299\|85\|MN Gender:	Re: what treatment are you currently on? Reply #16 - Sep 27^th, 2010 at 1:38am Preventive; LSA, Rivea Corymbosa or Hawaiin baby woodrose seeds every now and then. Side affects; none. Abortive; LSA containing seeds
Back to top	« Last Edit: Sep 27^th, 2010 at 1:40am by MJ » MJ IP Logged

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Ray CH.com Alumnus Offline Ray Posts: 1996 Columbus, Ohio Gender:	Re: what treatment are you currently on? Reply #17 - Sep 27^th, 2010 at 7:02am Prevent: none - all have been ineffective abort: O2, then imitrex SUB-Q Ray
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Lettucehead

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I am very blessed...

Posts: 293
Iowa
Gender: female

Re: what treatment are you currently on?
Reply #18 - Sep 27^th, 2010 at 10:31am

This past cycle -

prevent - 240-360mg Verapamil, 25mg lamictal.
abortive - O2 mainly
supplements - magnesium, calcium with D, folic acid.

Usually, don't take lamictal during cycle, but doc wanted to limit the Verapamil secondary to the pregnancy.

Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!! Grin

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Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH

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Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: what treatment are you currently on? Reply #19 - Sep 27^th, 2010 at 11:14am Prevent: Rivea Corymbosa seeds (25-80) during cycle every 5 days. 25 seeds every other month out of cycle. Fungus is always in the freezer as my level II back up. The seeds do the trick though (knock on wood). Abortive: 15 LPM Oxygen
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

mikstudie

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Beastmaster

Posts: 284
Westland Mi.
Gender: male

Re: what treatment are you currently on?
Reply #20 - Sep 27^th, 2010 at 11:19am

Nothing right now,im pain free..

Prevent: When in cycle Melatonin at night.In 10 years I have had only two daytime hits.

Abortive: 12 oz Red Bull and two quick cigarettes oh and of course my walk around the neighborhood. My doctor said the smoking will restrick blood vessels and thats what we need during an attack. I do have Imitrex nasal spray if I get a bad hit only needed two the last cycle.

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« Last Edit: Sep 27^th, 2010 at 11:21am by mikstudie »

IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!!

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bejeeber

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Gnashville
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Re: what treatment are you currently on?
Reply #21 - Sep 27^th, 2010 at 12:11pm

Lettucehead wrote on Sep 27^th, 2010 at 10:31am:

Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!! Grin

Yay Lettucehead!! Smiley

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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black

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I Love CH.com!

Posts: 347
Greece,Athens
Gender: male

Re: what treatment are you currently on?
Reply #22 - Sep 27^th, 2010 at 1:33pm

Quote:

TRY THE VICKS IT IS AMAZING

yes i have them all over the place.it really helps with the nose stuff for those moments during crisis and it's innocent i think no effects at all, no matter how many times i have use it.

we are talking about the same thing right?
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pf wishes everyone

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Oh come on!it's just water.It can't be that bad!

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Agostino Leyre

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"Hit like a phillips head
into my brain."

Posts: 3803
Madison WI USA
Gender: male

Re: what treatment are you currently on?
Reply #23 - Sep 27^th, 2010 at 1:40pm

Preventive measures - melatonin at night, sometimes 4htp and magnesium during the day.

Abortive measures - O2, excedrin migraine (usually the wallgreens brand) amerge or zomig, depending on what my ins co is paying for at the time, uber-hot steamy showers, ice packs, energy drinks, coffee and 4-way nasal spray.

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« Last Edit: Sep 27^th, 2010 at 1:43pm by Agostino Leyre »

Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&&

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Callico

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Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: what treatment are you currently on?
Reply #24 - Sep 27^th, 2010 at 3:48pm

Lettucehead wrote on Sep 27^th, 2010 at 10:31am:

This past cycle -

prevent - 240-360mg Verapamil, 25mg lamictal.
abortive - O2 mainly
supplements - magnesium, calcium with D, folic acid.

Usually, don't take lamictal during cycle, but doc wanted to limit the Verapamil secondary to the pregnancy.

Currently, still on the supplements (and will stay on them), but no prevents for almost a week and no hits and/or shadows for over a month!!! Grin

Wonderful news!!!

Now you just concentrate on taking care of that little one. We'll be happy to wait for the pictures till the time is right!

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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