OK, I'm gonna jump on board the "I'm trying as hard as I can, but I'm freakin tired" train.
We are into 5 months of this cycle. It usually ends in Sept, but has gone as long as Nov..I love my husband with all my heart and I'm trying to take care of everything because that's what needs to happen. He is trying to hold down a job while dealing with these never ending attacks. It's the least I can do. I'm getting all his meds lined up (docs, scripts, pharmacy, insurance, oxygen refills) issues with all of the above at one time or another, and making sure he takes what he's suppose to take, when he's suppose to take it...taking every hint and suggestion off this site I can get my hands and giving it a shot. (I have the utmost respect and empathy for those that are chronic)
Also, holding down a f/t high pressure job where I'm responsible for every penny of millions a yr, 4 offices, and 7 staff, reports, administration, yada, yada, yada...getting 2 kids ready for college, one my baby who left for the first time...bringing on a whole new emotional roller coaster for me as an official "empty nester".
We haven't slept through the night for months, and we're both exhausted....so I did something for me yesterday. Had to go to a 2 day conference (on 3 hrs sleep from the night before) and instead of driving back/forth I booked a sweet hotel room, hit the hay at 10 and got my first good night's sleep in months (and I can NEVER sleep in hotels)...and I'm not going to feel guilty about it. It was awesome.
Ok, I'm done bitchin' now.
Now ALWAYS after I'm done complaining I count my blessings:
1.) I have a hubby who loves me and we'll get through this.
2.) I have two great kids with their heads on straight and goals, flying the nest is hard, but they are awesome and I am so proud of them, even though I miss them to pieces.
3.) I'm SO lucky to have a f/t job...so many today are struggling and I have no business stressing about the responsibility or workload. I love my job most days.
4.) We have INSURANCE to help pay for meds, treatment, etc..
5.) My newest blessing? THIS WEB-SITE..seriously..it's almost addicting. Being welcomed into this family and talking with people who are going through the same thing has meant more to me than words can say. Within a few hours of my first post I was having a heart to heart with Linda, Bob J posted important and informative med info I was seeking, Joe said "we love ya" for being a supporter, Dennis welcomed me home, Ginger & Katherine gave me savy insurance advice..later Marc hooked up us with much needed O2 info, and on and on.
So, thanks for letting me vent, I've never done that before about this (CH)...I am so blessed. You guys all mean the world to me.