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Important Cluster News (Read 971 times)

Mat

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Important Cluster News
Oct 28^th, 2010 at 8:09am

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CMS proposes that the evidence does not demonstrate that the home use of oxygen to treat cluster headache improves health outcomes in Medicare beneficiaries with cluster headache (CH). Therefore, we propose that home use of oxygen to treat CH is not reasonable and necessary under §1862(a)(1)(A) of the Social Security Act (the Act).

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;

Basically what they are saying is that since O2 does not improve the condition Medicare and Medicaid should not pay for O2.

They are asking for public comments on this policy before enacting it. Every person should be concerned about this turn of events esp since Insurance companies follow Medicare and Medicaids lead.

Time to pull together and get the word out and act for all of our best interests.

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Chris H CH.com Sponsor Offline CH with CH Posts: 130 Gender:	Re: Important Cluster News Reply #1 - Oct 28^th, 2010 at 3:37pm Jeez, that's not good. Let us know how we can help issue a response. -Chris
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Barry_T_Coles

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Re: Important Cluster News
Reply #2 - Oct 28^th, 2010 at 10:25pm

If you open up the link & go to the very bottom of the document you can make a comment that gets Emailed to them.
Here's what I wrote:

As a chronic Cluster headache sufferer I have been using high flow medical oxygen as the most effective abortive for this condition.
It amazes me that statements like that in the "Proposed Decision Memo for Home Use of Oxygen to Treat Cluster Headache (CAG-00296R) would come from a country that leads the world in other aspects.
Here in Australia high flow oxygen is recommended by Neurologists for CH as the least offensive abortive treatment.
It also amazes me that a colony like Australia would be so far ahead of more influential countries in effective treatments like high flow oxygen.
I would suggest you talk with the sufferers who do know rather than Doctors who only work on assumption not from experience.
Below is a link to the US based CH web site, have a browse through there and read the results that people have from using high flow oxygen, you may be enlightened.

Regards
Barry Coles
Australia
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Of all the things i've lost in life the thing i miss most is my mind.

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Important Cluster News Reply #3 - Oct 28^th, 2010 at 11:20pm Thanks Mat. Excellent response Barry! However, I'm afraid they aren't interested in what we think. They are interested in keeping the money from flowing for something that doesn't require kickbacks from pharmaceutical salesmen. Cynical? yep! Jerry
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Web

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Re: Important Cluster News
Reply #4 - Oct 29^th, 2010 at 1:04pm

Barry_T_Coles wrote on Oct 28^th, 2010 at 10:25pm:

If you open up the link & go to the very bottom of the document you can make a comment that gets Emailed to them.

Submitting a comment there will prompt CMS to direct you to resubmit.

This is the correct link for comment submission:

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Pinkfloyd CH.com Hall of Famer Offline comfortably numb Posts: 1626 x0\|\|USA\|\|\|\|IL,Illinois Gender:	Re: Important Cluster News Reply #5 - Oct 31^st, 2010 at 7:08pm well, this is N U T S !!!! Typical of a government agency.....we need more studies, and while we wait, people can suffer. I hope everyone writes a response. I hope OUCH can put some pressure on them and educate them. They will here from Clusterbusters Bob
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Cupper CH.com Junior Offline I Love CH.com! Posts: 49 Seagrove Beach FL Gender:	Re: Important Cluster News Reply #6 - Nov 3^rd, 2010 at 3:14pm Obama care Not
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