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Need a Dr. Can anyone recommend one?" (Read 1801 times)
Nancy Doyle
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Need a Dr. Can anyone recommend one?"
Oct 29th, 2010 at 11:22pm
 
Hi,
I have  chronic headaches that most resemble cluster headaches.  One Dr. insisted they were migraines.  The second one that I saw last week said they couldn't be cluster headaches because I was a woman.  Does anyone know a Dr. in the K.C. area that is knowledgeable about headaches, especially cluster headaches who will not be condescending, and who will listen?  If not in the KC area then anyplace in the US.  I am at the end of my rope. My episodes usually last about a month to 6 weeks.  This one has gone on for 5 month.  I am afraid I have become chronic.  Thanks for any names  you can offer.

Nancy,
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Racer1_NC
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Lewisville, NC
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Re: Need a Dr. Can anyone recommend one?"
Reply #1 - Oct 30th, 2010 at 1:00am
 
From the OUCH listing of Sufferer recommended doctors:
Quote:
Missouri
 
Dr. Richard Margolis
St. Louis
 
Dr. Brett Hosley
Hannibal
 
Charles Weinstein
Kansas City
 
Gustavo A. Granada, MD
Kennett
 
Dr. L Cravens
Kansas City
 
Dr. Pacianu
Sedalia

 

Dr. Juan Escandon, MD

Barnes Jewish Hospital

St. Louis
 

Dr. Andrew Y. Chao

Ballwin

Kansas
 
David Rosen
Wichita
 
GATHUM REDDY
WICHITA
 
Tammie Nelson
Wichita
 
Kelly Chrysler
Overland Park
 
Jay Zwibelman, Neuro
Olathe
 
Christine Boylan, MD
Overland Park
 
Martin S. Buckman, M.D.
Overland Park
 
Jay Zwibelman
Overland Park

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“We see what we believe, not the other way around." — Varga
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LasVegas
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Re: Need a Dr. Can anyone recommend one?"
Reply #2 - Oct 30th, 2010 at 7:35am
 
Print this link below and mail to those ignorant doctors, maybe they can be learn something after reading this and help somebody instead of wasting your time being condescending. 

As for the 2nd doctor with the ignorance on gender, I would include a note and say no charge for this educational lesson that women are afflicted also.  What a moron.  Good Luck!

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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
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Bob Johnson
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Re: Need a Dr. Can anyone recommend one?"
Reply #3 - Oct 30th, 2010 at 7:59am
 
LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.





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Bob Johnson
 
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bejeeber
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Re: Need a Dr. Can anyone recommend one?"
Reply #4 - Oct 31st, 2010 at 7:41pm
 
Nancy Doyle wrote on Oct 29th, 2010 at 11:22pm:
.... said they couldn't be cluster headaches because I was a woman.....


It is beyond stunning what ignorant bozos in the guise of doctors are out there.  Angry


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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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JustNotRight
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Re: Need a Dr. Can anyone recommend one?"
Reply #5 - Oct 31st, 2010 at 7:56pm
 
Nancy Doyle wrote on Oct 29th, 2010 at 11:22pm:
The second one that I saw last week said they couldn't be cluster headaches because I was a woman. 
Nancy,


I'd like to get this guy in a confined space
with the rest of us WOMEN CH sufferers!! Smiley
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WWW JustNotRight gngr.stewart GingerS224  
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Guiseppi
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Re: Need a Dr. Can anyone recommend one?"
Reply #6 - Oct 31st, 2010 at 10:54pm
 
Wimmin don't get CH silly...they just get migrains!!! Roll Eyes

(running from the room before Linda reads this!!!)

Joe....who is a TRUE CH sufferer..with lionesque features and orange peel skin!!! Grin
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Shuli
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Re: Need a Dr. Can anyone recommend one?"
Reply #7 - Nov 2nd, 2010 at 9:42pm
 
One more woman with CH.  We get them, too. It's REAL!!!
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Guiseppi
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Re: Need a Dr. Can anyone recommend one?"
Reply #8 - Nov 2nd, 2010 at 9:50pm
 
Note to any newer members.........I know women get CH.,.......will NEVER admit it to Linda H.!!!! Grin

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Jimi
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Re: Need a Dr. Can anyone recommend one?"
Reply #9 - Nov 2nd, 2010 at 9:58pm
 
Welcome Nancy. Now that you have some leads on some doctors, tell us a little about your ha's and what you are taking for them.
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