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Calling our affliction a "headache" (Read 5096 times)

Bassplayer Jim

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Calling our affliction a "headache"
Nov 13^th, 2010 at 9:56am

I recently posted the following on my FB profile, and thought many here would understand far better than those who don't have CH...

Jus for the record, the term "headache" is a gross misnomer when it comes to cluster headaches, as the only similarity between the two is that they afflict the same location (the head). Comparing a cluster headache to any other kind of headache is like comparing someone breaking a lightbulb in your kitchen to your entire house being fire-bombed. Sure, your house is involved in both scenarios, but that's about where the similarities end.

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Calling our affliction a "headache" Reply #1 - Nov 13^th, 2010 at 10:34am Excellent analogy Jim! I may have to borrow that
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Chris H CH.com Sponsor Offline CH with CH Posts: 130 Gender:	Re: Calling our affliction a "headache" Reply #2 - Nov 13^th, 2010 at 11:48am Headbomb. Cluster bomb. Starting to make more sense.
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Calling our affliction a "headache" Reply #3 - Nov 13^th, 2010 at 3:01pm Chris H wrote on Nov 13^th, 2010 at 11:48am: Headbomb. Cluster bomb. Starting to make more sense. Just don't mention that when going through airport security!
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bejeeber

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Re: Calling our affliction a "headache"
Reply #4 - Nov 13^th, 2010 at 3:46pm

Agreed about the misnomer factor.

So what should it be called?

Cluster nerve attacks?

Trigerminal nerve attacks?

Cluster head terrors?

Fuster Clucked?

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Calling our affliction a "headache" Reply #5 - Nov 13^th, 2010 at 4:17pm I've never given it a name. It's a cluster headache. If I gave it a name it would give it substance. Potter
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Calling our affliction a "headache" Reply #6 - Nov 13^th, 2010 at 4:20pm I call mine "Fred."
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Chris H CH.com Sponsor Offline CH with CH Posts: 130 Gender:	Re: Calling our affliction a "headache" Reply #7 - Nov 13^th, 2010 at 5:12pm More options: Trigeminal Incendiariosis Eternal Internal Concussion Bats in the Belfry (baseball bats) Icepickintheeyeosis WTF syndrome
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Calling our affliction a "headache" Reply #8 - Nov 13^th, 2010 at 5:58pm Can't remember who wrote it but it was roughly, "Don't know why they call these suicide headaches. Any more stupid remarks from do-gooders and they'd be better named homicide-headaches!"
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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: Calling our affliction a "headache" Reply #9 - Nov 15^th, 2010 at 2:21pm I have always likened them to more of an attack or a seizure.
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Jeannie

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Re: Calling our affliction a "headache"
Reply #10 - Nov 15^th, 2010 at 5:11pm

I really think that, no matter what they are called, people who don't either live with us or experience the HA themselves will ever truly understand what they are.

Someone just the other day said to me, "Hey Jeannie! I thought of you the other day. I had this TERRIBLE sinus headache and it made me think of your headaches."

I told him I was sorry that he had had such a bad headache. What else could I say?

« Last Edit: Nov 15^th, 2010 at 5:12pm by Jeannie »

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wimsey1

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Re: Calling our affliction a "headache"
Reply #11 - Nov 16^th, 2010 at 8:21am

Agostino Leyre wrote on Nov 15^th, 2010 at 2:21pm:

I have always likened them to more of an attack or a seizure.

I have insisted to everyone who would listen that these have many seizure like qualities: rapid onset, abrupt end, postictyl malaise and confusion...The only thing lacking in our suggestions on what to call them is a cool acronym. Something like Hyperthalmic Anterior Trigeminal Episode: HATE. Not so good, but you get the idea. Blessings! lance

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Calling our affliction a "headache" Reply #12 - Nov 16^th, 2010 at 11:46am Good thinking there, Lance. Keep it up. I like the acronym. Jerry
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Brew

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Re: Calling our affliction a "headache"
Reply #13 - Nov 16^th, 2010 at 11:56am

Here's synopsis of what's been suggested:

Headbomb.
Cluster bomb.
Cluster nerve attacks.
Trigerminal nerve attacks.
Cluster head terrors.
Fuster Clucked.
Fred.
Trigeminal Incendiariosis.
Eternal Internal Concussion.
Bats in the Belfry (baseball bats).
Icepickintheeyeosis.
WTF syndrome.
Hyperthalmic Anterior Trigeminal Episode: HATE.

Anybody want to start a campaign with the AMA?

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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JustNotRight

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Re: Calling our affliction a "headache"
Reply #14 - Nov 16^th, 2010 at 5:12pm

Brew wrote on Nov 16^th, 2010 at 11:56am:

Here's synopsis of what's been suggested:

Headbomb.
Cluster bomb.
Cluster nerve attacks.
Trigerminal nerve attacks.
Cluster head terrors.
Fuster Clucked.
Fred.
Trigeminal Incendiariosis.
Eternal Internal Concussion.
Bats in the Belfry (baseball bats).
Icepickintheeyeosis.
WTF syndrome.
Hyperthalmic Anterior Trigeminal Episode: HATE.

Anybody want to start a campaign with the AMA?

Fred. I still laugh at that one.

Cluster Fecund Ulcerative Cranial Kinetic Efferent Dysplasia

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Calling our affliction a "headache" Reply #15 - Nov 16^th, 2010 at 5:43pm Again Ginger, that mind!!! Sadly, no matter what it's called, those who do not suffer from them, will never "get it." But that's okay, people here will always understand. Joe
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Brew

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Re: Calling our affliction a "headache"
Reply #16 - Nov 16^th, 2010 at 5:53pm

Guiseppi wrote on Nov 16^th, 2010 at 5:43pm:

Sadly, no matter what it's called, those who do not suffer from them, will never "get it." But that's okay, people here will always understand. Wink

Joe

My point exactly, oh wise one. Trying to get it renamed so that people outside our group of sufferers and supporters, and the medical community might somehow glean some special understanding is kind of like pi$$ing into the wind. Just try not getting it all over yourself.

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Guiseppi

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Re: Calling our affliction a "headache"
Reply #17 - Nov 16^th, 2010 at 6:00pm

Brew wrote on Nov 16^th, 2010 at 5:53pm:

Guiseppi wrote on Nov 16^th, 2010 at 5:43pm:

Sadly, no matter what it's called, those who do not suffer from them, will never "get it." But that's okay, people here will always understand. Wink

Joe

Oh Wise One....I like that title....could you encourage Christy to adopt that as my nick name?????? Lord knows I'd do the same for you in a heart beat! Wink

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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DeStijl CH.com Veteran Offline Posts: 205 Lubbock, TX Gender:	Re: Calling our affliction a "headache" Reply #18 - Nov 16^th, 2010 at 6:22pm I do like "Fred". It makes it seem like a neighbor's come to visit. "Oh dammit! It's Fred again! Don't answer the door!" I call mine brainial infuxshunz. Makes my wife laugh.
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: Calling our affliction a "headache" Reply #19 - Nov 16^th, 2010 at 6:25pm Long before I even knew the name CH I called it Volcranium horrendus.
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Calling our affliction a "headache" Reply #20 - Nov 16^th, 2010 at 6:38pm My wife calls min Igor because I tend to get a "little" hard to get along with at times. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: Calling our affliction a "headache" Reply #21 - Nov 17^th, 2010 at 10:40am I named mine "Roseanne". Why you might ask? Because I felt my beast seemed like a horrendously overbearing, nasty, vindictive, bi**chy female, and Roseanne Barr immediately popped into my mind. Never did like her. SandyC
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Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: Calling our affliction a "headache" Reply #22 - Nov 17^th, 2010 at 10:46am How about: Cranialneurohypothalmictrigeminal Syndrome Once we say the word, they will never ask again and will completely understand because it sounds so, so, so - well medical. SandyC
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Calling our affliction a "headache" Reply #23 - Nov 17^th, 2010 at 11:29am Sandy_C wrote on Nov 17^th, 2010 at 10:40am: I named mine "Roseanne". Why you might ask? Because I felt my beast seemed like a horrendously overbearing, nasty, vindictive, bi**chy female, and Roseanne Barr immediately popped into my mind. Never did like her. SandyC But she's a domestic goddess.
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Lenny

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Re: Calling our affliction a "headache"
Reply #24 - Nov 17^th, 2010 at 12:00pm

Sandy_C wrote on Nov 17^th, 2010 at 10:46am:

How about:

Cranialneurohypothalmictrigeminal Syndrome Wink

Once we say the word, they will never ask again and will completely understand because it sounds so, so, so - well medical. Roll Eyes

SandyC

1)...I love that name and idea...

2)...Now if we could get the medical community to change the name
3)...This way we would never hear someone telling us that they get the same thing as us and tell us that they take 1 asprin (if its real bad they take 2 of them...Shut all the lights off and lay down till it goes away
4)...I know they changed the medical name from "manic-depression" to bipolar in the late part of the 80's (had a friend who was diagnosed back then)

yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead

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