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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Calling our affliction a "headache"

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Calling our affliction a "headache" (Read 5098 times)

thebbz Ex Member	Re: Calling our affliction a "headache" Reply #25 - Nov 17^th, 2010 at 3:13pm Doctors dont even agree what to call it. "I dont have migraines butthead", can I see someone else. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Calling our affliction a "headache" Reply #26 - Nov 17^th, 2010 at 4:03pm men don't get migrains silly, they get CH women don't get cH silly, they all have migrains.... it's really quite simple! Joe
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Katie C.

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Re: Calling our affliction a "headache"
Reply #27 - Nov 18^th, 2010 at 6:06pm

I don't even bother saying I have a headache - it's an attack. Sinus gives you headaches. Too much wine or booze gives you headaches. Bills give you headaches.

I had someone tell me yesterday she completely understands what I'm going through. I just need to take 2 ibuprofen, 2 tylenol and 2 caffeine pills. Hmmmm, sounds like a couple of excedrin to me LOL. Oh and, no, that doesn't work on me. But would you happen to have a hammer? Still not sure if it's for me or her. Huh

It is a dumb name, especially for a neurological disease. I definitely like Fred. But the sound of a ridiculously long name that you can't spell or pronounce would sound so scary and rare that no one would dare challenge you or offer you an aspirin.

~ Katie

"Flying is learning how to throw yourself at the ground and miss." - Douglas Adams

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Jamiekins82 CH.com Newbie Offline I Love CH.com! Posts: 10 California Gender:	Re: Calling our affliction a "headache" Reply #28 - Nov 20^th, 2010 at 2:54am I may borrow that and post it on my FB proflie too, in the hopes that others will faintly comprehend what we are going through!
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Bassplayer Jim

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Re: Calling our affliction a "headache"
Reply #29 - Nov 23^rd, 2010 at 12:36pm

Everyone feel free to borrow and repost the analogy as applicable.

Sad thing is, I don't think non-sufferers are going to change what they think or say about CH, either way. And I can't honestly blame them. We really only know about that which we experience ourselves. Second-hand knowledge is never as complete as first-hand knowledge. And CH is one thing about which I wish I never had any first-hand knowledge.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Calling our affliction a "headache" Reply #30 - Nov 23^rd, 2010 at 12:38pm Agostino Leyre wrote on Nov 15^th, 2010 at 2:21pm: I have always likened them to more of an attack or a seizure. indeed
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wimsey1

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Re: Calling our affliction a "headache"
Reply #31 - Nov 24^th, 2010 at 8:12am

AussieBrian wrote on Nov 16^th, 2010 at 6:25pm:

Long before I even knew the name CH I called it Volcranium horrendus.

I'm giving this one my vote. It sounds so classically Greek and all that. And I think we're only half serious here...mostly finding gallows humor in a horrible infliction...but truly wishing the medical community would get us out of the migraine category for sure and for good. Blessings! lance

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