Click this link to read a post I like on the clusterheadaches.com message board...

Layla328

CH.com Hall of Famer

Offline

Posts: 804
Boston
Gender: female

so far shocking results with benadryl
Nov 16^th, 2010 at 2:32pm

First thank you to this website b/c this is where I learned about benadryl.
I started taking benadryl 75 mg (3 benadryl per night) after the first night when I was hit by three brutal headaches at 1, 3, 4:45 am. It is a week later. I can write my headache diary on here if anyone is interested. But to summarize: Nightly headache activity tapered off dramatically each night starting the first night I took it. The last 2 nights I have NO HEADACHE activity. There is a chance it has ended my cycle. My cycles last 90-100 days and at peak I get 6-8 headaches between midnight and 9 am.
I have been episodic for 20 years. I am not trying to say this would work for everyone. But I am so surprised at the results, and I hope they last, but I am optimistic, and I am so thankful to this website which is where I learned about benadryl and I don't know why it is working but it is. When I took it last time I started taking it at peak of cycle--it helped but it did not have this kind of effect. Maybe taking it at the start of cycle is important. If that can help anyone I would be honored. Will keep posted.

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

mikstudie CH.com Old Timer Offline Beastmaster Posts: 284 Westland Mi. Gender:	Re: so far shocking results with benadryl Reply #1 - Nov 16^th, 2010 at 3:10pm That is awsome news. I had the same results this last cycle with Melatonin.
Back to top	IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!! IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: so far shocking results with benadryl Reply #2 - Nov 16^th, 2010 at 3:16pm That's great news, hope the success continues. Keep in mind the beast is known to morph, so certainly keep your guard up! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: so far shocking results with benadryl Reply #3 - Nov 16^th, 2010 at 4:09pm Very nice! These are the posts I love to read -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Layla328 CH.com Hall of Famer Offline Posts: 804 Boston Gender:	Re: so far shocking results with benadryl Reply #4 - Nov 17^th, 2010 at 8:34am I spoke to soon--went from perfect to 4 headaches. DAMN. At least I had a few days of relief.
Back to top	IP Logged

mikstudie CH.com Old Timer Offline Beastmaster Posts: 284 Westland Mi. Gender:	Re: so far shocking results with benadryl Reply #5 - Nov 17^th, 2010 at 10:11am A few days is a good thing. Keep up the fight and you will kick the beast's butt..
Back to top	IT'S JUST A HEADACHE,TAKE TWO ASPRIN AND GO TO BED!!! IP Logged

Layla328 CH.com Hall of Famer Offline Posts: 804 Boston Gender:	Re: so far shocking results with benadryl Reply #6 - Nov 17^th, 2010 at 3:04pm mikstudie, Thank you for the encouragement--it helps a lot
Back to top	IP Logged

Michael Boomerhead

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

Re: so far shocking results with benadryl
Reply #7 - Jul 3^rd, 2011 at 12:20am

I was having a endoscopy the other day and was given benadryl IV to put me in sleepy mode during the procedure. Within 5min my cluster was gone and it was at K5 before. So from K5 to K0 benadryl alone. I just bought some benadryl today and I'm going to try and get rid of this ugly K7. So far today the only thing that cured it almost completely was a large order of buffalo tenders and blue cheese with a coke. The worked for a couple hours.

Back to top

IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: so far shocking results with benadryl
Reply #8 - Jul 3^rd, 2011 at 2:45am

Starlight, Michael,

You might want to give the anti-inflammatory regimen a try... You can find it at the following link titled "123 Days PF And I Think I know Why" , on New CH.com Forum. To view it, click the link below:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

So far from the CH'ers who have tried this regimen of Omega 3 Fish Oil, vitamin D3, and calcium citrate tablets formulated with vitamin D3, magnesium and zinc, 80% are reporting a significant reduction in the frequency and severity of their CH or they've gone into a PF remission.

I've been on this regimen since last October and have been PF since the second day... not bad after 6 years of CCH averaging 4 hits every 24 hrs.

Take care,

V/R, Batch

Back to top

« Last Edit: Jul 3^rd, 2011 at 2:53am by Batch »

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

Click Here to visit the CH.com Facebook page!

Michael Boomerhead

CH.com Newbie

Offline

I Love CH.com!

Posts: 2

Re: so far shocking results with benadryl
Reply #9 - Jul 3^rd, 2011 at 9:29am

Went to sleep right away after taking the benadryl last night work up this morning at 9:15am with a cluster that is a 9 or a 10 on the pain scale, I am never taking benadryl again. I think it made it worse when it wore off. They must a different type of benadryl at the hospital or something. I have this hung over feeling too from the benadryl. This amount of pain is so bad I'm going to have to go to the ER, it feels like I got a power saw cutting into my eyeball and into the back of my skull!!!! I am shaking badly I can barely type with this. Stay away from benadryl.

Back to top

IP Logged

Brew

CH.com Sponsor
CH.com Alumnus

Offline

Posts: 14163

Re: so far shocking results with benadryl
Reply #10 - Jul 3^rd, 2011 at 10:54am

Diphenhydramine is diphenhydramine. Same stuff in Benadryl, generic, and IV in the hospital.

Sorry it's not working for you, but be careful about making blanket recommendations like "stay away from benadryl." It does wonders for some people.

A better way to state it would be, "I'm staying away from benadryl."

Back to top

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

IP Logged

Granny Arizona

CH.com Junior

Offline

I Love CH.com!

Posts: 29
Hawarden, Iowa 51023

Re: so far shocking results with benadryl
Reply #11 - Jul 4^th, 2011 at 10:26am

You remind me so much of me, Starlight! How many times I've declared I was in remission because I had 2/3 nights without a hit. Oh, the HOPE and JOY I felt ... and the despair and depression when BOOM he hit me back.

I'm so sorry you found that benadryl let you down. I know some ppl call CH a histamine headache ... so it would make sense that an antihistamine might help to abort it or prevent it? Evidently not though.

But, we really can't give up. If remission should happen again for me... I'll probably forget I ever had the repeated pounding most every day and night of the past 9 months. Good thing we can forget pain huh? We just have to keep trying until we hit on the right solution for us.

Thanks for posting...

Linda
aka Granny Arizona

Back to top

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!