Just wanted to say any help a person can get with CH I am all for--I've had to quit jobs over CH before and also had to go down from full time to part time in college (even though it was the last thing I wanted to do--graduated summa cum laude--wasn't lazy or stupid--just couldn't function too well from pain and no sleep).  It certainly can be a disabling condition so it would make sense if someone could get disability I would think??

I thought this was a discussion regarding social security? Quote:

That's what I'm talking about.
They did the same thing to my friend, despite obvious impairments and handicap,rejected for resubmittal. Redundant idiocy.
If I offended or "slammed",anyone it was unintentional, promise.   cept for Joe. and the SSA of course.
the bb

Lauren17 wrote on Dec 1^st, 2010 at 9:06am:

Or did he go of his own free will?

What you're saying is that other people are responsible for how Chris reacts to external stimuli. I'm having a problem wrapping my head around that.

His original post explained how he had succesfully gotten SSA to get him through a tough CH period.  I was in the process of getting details of how he had accomplished that for a future "hall of fame posting" section we're working on. This type of ionformation would be incedibly valuable to a lot of people.

Due to several of the responses, he has elected to delete the posts. I for one, am hoping he sticks around. He has a lot to offer the board.

Joe

I'm hoping that continues!

Joe

I just read this thread and I have to say that this has been one of the most hateful discusssions I've read on the board.  In the depths of the horrible episode I had this past summer, I nearly lost my job because I was getting hit over 10 times a day and misses nearly a month's work and nearly lost my job (which, by the way, depends on lucidity that was deeply eroded by dealing with the constant pain). I recall that at the OUCH conference this summer the subject came up and there wasn't nearly this much of a mean reaction.  Is it easier to judge from cyberspace what anyone's true situation is and judge from afar who might be disabled long-term by something we've all suffered.  Electronic communication makes us say things that we might not say to someone's face. Where is empathy, folks? Kicking someone when they're down isn't cool. Chris did what he had to do and I applaud the fact that he shared his story.  To bully him into retreating/retracting kind of sucks.  Jim

Hi Chris,
Some people still don't understand that every case and every individual that suffers from CH's is different. during about six months a year I suffer with an average of 120 "hits" per month. I am very sad that after 15 years of CH's they continue to get worse each year.  I have not only a neurologist from UCLA but a headache specialist also at UCLA. I have undergone spinal blocks and even an Occipital Nerve Stimulator with no positive results.
In Feb. 2009 I was finally forced to resign my position as Western Regional Manager for an international manufacture of stainless steel fixtures. I went from six figures to $1884.00 per month SSA.
I make no apologies for participating in SSA benefits that I've been paying into since I was 16 nor should you.
Linda, your sarcasm and judging of other suffers should be filtered with a little more compassion and less holier than thou.
I have a lot more to say but I just put on the O2 mask for my 6th attack today and It's 8:30 PM.
Getting SSA is just as easy as being on the extreme end of chronic sufferers and having a good doctor to document the number and severity of your attacks.
Sorry if I sound bitter but I'd love to go back to work if it were not for the Demon.
Good luck!,
David

Appreciate the link Brew, thanks.  I have also found Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or .