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Just venting... (Read 3298 times)
Mike Bernardo
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Chesterfield, NJ
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Re: Just venting...
Reply #25 - Dec 13th, 2010 at 12:19pm
 
I'm still somewhat of a newbie. Only 2 "documented" HAs in 2 years (in cycle now), so I'm still experimenting. I'm on Topiramate (100mg daily), O2, and I always have my sumavel shot handy and lots of Monster Lo Carb. I agree, wether it's Red Bull or Monster, it not only knocks out the HA for a few hours, when it does creep back up, it seems to be less severe for the rest of the day (next day is a different story, of course, so I buy by the case). I also buy generics for everything, which has helped keep costs down. In the US, Wal-Mart has a pretty good pricing structure for generics, and I buy 3 months at a time to save even more. I belong to a warehouse club where I buy my energy drinks to save even more.
My kids, especially my 6 yo son is getting used to my "clusters", and this second round is very unpredictable, as I get hits mid-day, during times of high stress, at night, whenever. The first time was very regular, every day, started at 7pm, ended at 9am, hit a high around 2am. Now, I never know what to expect. A deer almost hit my car the other night, while my son was in the car with me. By the time I got home, I was so agitated from the scare, I couldn't see out of my right eye and my CH was in high active mode for the night. If I was out of cycle, that wouldn't happen, but in cycle......
Keep your head up and keep hoping it gets better. If you want to conserve on O2, and you are physically able I recommend exercise. I often hit the bike or treadmill or outside for a run or brisk walk. It's amazing how each deep breath brings several seconds of relief as I chug along, even if it's only temporary. Maybe it's mental, maybe not, but it's always worth trying something different.
Remember Einstein's definition of insanity: Doing the same thing over and over and expecting different results.
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