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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Botox

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Botox (Read 1615 times)

Stephanielewis CH.com Newbie Offline I Love CH.com! Posts: 2	Botox Dec 9^th, 2010 at 4:16pm Now that the FDA has approved it for Migraines has anyone tried or knows someone that has tried it for Clusters?
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Botox Reply #1 - Dec 9^th, 2010 at 4:44pm Somebody has tried about everything under the sun. Stick around and read. Potter
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Botox Reply #2 - Dec 9^th, 2010 at 5:04pm I did a quick scan of the medical literature this week and found a couple of yes-no articles--nothing important enough that I saved any of the abstracts. My overall sense is that, for CH, it's a work in progress re. its value. I'd exhaust trials of the established treatments before going the Botox route.
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jon019

CH.com Alumnus

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"Ya gotta believe!"

Posts: 1656
USA
Gender: male

Re: Botox
Reply #3 - Dec 9^th, 2010 at 7:45pm

Hello,

My treating neuro is at Swedish Pain and Headache Center. She heads the headache portion of that, and is also a researcher. 1-2 years ago I was invited to participate in a botox trial for headache relief.

Knowing from this forum and other research that it was unlikely effective for cluster, I nevertheless volunteered. Upon interview, I was told the study was focused in treating MIGRAINES...and was not viable for cluster.

Now, does this mean it is NOT? Nope....just that they didn't think it worthwhile to include ch in the trial....I trust her judgement.

BTW...while I didn't follow the results in detail, I understand the trial was successful for migraine treatment.... and I'm sure was part of the overall study that confirmed that.

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Botox Reply #4 - Dec 9^th, 2010 at 7:52pm There is an article and a little bit of info in this topic... Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Karla

CH.com Alumnus

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One of Many and Never
Alone - Join OUCH

Posts: 3837
x1|Madison WI USA
Gender: female

Re: Botox
Reply #5 - Dec 13^th, 2010 at 2:30pm

I tried it several times for chronic ch. The reason I tried it so many times is the neuro told me it could take a while to build up in my system and be effective. I think it was 5 or 6 treatments I had befor I told the neuro no more. It didn't help one bit. Doesnt mean it wouldnt help you. Everyone is different. I would give it a try. Especially if you are running out of things to try.

Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi

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monster CH.com Alumnus Offline I feel like a monster Posts: 32 Boise,Idaho Gender:	Re: Botox Reply #6 - Dec 23^rd, 2010 at 4:43am i have heard only a couple try it with zero to minimal results.
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