I did the same thing on print size and felt like a idiot, anyways , I told you people could be rude here, but if you think about it most of us are in lots of pain with little sleep, so go figure, . Actualy batches post are the only ones I can read comfortably. My question is sense they treat vit d toxcisty with steroids it makes me wonder if I was able to take in the vit d I was taking . sense i was on steroid for last five weeks,  my doctor wont order the lab test to check my level so  i'm going to order a mail one.

I tried the D3 and fish oil and after 4 weeks I have not seen any change.

So Here's is a very unexpected result.

First some background. I've been a CH head since 2005, originally episodic then chronic from 2007 (which is when I took Verapamil for the first time during a cycle). I started taking the D3 regimen in July 2012 when I was going through a high cycle and the results were amazing, there was an almost immediate downturn in the hits and after less than a week I was completely PF. I had a blood test done in September 2012 returning a result of 78nmol/L which I thought was perfect so remained on a maintenance dose of 5000iu D3/day with all the co factors as recomended. I remained PF for 3 months after that and at the same time weaned off the verapamil and litium chronic cocktail that I had been taking.

In January this year I moved from Christchurch to Auckland and into the worst cycle I have experienced since 2006. The hits were completely unpredictable, occuring any time of the day or night and, worst of all, my old fallbacks ergotomine and energy drinks had limited effect. My first reaction was to increase the D3 intake to 10 000iu/day thinking that my blood concentration had dropped below the threshold. After weathring this for a few weeks I went for a blood test and got a script for Verapamil to get me through until I could figure out what was happenning. The good thing is that going back onto Verap at 480mg/day stopped the beast almost in his tracks and I have been pf now for 8 days. The interesting thing is that I got the test results today and the 25 Hydroxy Vitamin D level is showing up at a level >375 nmol/L against a New Zealand optimal level of between 50 and 150 nmol/L. My magnesium level is also showing at 1.01mmol/L against a recomended max of 1.0 mmol/L.

Comments are welcomed.

Hi!

Here's my experience with the regimen so far. I've already consulted batch via pm at the start.

I am on a prolonged cycle from mid December 2012. The usual cycle for me lasts around 4 weeks and comes in once, last three years twice, per year. I use 02 at home with great success and imitrex at work when redbull or coffee doesn't work. Most of my attacks occur in the evening, almost never during sleep and rarely in the morning or early in the day. 1 - max 2 per day.

So, I started the regimen 14 days ago with the nearly advised dosing strategy: 10000 d3, 600mg calcium, 200mg magnesium, 2400mg fish oil, 15mg zinc, 90 mcg K2 + a carrot + juice / at the largest meal

After a few days I started feeling generally little better, but I began getting attacks at 2pm at work; they weren't severe, since I could chew them off with red-bull and/or coffee, but I had to use two imitrex injections at work. At the same time evening attacks very reduced to 50%. it has been like this for 10 days.

I increased the dose to 15000 d3 + took a loading dose of 50000 yesterday and I finally got the lab tests in today after waiting for far too long. It's 20 mcg/l which is equivalent to ng/ml. At the time of the test, I was already within a few days of the regimen.

I plan on continuing the regimen with 15000/day and 50000/week and getting a lab test at the end of the month to see how the levels changed.

any other advice?

Thanks,
Jure

three weeks on the regimen ,  still no change, in fact things are getting worse.  I finally got a script for my D levels though and i will get them checked on friday..  My doc was looking at me like i was an idiot thought.  saying, there is some talk that vitamin D can affect migraines, but no evidence to suggest anything of the same for clusters.  I am going on no sleep, so I almost told her to shut the @#$% up.!!!!  I still have a little hope,  but its fading fast.   

Thanks Chuh, people have posted a pic of that evil nerve a few times on the board. Gives you a much better understanding of why people have teeth pulled, get glasses, do sinus surgery....all the little links to that damned nerve!

Joe

Wayne wrote on Mar 13^th, 2013 at 9:57pm:


It certainly has been a pretty hot and dry summer here in Auckland. We've just had a drought declared for the entire North Island, so it's time to practice rain dances.

However I've escaped any sign of CH and my migraines have now dropped off to around once a month or so, so the heat hasn't affected my headaches. Since I work during the week in Wellington (500km / 300 miles south) I get to experience a temperature change of about 4C (8F) every 3.5 days.

Chuh wrote on Mar 17^th, 2013 at 9:45pm:


Lots of the informations are not based on real science, but are old myths.

Hey Everyone in Clusterville!!
Just an update and i'm going on 147 days CH free on the regimen and it has changed my life Pete!
After about 38 years of chronic CH I never thought this could happen and am so happy and so very proud of Pete Batch for his tireless work on the regimen and helping so many CHers become pain free or helped by the regimen.
WHAT A BLESSING!!....