I was wondering if there was ever some kind of survey done to see ,even though we are all very different,what we all have in common that might have birthed the beast in us.Seems to me this forum would be a good vehicle for this.There seems a lot of studies have been done to look into each of us separately but not together.
The hormone thing comes up as a cause a lot and in my experience hormones are strongly influenced by two major things....diet and even more emotions.
Hormones, for me, are the communicators that run our machine and something seems to be messing up our hard disk so that the electric signals seem to be shorting out or flipping out.
Is it a silly idea to put a  ch survey from ch ers, together  to perhaps find out if there are things and we have that we all have in common?The white coats(Dr's,specialists ect) have no idea what the cause is and we know better than most about this hideous pain,if you ask me.

What Lance said! We've done countless formal and informal surveys over the years, looking at childhood exposures, injuries, body types, eye color, so far no luck on that one common thread! No reason to stop looking, I'm still hoping someday we'll have a forehead slapping, Oh Duh, moment and we'll spend the rest of our lives thinking how dumb we were we didn't see it sooner!

Joe

ok...
sorry Lance that you weren't hugged enough...I'll send you one
know about the common pain stuff... am a chronic for many many years and get that bit...cute though.
Extra ganglion???
If that is the case then why are many in remission for years at a time?

Some of us weren't hugged enough as a child

Some of us were potty trained to young

Some of us were breast fed too many years. Some not at all.

It's your mother's fault!

We have an opposable thumb.

            Potter

ps
thanks George....I will.

One thing I find interesting is that my 1st cluster headache (rogue hit) happened when I had mono followed by a cycle a few months later when the mono had "cleared up" (it then resurfaced later on and I was diagnosed with chronic mono).  Was it caused by the mono?  Not necessarily but maybe it was a stressor that brought out the CH.  Don't know--not convinced there was a connection but it does stand out in my mind.

Oh...and I do think that it was discussed on here a couple of years ago that many people who suffer from CH tend to be on the taller side.  One time I saw some report on the internet (don't remember what it was called) that said you are at higher risk of getting CH if you are over 5 foot 8 inches.  I have no idea if this is true.  I just do not know if this is a myth or not.  Probably a myth--don't know.

The reactions say enough don't you think!!!

Exactly as i had said in my post.Unable to accept,not open to something new, bullheaded ,hard,critical and judgemental .HMMMMMM
Thanks for confirming my study.

PS Thanks for trying Starlight.

julyn wrote on Dec 10^th, 2010 at 11:05am:



Sorry to disabuse you of your notion, but Topamax is NOT an antiflammatory, nor is Lithium.

Starlight,
The tallness theory was never proven (you attend a conference of clusterheads and you'll see people of all different sizes, shapes and whatever.).

As Potter said, it's the hypothalmus (and he's not being ornery or hardheaded, just been here a long time and pretty much seen it all).

With verapamil, there are also receptors in the hypothalamus that bond with verapamil, but that being said from what I have read I am not sure they understand the mechanism by which it helps cluster headaches in some individuals.

Oh yeah...so what do topimax and prednisone and oxygen have to do with the hypothalamus?
I was chronic for around 13 years with a two year break and now i am back....none of these meds worked on me ...so if it was the hypothalamus for sure, the end,and all that, then why didn't they,or shrooms or neurotransmitters work for me?
Who doesn't know what?
and what do we really know..............
Besides that it hurts so bad that one should be sure to examine all the possibilities to make it go very far away!!!

When we can fix the hypothalamus Dj can flip the switch on this site,  till then we just gotta do the best we can with the tools we got.

            Potter