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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Raising awaress/treatment (video link)

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Raising awaress/treatment (video link) (Read 1060 times)

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Raising awaress/treatment (video link)
Dec 16^th, 2010 at 2:30pm

Hi All!

I'm currently a supporter and serial lurker with a few posts...
Anyway Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

this was just on our national news here in the UK.. It's about Deep brain stimulation treatment.

I have heard about this being done before but not much about it, but either way it's always interesting when something is on main stream TV to raise awareness of the condition and thought I'd share it with you guys who may not have seen as you are across the pond!
(I hope you can view it there)

Bex

« Last Edit: Dec 16^th, 2010 at 2:31pm by B »

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Raising awaress/treatment (video link) Reply #1 - Dec 16^th, 2010 at 7:47pm A gram of shrooms doesn't mess with the brain for as long, leaves no scars, and has a much higher rate of success. Just sayin' Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Raising awaress/treatment (video link) Reply #2 - Dec 16^th, 2010 at 8:10pm Not near as expensive, either.
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bonkers CH.com Old Timer Offline What is THIS? Posts: 308 San Diego, California Gender:	Re: Raising awaress/treatment (video link) Reply #3 - Dec 16^th, 2010 at 11:36pm At least DBS is legal.
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B CH.com Junior Offline I Love CH.com! Posts: 45 England, UK Gender:	Re: Raising awaress/treatment (video link) Reply #4 - Dec 17^th, 2010 at 3:12am Only passing on what I saw! Thought it may interest someone.
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bonkers CH.com Old Timer Offline What is THIS? Posts: 308 San Diego, California Gender:	Re: Raising awaress/treatment (video link) Reply #5 - Dec 17^th, 2010 at 3:54am Hi Bex, I apologize for making light of your post. It's gratifying to see evidence that our shared malady is getting better known. I don't really even share; I support my son who does. Thanks for the good news. Ron
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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Raising awaress/treatment (video link) Reply #6 - Dec 17^th, 2010 at 11:16am Yes...to me the bottom line is that clusterheadaches received a lot of press to a very large venue. Thanks Bex.
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Callico

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Re: Raising awaress/treatment (video link)
Reply #7 - Dec 17^th, 2010 at 1:43pm

Bex,

I didn't mean to make light of your post either. I was just short on time and just put in a little response.

I am very grateful for those in the medical community who are doing something for CH, and I'm very grateful when the new media actually reports something about it, albeit abbreviated and usually not totally accurate.

A few years ago I was very interested in the DBS surgery and then later the Occipital Nerve Stimulation surgery, but the more I looked into it the less interested I have become. ONS may be the route I have to go in the future, but I've also been finding the research into BOL, psylocybin and other related matters of much more interest given their non-invasiveness and their success ratio. A 60% percent rate of improvement, not stopping CH doesn't excite me all that much given the tremendous risks and suffering required for the help. It seems to me an 85% chance of total relief for months without someone having to mess with my brain tissue is a much better option. Cheaper too!

Jerry

Edit to add: I am appreciative that you brought this to our attention. Thanks.

« Last Edit: Dec 17^th, 2010 at 1:45pm by Callico »

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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