Hi everyone.  I am a returning member from about 10 years ago.  At that time i was fighting the pain and confusion of being diagnosed with CH.  I received tons of support - that helped me from putting my head thru that "one last wall"

My doc finally found what worked for me - verapamil and prednisone with the Maxalt backup.  And it did work.  For years.  And then the prednisone shut my body down.  I got a flesh eating bacterial infection and almost died.  I am now recovering from that and OFF the prednisone.  And the beast decided i should start a cycle.  Currently 6 weeks in on 4-5 per day.  Happy to be alive only takes you so far at 2 am.
Anyway - happy to be back on this site - like i said it saved me once.

What she said. A bunch of people for whom oxygen"didn't work" are now discovering abort times of less then 10 minutes. The HOW is critical, read the  02 link and fire away with the questions. Hang in there.

Joe

Potter wrote on Dec 22^nd, 2010 at 5:04pm:


Thanks for posting that Potter, that's the first I've seen Marc's 4 step program (great info Marc!)

Hi Matt, I'm sorry you are suffering so.  That many hits a day sucks to but it mildly.  I'm glad you're recovering from the bacterial infection.   I'm a supporter for my hubby and we had a scary incident with continual pred use as well, and you're so right when you say it's extremely hard on the body.  In his case, it's like the necessary of two evils (pred or cluster).  Hoping to go a different route, or at least not so long, next time around. 

I'm sure much has changed in the ole prevents & aborts arsenal since you were here 10 years ago, and you're in good hands.  Read all you can, ask questions, and listen to the advice you'll be offered.  This group is the best.   If you have a supporter, send them this way too.  The site is for your support system as well.  Take care and wishing you some painfree time very soon.   

Yep, it's true the newer method of O2 use is so much more effective for most of us.

Sorry to hear about your prednisone disaster. That happens a LOT.

Good 'ol Bonkers/Ron has brought up "busting" in the post above. It's something that many with stubborn cases are turning to lately due to the fact that it's a natural, non toxic preventative approach (even if not entirely legal) that for 75 - 80% or so of those who have tried it has been shown to be more effective than our arsenals of drugs.

Here's a good Newsweek article on the subject, if you'd like some reading along with the fine videos Ron offered up. 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

What doesn't kill me.......really pisses me off (is that how that saying goes??)

I go with what doesn't kill ya just hurts like hell!!!

Joe

bejeeber wrote on Dec 23^rd, 2010 at 5:39pm:


That's short for "my friend" right?   

his wife wrote on Dec 23^rd, 2010 at 6:20pm:


You can pick your own friends so it doesn't quite apply.

Got my O2 and MF (my friend....) showed up to help me test it - God Love Him!  Little did he know i was in for a 5 min abort!  Hell to the Yeah!!!!!!!!!!

MattB mercilessly treating the MF to a knockout punch with O2!

Now THAT"S some great holiday news. 

MattB wrote on Dec 24^th, 2010 at 1:48pm:


You now know why we rave about oxygen and tell people to just get it!

now i remember why i loved this website.  You guys are great.  I hope everyone has a PF holiday!

Armed with 5 O2 tanks, a full script of verapamil and maxalt and a case of red bull and  I'VE BEEN PF FOR 4 DAYS!!!!!!!!!!!

at least i'll be ready for the next round.....

Please read up on drinking Red Bull while taking verapamil. It can be done, however you should proceed with extreme caution. Overdoing it with the Red Bull can cause problems with the ticker.