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what to do with Topamax (Read 1065 times)
Mike Bernardo
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what to do with Topamax
Jan 2nd, 2011 at 12:52pm
 
I'm up to 150mg while in this cycle. The doc said I may go to 200mg (100 am, 100pm). I have been mostly PF for about a week, but some shadows, and a few sharp pains intermittently. 2 questions: first is, should I go to 200 mg and just bang out the headache (with a call to the neuro first, of course), and the second is, how long after the pain stops, roughly, do I start tapering the topamax? This cycle is much different than last year so I'm not sure how to handle, as last year I was on Topamax for 5 months, and the HA ended in March, it was definitely gone and I tapered. I don't want to be on Topamax another 3 months, as I'm feeling the cumulative effects of it now and want to stop as soon as possible. Thanks!!
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Bob Johnson
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Re: what to do with Topamax
Reply #1 - Jan 2nd, 2011 at 3:59pm
 
Mike, when you ask us for medical advice it suggets:
1. you don't trust your doc, or 2. you have a patient (you-since you playing "doctor") who lacks the judgment to make such a decision.

Sorry, just being a smart-ass....

Our collective experience is that a wide range of meds dosing is often required to get a handle on CH.

Patience is one of the key survival skills we all need when dealing with CH.

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Bob Johnson
 
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Guiseppi
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Re: what to do with Topamax
Reply #2 - Jan 2nd, 2011 at 4:12pm
 
I sure wish there was a good answer to your question. Just when your cycles hit a predictable pattern, they'll totally go south on you. With lithium, my rule of thumb is 2 weeks completely pain free, I begin to taper down from 1200 mg a day. By the time I'm at 600, I know if the cycle is over or not.

It's equal parts experience, working with your doc, patience, and a boatload of luck to figure out dosing and timing.  Undecided

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Mike Bernardo
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Chesterfield, NJ
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Re: what to do with Topamax
Reply #3 - Jan 2nd, 2011 at 6:04pm
 
Thanks, all. My doc has been very competent. Part of my opinion of him has come from his willingness to listen to my opinions and I have had great experiences with you all. I believe that my fellow "sufferers" are my best teachers and advisors on this, so I am really hoping to get some good judgment to make my decision. 2 weeks sounds fairly reasonable. Based on my HA today, I'm thinking I'm not out of the woods yet. Depending on how the next 7 days goes, I may call him to up to 200mg, try that for a few weeks to see if it kills the cycle for good.
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Guiseppi
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Re: what to do with Topamax
Reply #4 - Jan 2nd, 2011 at 6:10pm
 
Crossing my fingers for ya Mike.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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