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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hey, Where is the Welcome Wagon?

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Hey, Where is the Welcome Wagon? (Read 788 times)

LisaP

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Hey, Where is the Welcome Wagon?
Jan 6^th, 2011 at 10:40pm

Hello, I am new to this site. I have recently been diagnosed with CH. I am also having problems with pineal gland. My time is limited now using PC. The pain is unbearable and shots no longer effective. Time is of importance, or so THEY say, but I could use some help. If you know of any other individuals who suffer from CH and are also having problems with pineal gland, could you please have them email me at orientalsnuffbottles@rocketmail.com. Hopefully, I will beat this battle and be able to join some chats soon. Thank you so very much for your help. Regards, LisaP

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bejeeber

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Re: Hey, Where is the Welcome Wagon?
Reply #1 - Jan 6^th, 2011 at 11:21pm

Hi LisaP,

Just call me "Welcome wagon Bejeeber" Cheesy

Very sorry to hear you're getting hit with a double whammy CH + pineal - that is just not right on any level. Sad

Sorry I don't know of anyone suffering from both of those.

The shots you refer to - are those imitrex (sumatriptan) injections?

There's a lot of enthusiasm around here for 100% high flow oxygen as an abortive therapy, but if full dose imitrex injections have stopped working I'm not so sure I can say whether O2 likely would or not. Undecided

When you do get back on, please give us any more details if you can, in case we can point you at some helpful info.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Guiseppi

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Re: Hey, Where is the Welcome Wagon?
Reply #2 - Jan 7^th, 2011 at 12:25am

Hey Lisa, I'm the late welcome wagon!! Cannot help you with the gland question, but will echo what Jeeber said about 02. Has almost eliminated my use of imitrex. Fast, cheap and effective.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

That's the link so you get the proper set up, it must be used correctly or it don't work.

Welcome to the board, I hope we can help ya!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Hey, Where is the Welcome Wagon? Reply #3 - Jan 7^th, 2011 at 8:20am Who are "they?" And what are "they" saying? Just awonderin'. lance
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TheVerbalArchitect CH.com Junior Offline I Love CH.com! Posts: 34 Madison, WI Gender:	Re: Hey, Where is the Welcome Wagon? Reply #4 - Jan 15^th, 2011 at 1:17am What do you mean,where is the wagon? we are all here Not sure who's driving though
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