FINALLY, I took my son to a new neurologist and guess what, he sat down, talked to us, actually examined Eric.  I can not tell you how much hope we have now.  This doctor actually found a couple of things wrong with him...

1.  His heads on crook...really.  Something about the atlas and one shoulder is higher than another.  FYI, the atlas is were the head and spine meet and ALL the nerves in the spine go through.
2.  The optic nerve in his eye is swollen which is real serious as in blindness serious.

So tomorrow he's getting another MRI with extensive x-rays of his neck and head and a MRA to rule out anything else.  He's got an appointment with an opthomologist next Monday about the eye. 

And even more, he knew all about the medicine for CH and even some I didn't know about.  He also talk about a new kind of chriopractic that uses a machine to realign the atlas call "Atlas Orthogonal Chiropractic."  I have had alot of people at my work that have had this done and are singing the praises.  One person was having hip problems to the point were she could hardly walk and had this done and immediately felt better and was walking normally.  Ok, now I'm rambling, but I feel so much better.  Is Eric without CHs, not yet...but now there's HOPE!!!!

That's fantastic, I've said it before, finding a doctor who will sit and LISTEN to you is priceless! Sounds like he knows a bit about CH too, icing on the cake. Sounds like you guys may finally be on the right track. I couldn't be happier for ya!

Joe

Sounds like great news and hopefully it gets to benefit Eric greatly.

Erics.Parents wrote on Jan 18^th, 2011 at 8:26pm:


Did he mention anything that we don't talk about here? Is there anything we can all learn?