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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Thank You For Your Kindness

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Thank You For Your Kindness (Read 998 times)

SimplyBecky

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Thank You For Your Kindness
Jan 23^rd, 2011 at 10:45pm

I'm so glad that I found this site. After my post from the other night, you guys have all been so helpful and caring. And what's more important, you believed me! Try telling someone that you have headaches that are more painful than anything you've ever been through and see if they'll believe you! I guess you probably already have.

Last night I went to hell twice. I usually make it to the living room to cope with the pain, but this time I didn't even make it downstairs. I got as far as my snake room. See, I have over 30 reptiles in my house, 24 of them snakes. Most of the snakes are nocturnal. As I rolled and rocked around, I stared at the snakes moving about in their enclosures. They're so beautiful. I tried to focus on something besides the pain. I just couldn't. Those snakes are my world. If someone were to hand me one and tell me that if I killed it the pain would stop, I'd rip it to shreds with my bare hands. That scares me.

My insurance is not active until Feb. 2. Then I can get help. I hate waiting. I'm the most impatient person I know.

So now it's night. I'm scared to sleep. I read all of my friends' statuses on Facebook and see how thrilled they are that the Steelers just won (I'm from the Pgh. area) and I wish I could be that happy too. In the summer time, I LOVE the night. I miss loving the night and the darkness. My life feels so different after reading about CH's. It's like everything has changed. But I will survive. It's what I do.

Thank you so much for being here!

~Becky

It's our choices that show who we truly are, far more than our abilities.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Thank You For Your Kindness Reply #1 - Jan 23^rd, 2011 at 11:11pm Hang in there, keep reading like crazy. Knowedge is your friend, an educated CH'er hurts a lot less. Joe
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SimplyBecky

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Gender: female

Re: Thank You For Your Kindness
Reply #2 - Jan 23^rd, 2011 at 11:14pm

Thanks, Joe.

I'm reading the treatment part of the forum now. I'm definitely confused on the clusterbuster site though. I'm not sure what they're offering as treatment. It just seems to be another forum to me. It's so funny - I've never had an energy drink in my life and think they're incredibly bad for you. But now I have a can of Red Bull in my fridge. My friends would harrass me to death if they saw that! Ha ha.

It's our choices that show who we truly are, far more than our abilities.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Thank You For Your Kindness Reply #3 - Jan 23^rd, 2011 at 11:17pm Clusterbusters is about using illegal hallucinogenic drugs to eliminate the pain. It works for 75-80% of the people who follow the regimen.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

SimplyBecky CH.com Junior Offline Posts: 38 Gender:	Re: Thank You For Your Kindness Reply #4 - Jan 23^rd, 2011 at 11:18pm Yeah, that's what I was gathering from the treatment forum on this site. If it works, I think I'd try just about anything. But I'm not sure how you go about getting this kind of treatment. Probably shouldn't as my doctor! Ha ha.
Back to top	It's our choices that show who we truly are, far more than our abilities. IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Thank You For Your Kindness Reply #5 - Jan 23^rd, 2011 at 11:22pm You'd be surprised, Becky. My Dr. brought it up to me.... I too was worried to mention it. I do have a VERY knowledgeable Dr. though.
Back to top	« Last Edit: Jan 24^th, 2011 at 1:44pm by Jeannie » "It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

bejeeber

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Re: Thank You For Your Kindness
Reply #6 - Jan 23^rd, 2011 at 11:22pm

Good idea about trying to focus on something else besides the pain.

I think many of us know how challenging that can be at certain CH intensities. Shocked

This new link that gives a quick rundown of the clusterbuster approaches might be helpful:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

« Last Edit: Jan 23^rd, 2011 at 11:28pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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SimplyBecky

CH.com Junior

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Posts: 38
Gender: female

Re: Thank You For Your Kindness
Reply #7 - Jan 23^rd, 2011 at 11:29pm

Jeannie: I'm a little worried that my doctor won't know a thing about my headaches and that I'll lose more time getting help while making an appt. with a specialist. We shall see.

bejeeber: I've always been a little wary of taking any drug (even over the counter) when I don't know much about it. I am JUST learning about all of this. I know when I'm experiencing a CH, I'd do anything or take anything to get rid of it though. I definitely want oxygen!! If my doctor doesn't give it to me, I'll find a way to get it myself for sure. That seems to work for so many of you. I think I read on Wikipedia that focusing on something else would help. I think it might have in the beginning but then I lost the focus. My snakes must think I'm crazy. Wink

It's our choices that show who we truly are, far more than our abilities.

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SimplyBecky CH.com Junior Offline Posts: 38 Gender:	Re: Thank You For Your Kindness Reply #8 - Jan 23^rd, 2011 at 11:34pm bejeeber wrote on Jan 23^rd, 2011 at 11:22pm: This new link that gives a quick rundown of the clusterbuster approaches might be helpful: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Yes!!!! This is incredibly helpful! Thank you.
Back to top	It's our choices that show who we truly are, far more than our abilities. IP Logged

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