crosspescara wrote on Jan 25^th, 2011 at 4:27am:


Hi Garry,
Is there anyway do you think that members could enter their dates here, on-line?
Then the stats would be accessible and easily monitored/collated, rather than individually monitored by them...
Just a thought
Regards
Gary

When I was episodic, seasons seemed to rule the day. I would always get hit in the summer months. Then, after 10 years or so, they switched and winters were king. Then I went chronic...inevitable I guess...so the pattern is all the time!  My guess is there is no "block party" here where everyone gets hit at once but instead a rhythm peculiar to the inividual's cycle. Blessings. lance

It's pretty much a year round start and end to cycles around here. Just my observations, but year round, people post the beast is starting, peaking, leaving and gone. Some members are affected by weather, some not, some follow the daylight savings time, some don't. It's the one constant in the beast, his total unpredictability!

Joe

From long ago I have a B.S. in Psych with an emphasis in research, physiology and statistics and I'm still in touch with one of my stats profs.  Just for fun (yeah right!) I started (and I mean JUST started... yesterday) looking at the state by state listing of number of CH sufferers on this site and putting that against total state population.  In thinking about it, it really starts to boggle the mind trying to imagine all the variables... does amount of daylight have an effect? (I feel better with more sun but others have posted that sun is a trigger. People in sunny areas - do they go out and have more sun exposure or, like a friend of mine in Florida, stay in all day because it's so bloody hot?).  Episodic is one issue, chronic is all together another where correlations to seasonal onset don't apply.   

I guess the way to start this would be to develop a spreadsheet of different variables members could post to on this site.

I know a lot of these are already on the survey on this site but what would be some more headings to explore?  Anyone please jump in and add to this (for example, I had no idea that blue and brown eyed persons are more likely to have CHs). 

1)Time of year of onset,
2)time of year of remission,
3)number of hits per cycle,
4)location of individual by state and
5)maybe even by region within the state (e.g. some areas of Ohio have a longer growing season than others and therefore seasonal differences would be more subject)
6)sex of individual
7)age of individual
8)age of individual at time of first onset
9)smoker
10)drinker
11)occupation
12)length of time at occupation
13)number of hits per day
14)what time of day do the hits come
14a)how long do the hits last
15)height/weight of individual
16)amount of time spent exercising during the week
17)income level
18)education
19)family history of CH
Opening more cans of worms:
20)Method(s) of aborting
21)Method(s) of preventing
22)Nutritional supplement(s) taken that help
23)Diet
24)known triggers
25)symptoms indicating the onset of a CH
26)symptoms indicating the onset of a cycle of CHs
27)medical history of accidents, illnesses, operations, orthodontics, vision...
28)ethnic background
29)eye color/ hair color

Ah heck, after I've looked this over I'm wondering if I'm even being realistic???  Well, I'll post it anyway and see what kind of feedback comes.

I've had CH since I was ten. They were all over the place then but worst in the Spring and sometimes Fall.   They disappeared when I was 18 or 19 then came back in my twenties. 

I rarely feel clear headed. I can almost always feel it lurking even when I'm not getting hit regularly.  Sometimes all day shadows knock me on my butt, especially if  they don't let up for a few days.   

PF wishes,

Jeannie