Click this link to read a post I like on the clusterheadaches.com message board...

melon

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Trying to find cheap 02 supplies in the uk ?
Jan 26^th, 2011 at 1:47pm

Hello All,

Excuse my lack of intro but Id rather cut to the chase , as I have other issues that are making this difficult as it is.

What i wanted to ask simply ( because im in the uk where nothing is cheap ) is what experince folk here have had with any of the sellers who are selling concentrators like the one below on ebay ?

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

I dont just want to use this for CH , but other issues too you see ( connective tissue etc ) as its seems to help , and is far more cost effective than anything i could get here - even if my doctor was willing to accommodate it.

I dont really know anything about this brans or indeed most brands so any advice would be welcomed , as I dont have big budget to really play with.

I do have account with Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

, so if there are other brands in the US i could try that would be better , then theres possibility I could get it shipped over too.

thanks

melon

Back to top

« Last Edit: Jan 27^th, 2011 at 9:44am by melon »

IP Logged

just-squiggles Ex Member	Re: Oxygen concentrators off ebay ? Reply #1 - Jan 26^th, 2011 at 7:46pm 1-5 liters of O2 is likely to do nothing for CH.A minnimum of 15L is more likely to help.Many of us use 25LPM or higher. For more replies from ppl that know 'how it all works' in the UK you may want to post with the subject "Help,O2 users in the UK"
Back to top	IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Oxygen concentrators off ebay ? Reply #2 - Jan 26^th, 2011 at 11:10pm Quote: 1-5 liters of O2 is likely to do nothing for CH.A minnimum of 15L is more likely to help.Many of us use 25LPM or higher. For more replies from ppl that know 'how it all works' in the UK you may want to post with the subject "Help,O2 users in the UK" Ditto to what just-squiggles posted!
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: Oxygen concentrators off ebay ?
Reply #3 - Jan 26^th, 2011 at 11:49pm

The concentrator is not effective for CH. Two reasons: 1) the flow is to low for relief except for a very few of us. 2) it will only generate approximately 80% oxygen and you need 100% O2 for it to work.

I can't speak to the quality for other uses. Check the feedback on the dealer and see what others have said about it and him.

Jerry

Back to top

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: Oxygen concentrators off ebay ?
Reply #4 - Jan 27^th, 2011 at 3:36am

You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time.

The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Hope this helps.

Take care,

V/R, Batch

Back to top

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

melon

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: Oxygen concentrators off ebay ?
Reply #5 - Jan 27^th, 2011 at 8:59am

Callico wrote on Jan 26^th, 2011 at 11:49pm:

The concentrator is not effective for CH. Two reasons: 1) the flow is to low for relief except for a very few of us. 2) it will only generate approximately 80% oxygen and you need 100% O2 for it to work.

I can't speak to the quality for other uses. Check the feedback on the dealer and see what others have said about it and him.

Jerry

Well according to the feedback the seller seems legit .

I mean if it helped with my joints etc it would be something but as you say 80 % is not enough for Ch .

The interesting thing is that by helping my connective tissue problems I do seem to be able to " infleuence " my Ch ( In fact Id say even more than that if I was the cocky sort )
, Im not sure if this is the norm here ( I assume not )
but perhaps this might allow me more leyway ?

The only cocentrators you can hire here Ive seen ( the same ones that are affilated with ouch forum ) are 300 for 2 wks , and still not at required amounts you mention above.

melon

Back to top

IP Logged

melon

CH.com Newbie

Offline

I Love CH.com!

Posts: 6

Re: Oxygen concentrators off ebay ?
Reply #6 - Jan 27^th, 2011 at 9:24am

Batch wrote on Jan 27^th, 2011 at 3:36am:

You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time.

The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Hope this helps.

Take care,

V/R, Batch

Thanks Batch , thats really great write up youve done there.

I was just having a look on ebay ( uk that is ) to see if there was any cheap suppliers of tanks and saw this .

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Considering I paid over half of that for 6.9 lit of thatfor this ( Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

)that looks a pretty good price.

m

Back to top

IP Logged

Potter

CH.com Alumnus

Offline

Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
Gender: male

Re: Oxygen concentrators off ebay ?
Reply #7 - Jan 27^th, 2011 at 9:46am

melon wrote on Jan 27^th, 2011 at 9:24am:

Batch wrote on Jan 27^th, 2011 at 3:36am:

You can make an oxygen concentrator work very effectively to abort your cluster headaches, but you're going to need a 40 gallon reservoir bag and have it filled ahead of time.

The following link will take you to a thread and a post I put up on how to make a 40 gallon reservoir bag: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Hope this helps.

Take care,

V/R, Batch

Thanks Batch , thats really great write up youve done there.

I was just having a look on ebay ( uk that is ) to see if there was any cheap suppliers of tanks and saw this .

[url]Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

[/url]

Considering I paid over half of that for 6.9 lit of thatfor this ( Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

)that looks a pretty good price.

m

NO!! That ain't good.

Potter

Back to top

IP Logged

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Trying to find cheap 02 supplies in the uk ? Reply #8 - Jan 27^th, 2011 at 11:04am Potter's right. That's DEFINITELY not the way to go. Best, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

melon CH.com Newbie Offline I Love CH.com! Posts: 6	Re: Trying to find cheap 02 supplies in the uk ? Reply #9 - Jan 27^th, 2011 at 11:14am George wrote on Jan 27^th, 2011 at 11:04am: Potter's right. That's DEFINITELY not the way to go. Best, George Which part , the 40 gallon ( im trying to remember how big that is ) bag or soemthing else ? m
Back to top	« Last Edit: Jan 27^th, 2011 at 11:17am by melon » IP Logged

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Trying to find cheap 02 supplies in the uk ? Reply #10 - Jan 27^th, 2011 at 11:24am The disposable gas welding bottle for CO2 and Argon.
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Trying to find cheap 02 supplies in the uk ? Reply #11 - Jan 27^th, 2011 at 11:38am George wrote on Jan 27^th, 2011 at 11:24am: The disposable gas welding bottle for CO2 and Argon. That would cure the problem. It would killya. Potter
Back to top	IP Logged

crosspescara CH.com Junior Offline Posts: 34	Re: Trying to find cheap 02 supplies in the uk ? Reply #12 - Jan 27^th, 2011 at 11:55am Posted this yesterday I use the HX tank Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Have a scan thru the BOCMedical site, no idea what the costs are, Ive been lucky cause my local gp surgery prescribed it for me
Back to top	You may have to fight a battle more than once to win the war IP Logged

melon CH.com Newbie Offline I Love CH.com! Posts: 6	Re: Trying to find cheap 02 supplies in the uk ? Reply #13 - Jan 27^th, 2011 at 2:05pm Potter wrote on Jan 27^th, 2011 at 11:38am: George wrote on Jan 27^th, 2011 at 11:24am: The disposable gas welding bottle for CO2 and Argon. That would cure the problem. It would killya. Potter Woops, I did put in 02 .
Back to top	IP Logged

crosspescara CH.com Junior Offline Posts: 34	Re: Trying to find cheap 02 supplies in the uk ? Reply #14 - Jan 27^th, 2011 at 3:36pm melon u got to be british u got irony, understatement and humour in a reply by just using one word woops
Back to top	You may have to fight a battle more than once to win the war IP Logged

melon CH.com Newbie Offline I Love CH.com! Posts: 6	Re: Trying to find cheap 02 supplies in the uk ? Reply #15 - Jan 27^th, 2011 at 4:31pm George wrote on Jan 27^th, 2011 at 11:04am: Potter's right. That's DEFINITELY not the way to go. Best, George well, its one way to go I dont see any welding cannisters thats pure 02 over here , even that one on the link crosspescara gave me was 5% co I think . m
Back to top	IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: Trying to find cheap 02 supplies in the uk ?
Reply #16 - Jan 27^th, 2011 at 10:03pm

Call the folks at OUCH-UK. They know the ropes on how to obtain oxygen therapy for your cluster headaches. Here's their link: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

As far as the link you provided, the UK has standards for filling oxygen cylinders so trying to take a cylinder for another gas like Argon, CO2, a mix of the two. or any other gas that's not medical grade oxygen to be filled with oxygen will be a non-starter... They won't fill it and you'll be out the cost of a useless cylinder.

Take care,

V/R, Batch

Back to top

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!