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Jackie

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Input/Info. Please....
Feb 3^rd, 2011 at 3:42pm

There is a 'Recommended Doctors' page on the OUCH website.

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Bill/Racer has kindly agreed to research and update the list.

Would you please help by looking it over. If you would like your doctor's name added, please go to the OUCH msg. board and post the information. If you see any incorrect listings, please let us know that too.

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(we'll get a sticky up asap)

The doctor reference page is very helpful when a new sufferer comes looking for help. It has also been beneficial to LindaH and the Family Services Team.

Thanks for your help.

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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Input/Info. Please.... Reply #1 - Feb 5^th, 2011 at 6:18pm The list isn't just for neuros and headache specialist. If your doctor/family physical is CH friendly and has helped you..let us know, please. Simply state what kind of doctor he/she is. Thanks
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Grandma_Sweet_Boy

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Re: Input/Info. Please....
Reply #2 - Feb 5^th, 2011 at 9:00pm

I've heard good things about a Dr. Gawal from Sunnybrook Hospital in Toronto and have referred a couple of Canadian folks to his service.

As for me, my own family doctor is an absolute rock and when last in cycle - he researched right along with me. In fact, he is the one that directed me to this site several years ago. I bless him and all of you on a very regular basis.

Carol

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Callico

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Re: Input/Info. Please....
Reply #3 - Feb 5^th, 2011 at 9:54pm

My GP until my job change and ins change was Dr Karen Burgner at Dreyer Medical Clinic in Aurora IL. Headaches are her hobby as she has several migraineurs in her family. She also has a couple of other CH patients, but couldn't put me in touch with them due to HIPAA. She was excellent to work with, and I've not bothered with a Neuro for several years after firing the last one. She would basically do what ever I asked for saying, "You probably know more about CH than most Neuros". I would recommend her highly.

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Input/Info. Please.... Reply #4 - Feb 7^th, 2011 at 2:09pm Keep them coming.......I managed to get several states done this weekend.....and I want to make sure we have as many cluster friendly docs on the list as possible.
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Val_ CH.com Sponsor Offline There is nothing permanent except change. Posts: 252 Bay Area, CA Gender:	Re: Input/Info. Please.... Reply #5 - Feb 8^th, 2011 at 12:18am Hey Beeyull, Please don't forget to add the good professor to SF, CA. Val
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: Input/Info. Please.... Reply #6 - Feb 11^th, 2011 at 7:55pm Hey Bill, My Neuro, Dr. Gerald Riess who is listed in Michigan has now moved to Portland, Or., as of Nov. God I miss him. Don
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Input/Info. Please.... Reply #7 - Feb 16^th, 2011 at 6:00am BUMP Bill is knocking this project down state by state. He needs any and all current info you can provide. Please keep it coming folks. Thanks
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Input/Info. Please.... Reply #8 - Feb 16^th, 2011 at 7:09am Dr. Michelle Klasinski is still good to go for Wisconsin.
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Lenny

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Re: Input/Info. Please....
Reply #9 - Feb 16^th, 2011 at 7:19am

Is there a meaning on the list,as some docs prior to his or her name says Dr. and the majority just have a name?
example #1 Dr. Hung Low Yee

example #2 Molly Poppins

I was trying to figure this out myself...Thinking the one's that say Dr. prior to the name are neo.spc. (for clusters) and the rest were reg. docs that helped people with our condition...

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yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Input/Info. Please.... Reply #10 - Feb 16^th, 2011 at 7:43am No meaning Lenny. The Dr. page had info input directly by the patient. They filled out an on-line form and when submitted, the program automatically entered the info on the page. It all depended on if the sufferer entered the Doc's name with the Dr. in front or not.
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Racer1_NC

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Lewisville, NC
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Re: Input/Info. Please....
Reply #11 - Feb 16^th, 2011 at 1:19pm

When I am finished revising the list I will have in place indicators that will tell a user what type of Doctor is listed.

I'm about halfway through what has become quite a task. I am verifying each listing with what I deem to be reliable info from the web or a phone call. Hopes are to be finished with the US List by the end of the weekend. Canada will come next......

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“We see what we believe, not the other way around." — Varga

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Input/Info. Please.... Reply #12 - Feb 16^th, 2011 at 3:44pm You're doing a good thing Bill.
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Input/Info. Please.... Reply #13 - Feb 24^th, 2011 at 3:59pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Link to 'new and improved' doctor list. Thank you Bill!!! I know it took you hours....it's very much appreciated.
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: Input/Info. Please.... Reply #14 - Feb 24^th, 2011 at 5:30pm I will be starting on the rest of the world this weekend.....if anyone knows of any corrections, please.....drop me a line.....
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Input/Info. Please.... Reply #15 - Feb 24^th, 2011 at 5:37pm My New Neurologist Dr Todd Rozen MD Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or He is also the one doing the Demand Valve O2 Study for CH. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Racer1_NC

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Lewisville, NC
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Re: Input/Info. Please....
Reply #16 - Feb 24^th, 2011 at 5:43pm

JustNotRight wrote on Feb 24^th, 2011 at 5:37pm:

My New Neurologist Dr Todd Rozen MD
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

He is also the one doing the Demand Valve O2 Study for CH.
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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He is on the list.... Wink

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“We see what we believe, not the other way around." — Varga

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Input/Info. Please.... Reply #17 - Feb 24^th, 2011 at 6:05pm Great job Bill on something that was overdue, Joe
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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Input/Info. Please.... Reply #18 - Feb 24^th, 2011 at 7:14pm Thank-you so much Bill! Amazing what a difference one person/volunteer can make (and I'm not talking about our webmistresses, they already know what I think of them). Carolyn
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