After being PF for a long time, the beast is back.  At the hospital they refuse to give me oxygen and they don't allow me to have a big tank at home, even if I already have all the kit, regulator, stand and whatnot...  I live in a small town nobody knows what is cluster headache.  Right now I'm hit 5 times/24hours everyday and this time I must tell you...  even after 15 years...  I don't know this time.  I think about suicide a lot.  A bullet in the head.  I don't think I can make it one more time.    Sorry for the sad post but I don't know what to do.  I wrote my testament and all...  thinking.

Take matters into your own hands. Seek a welding supply house and get oxygen yourself. Fuck the doctors and the hospital - it's your head, not theirs.

If your regulator doesn't fit a welding oxygen tank, get one that does.

You need to create your own light at the end of the tunnel and keep your eye on it.

Here's something that will help. Click on this link and start reading:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Read everything. Anything to get your mind off how others aren't helping your situation.

Take control. The beast is winning right now. Don't let him. You win. You. Not him.

Guiseppi wrote on Feb 7^th, 2011 at 7:58pm:

I live in a small town in Quebec, canada.
Thanks everybody and sorry for the sad message...  dark clouds sometime hang on me but in the end, when the pain is gone, I work it out. 
I have a kit for a M tank, do you think it would fit a welding O2 tank? And is the O2 medical grade?

Pomodoro wrote on Feb 7^th, 2011 at 8:04pm:


All I know is that plenty of US clusterheads go the welding O2 route, and the welding O2 here is reported to be the exact same stuff as the medical.

If Canadian lads don't respond here, I wonder if you could do some creative phone calling in order to gain info about Canadian welding O2? Like calling welding supply places in other regions and asking about price etc. to establish your legitimacy, then slip in an afterthought sounding question about whether the welding o2 is the same as medical grade? Then use the same tactic for finding out whether your regulator will work....

There are members at the Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or forum who have exhausted the pharmaceutical possibilities over the years only to have found some real preventative relief with nature's cluster busters. Here's a Newsweek magazine article on the subject: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

If you become more interested in clusterbusting, this is a place to find "how to" info: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Hang in there Pomodoro - there are still some promising things to try.

Update: I called again my doc to get O2 and he told me that he have to see me before he takes decision...  march 10 he told me. 
I waited 10 minute then I called again to tell him to cancel cause I found another quicker solution for the pain to end and that I don't need him anymore. 
10 minutes later he called me back and told me that we have an appointment at 11:00 tomorrow and if all goes well I will have my O2 in the afternoon.

My husband used welding O2 this last cycle, worked like a charm. Hell, I'm kind of in love with that big red tank with the Optimask hanging off of the big brass welding regulator. Saying it was amazing is a gross understatement!

The difference between being at this thing's mercy and being on the other side of it, well managed and helping others, was a difference of mere weeks for many here. Hang on, hang on, hang on so you can join us over on this side!


Keep us posted!

Lauren17 wrote on Feb 8^th, 2011 at 4:58pm:

Check your husbands pulse.

          Potter

Good on you, see what happens when the pink slip comes out.
the bb

Awkward silence.

Umm, yeah, red- what's up? There isn't a standard on color on welding O2 and acetylene tanks. (most of 'em that were switched out for refills were green, one was unpainted) You make me think I'm doing something wrong over here... Alright, I just called and verified- valve on the O2 tank is male- meaning the regulator is female, valve on acetylene is female, meaning the regulator is male. So I can't have an acetylene tank with the cga540 O2 regulator we have. Lady at my welding supply just explained that to me and confirmed they don't have a standard for tank colors either. As well as the labels clearly stating what gas they are. Heck, the cage they store the tanks in was a rainbow of tank colors.

Sigh. Is it the phallic symbolism you guys are making fun of? Dang it you guys.

"Sigh. Is it the phallic symbolism you guys are making fun of? Dang it you guys."

I obviously took it the wrong way too, Thanks for pointing that out Brew

Gary

Personally, I've never heard of O2 being distributed in a red tank. But all my O2 is from a medical supply house, so what do I know?

Google it. Or look on hotrodders.com forum or weldingweb.com (they both have forum discussions on this topic) and verify yourself. My O2 place gave me the red O2 tank and confirmed there is no standard tank color, though you are right- most, but not all, are green. You want a newbie not using welder's O2 because they're given an unpainted tank? Or a red one? Or a blue one? I don't. This concept makes people nervous enough, lets not add to their hesitation to go this route.

I'm not upset Potter, really- but I want this clarified for everyone out there.