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I'll send ya a new hat now Lance, bet the other one just got tighter.
You are right Lance is the man
the bb

Just had a visit for the inalho (I think in English it's called Respiratory Therapist...whatever).
She lectured me on CH (like I don't know) and told me that I was an exception cause they have 4 clusterhead and they treat them with 4 litter per minute, no mask and only cannula (kind of small tubing).  And they were satisfied and I'm the first one they see that have a cycle ???  The others are hit once in a blue moon.  I told her then it's not the same illness we're talking about.  I dislike her.  She told me that if I go ever 10 litter per minute they will take action...  FUCK YOU!
My doctor told me it was ok, my neuro told me so and even at the emergency the nurse gave me O2 with cannula at low flow rate and when the doc saw me he told her that I needed 15 lt/m with a 100% mask, that this was useless for treating CH they way she had set me up, even if I told her the same thing before.  But these therapist, they know nothing or what?  What do they have again O2?

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I would SO like to sit down with these 4 clusterheads and talk to them. 

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They will take action???   wtf does THAT mean,  do you suppose????  Arrest you for going over 10 lpm??

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   oh heavy sigh....

Pomodoro, you've been here a little while and I am certain you've read the links as well as a lot of the threads around here.  You need to be pro-active in your treatment.   Not that you haven't already tried,  but it seems to me that you, your wife, a good friend...someone needs to kick some ass or at least an advocate is needed to crawl through the red tape for you.

This kind of crap really pisses me off and I am so sorry that you are not being treated like you should be. 

If I could...I'd fly in & sit in on your next appointment with you.  At least I'd let them understand that their understanding of oxygen therapy is antiquated.

Well, I'm still in cycle but I'm a happy panda with O2.  Depression is usually a big issue but not this time.  In fact, I may have a good news pretty soon.  Touch wood. 
Two days ago I slept the whole night, 12 hours in fact.  After a month and a half of 3-4 hours sleep it was really great.
I think I'm at the end of my cycle.  I still feel the beast lurking behind my right eye but hey...  I have O2 so I feel safe.
Have a a good PF day everyone.

I'm always amazed at what a single nights sleep can do to change your whole outlook on life! 02 can sure change the way you view the old beasty huh? Hoping the cycles done for this go round.

Joe