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Another new sufferer (Read 601 times)
QnHeartMM
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I AM a Phoenix!


Posts: 1783
San Diego, CA
Gender: female
Another new sufferer
Feb 16th, 2011 at 1:17pm
 
The nurturing side of me is being tortured right now.

Our daughter Jeanette called me Sunday night asking for the URL for this site. Seems she saw a posting on FB from a friend from her college days that he's just been diagnosed with CH. I gave her this site, plus OUCH and she sent to him. I'm praying that he has been here and is maybe one of our new posters here. Joe and I would very much be available to help - am assuming he lives in So Cal. We could talk by phone, email, meet in person, whatever it takes, to lend a hand, or even just a sympathetic ear.

We just want to make sure Jeanette's friend has gotten the info he needs to work with his doctors on a feasible treatment program.

Please PM me if you'd like to discuss further. I'm thinking about you.
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Treat people with kind words.
 
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Jeannie
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Live, Laugh, Love....


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St Louis, Missouri
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Re: Another new sufferer
Reply #1 - Feb 16th, 2011 at 2:16pm
 
Christy,

Jeanette's friend couldn't have better people in his corner than you and Joe.   I too hope he shows up here.

Jeannie
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"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
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bejeeber
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Gnashville
Gender: male
Re: Another new sufferer
Reply #2 - Feb 16th, 2011 at 5:42pm
 
If he doesn't show up I think you may have to agressively go after him!

Having you and Joe to guide him to a high likelyhood of PF status would be the best possible thing that could happen for him right now and could be a genuine life saver
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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coach_bill
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x0|euclid|USA||0|0|OH,Ohio
Gender: male
Re: Another new sufferer
Reply #3 - Feb 18th, 2011 at 9:23pm
 
You can lead a horse to water....
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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