Click this link to read a post I like on the clusterheadaches.com message board...

BigMatt

CH.com Hall of Famer

Offline

Live to ride, ride to
live.

Posts: 1089
Mountain View, CA
Gender: male

Pain study starts today.
Feb 16^th, 2011 at 4:10pm

Well I was driving down the road two weeks ago and there was an ad for a pain study in a local town and they gave a web address for anyone who was interested in participating in the study. I went to the site and filled out an application and guess what, they contacted me and said I could participate in the study, now they are trying to use MRI’s to map the brain during pain and to try and use the MRI like this to diagnose and help treat pain. They said they will not only do it when I am in my normal level of pain witch is all the friggen time but also will dip my arm n an ice bath and do pressure on the finger nail to inflict pain while they are doing the MRI. I am hoping that maybe they will find something in my brain that is abnormal and can be corrected or at least they can teach me ways to deal with the pain so I do not have to take any more pills, that is also part of the study. Tonight is my first appointment and I hope during this they do not change their mind about having me in the study, having SUNCT may change things not sure so we will see tonight.

Wish me luck.

Matt

Back to top

There is no stronger a person then one who can deal with brain pain and still function.

http://www.facebook.com/#/home.php?ref=home

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Pain study starts today. Reply #1 - Feb 16^th, 2011 at 7:06pm Good for you matt, enough people like you keep turning over enough rocks someone is gonna figure our brains out! Good luck. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Linda_Howell

CH.com Moderator
CH.com Alumnus

Offline

Do not feed the Moderators

Posts: 11927
Santa Maria, Ca.
Gender: female

Re: Pain study starts today.
Reply #2 - Feb 16^th, 2011 at 8:00pm

Even though this sounds strange to me..

. Quote:

They said they will not only do it when I am in my normal level of pain witch is all the friggen time but also will dip my arm n an ice bath and do pressure on the finger

Please, please let us know and update us on this procedure and any results they may give you.

While I realize you don't have CH, trials like this could very well help all of us as well.

Back to top

Hurt people.....hurt people. Think about it.

IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Pain study starts today. Reply #3 - Feb 16^th, 2011 at 8:40pm Good luck Matt. I hope they help you find some answers. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Pain study starts today. Reply #4 - Feb 16^th, 2011 at 9:03pm Good Luck Matt! and WTG - putting yourself out there in hopes of finding help - not just for you - but for others. Carol
Back to top	IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Pain study starts today. Reply #5 - Feb 16^th, 2011 at 11:49pm Sounds interesting Matt - hopefully they find some useful results that will help with pain management.
Back to top	IP Logged

BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Pain study starts today. Reply #6 - Feb 17^th, 2011 at 11:13am Well the first appointment was just a ton of questions and a pain threshold test, my first MRI will be in like two months so not a fast study but once it really starts I will update everyone. Matt
Back to top	There is no stronger a person then one who can deal with brain pain and still function. IP Logged

LadyLuv

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 1495
Champaign, IL
Gender: female

Re: Pain study starts today.
Reply #7 - Feb 17^th, 2011 at 1:18pm

BigMatt wrote on Feb 17^th, 2011 at 11:13am:

Well the first appointment was just a ton of questions and a pain threshold test, my first MRI will be in like two months so not a fast study but once it really starts I will update everyone.

Matt

Thinking of you Matt... I know without a doubt you will keep us informed...

Luv & Hugs
Peace & Blessing
Ruthie

Back to top

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Pain study starts today. Reply #8 - Feb 18^th, 2011 at 6:07pm All I can say is THanks! I think you will help all of us with this. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Click Here to visit the CH.com Facebook page!

BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Pain study starts today. Reply #9 - Feb 22^nd, 2011 at 11:22am Got a call yesterday and they had a cancelation or something and now I go for my first scan today at 4:30. Cool.
Back to top	There is no stronger a person then one who can deal with brain pain and still function. IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!