Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
8 years chronic (Read 786 times)
hadit
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 4
around the way
Gender: male
8 years chronic
Feb 18th, 2011 at 12:00am
 
hi guys
well where do I begin I had my first attack in 1995
after receiving vaccines in the air force. the clusters where episodic for years then in 2003 they turned chronic and have remained I have at least 2 per day and at certain times of the year I have as many as 7. as far as drugs It seems I've taken them all at one
time or another verapamil , steroids, imetrex
after three years on o2 it stopped working. I've done
, thc
pills I can't even remember all the drugs I've taken over the years I even saw a quack who said I had CPH and gave me large doses of indomethacin till it gave me a GI bleed.
I spent $1000. on a chiropractor. I tried the easy way out

once (suicide) but I didn't succeed. my wife has walk twice and came back. so here I sit 8 years
later just surviving not living. right now I'm taking Ritalin and I know I'm addicted to oxycodone.
I'm not sure why I'm writing I guess I just wanted to share I'm not looking for sympathy or help
most of the time I just want to be left the hell  alone. oh yeah I'm 51 years old and felt my first
attack when I was 35 if you would have told me this was my future I would have said get F. k out[color=#0000ff][/color]


Back to top
  
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: 8 years chronic
Reply #1 - Feb 18th, 2011 at 12:39am
 
Welcome to the board, you're in a rough spot. 2 suggestions:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Read this link. HOW we use 02 has changed quite a bit. People for whom 02 wasn't working are back to 6-10 minute aborts.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Then go to this site. They use less traditional methods to treat CH, including mushrooms, RC seeds, quite a bit of stuff for you to investigate there. They have been cranking out some amazing success stories for members for whom traditional meds were failing.

Then stick around and start reading like crazy. HOW we use many of the traditional meds has changed. There are  alot of new regimens that are showing promise. We'll help you any way we can. Hang in there, you're not alone anymore.

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
wimsey1
CH.com Alumnus
***
Offline


I Love CH.com!


Posts: 2457
MA
Gender: male
Re: 8 years chronic
Reply #2 - Feb 18th, 2011 at 8:23am
 
What Joe said, and then some! I get it. And I get the turmoil this thing causes in your life. You've been alone with these things for far too long. And like you, as a 24 year vet of CHs, I thought I had tried everything, until I found this site. It isn't so much that there is something new, but new methods and new info on proper dose levels. For example, when I first started verpamil, 240mg/day was the limit. Now, we find for CHs, that's actually quite low. The dose can go as high a 960mg/day for effective treatment. Same with O2. 15lpm was tops, now we find 25-60lpm works best. Check your pm's. I'm sending you my cell phone number. Call if you just need to talk, OK? Blessings. lance
Back to top
  
 
IP Logged
 
bejeeber
CH.com Hall of Famer
*****
Offline




Posts: 1359
Gnashville
Gender: male
Re: 8 years chronic
Reply #3 - Feb 24th, 2011 at 2:57am
 
Hadit - who could possibly blame you for the way you're fed up with this incredible nightmare?

The thing is though, those 2 guys who responded above are right. Even people with severe chronic cases like yours have been surprised to find relief with the clusterbusters prevents, and actually get their lives back. Newsweek even ran an article on it - you oughta check it out: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

I gave up on O2 too. It stopped working. But when when I found out about the high flow / non rebreather approach here - started working again!

There actually still is hope for you to get some relief.
Back to top
  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!