Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
I NEED HELP (Read 813 times)
Bo
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 1
I NEED HELP
Feb 24th, 2011 at 3:43pm
 
I need help....I have had these d--n things for around 10-11 years now. My newest cycle has been going on for about a month now and only getting worse. I have tried just about everything (except the oxygen) and nothing helps. Im going back to the doctor in the morning (which just so happens to be my birthday) for the first time in a couple of years. I stopped going because i never had anything that works, but im at the end now and i have to find something that will at least help a little. Im just totally exhausted and downright terrified to go to sleep because i know its lurking. Any suggestions?
Back to top
  
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: I NEED HELP
Reply #1 - Feb 24th, 2011 at 3:54pm
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Two links for you to read. The first describes the correct way to use oxygen. Most abort in under 10 minutes, I average 6-8 minutes. Has all but eliminated my use of imitrex injections. 33 year episodic sufferer here. The hospital will try to give you nasal canulas, re breather masks, all at a low flow rate. All guarantee failure and pain. Cry

The second describes various "non mainstream" methods to stop CH. They sound a little unusual, their success is impossible to argue with.

Back to mainstream meds, when you say you've tried everything, we've learned HOW you use the meds makes a huge difference in the level of their effectivemess. Are you working with a headache specialist neurologists? GP's know very little about CH, garden variety neuros aren't much better, we see the best chance of success using a headache specialist neurologist.

Verapamil is a very effective prevent for many, but at dosing higher then it's labeled use for Blood Pressure. Some go as high as 960 mg a day. Lithium has been very effective as aprevent for me, at 1200 mg a day you'd never know I was on anything and it blocks 60-70% of my attacks. Some really tough cases have found relief by combining the verapamil and the lithium, sometimes called the "chronic cocktail."

If you're getting slammed at night by the "wake up" attacks, look at an OTC sleep aid, melatonin. Start with 9 mg about 30 minutes before bedtime. Helps avoid the nite time terrors for many. May have to experiment with dosing, some go as high as 15 mg a nite, some blend the normal release with the extended release pills to get them thru the night.

Check out energy drinks. Rock Star, Monster, any containing caffiene and taurine. Chugged at the first sign of an attack many can abort or really reduce an attack. I use it with my oxygen, seems to speed the abort time and delay the comebacker attacks.

Push, really push for oxygen. It's cheap, fast, effective, no side effects, has totally changed my outlook towards the beast. Welcome home.

Joe
Back to top
  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
Linda_Howell
CH.com Moderator
CH.com Alumnus
*****
Offline


Do not feed the Moderators


Posts: 11927
Santa Maria, Ca.
Gender: female
Re: I NEED HELP
Reply #2 - Feb 24th, 2011 at 6:26pm
 
Hi Bo and welcome.

What Guiseppi has suggested,  is a standard around here.
Make sure you have a happy Birthday tomorrow and ask...no DEMAND he prescribe oxygen for you.  High flow regulator and a NON-rebreather mask.  Print out parts of Guiseppis link to take in with you when you go.  Like a LOT of us here, If I can get to the 092 at the first twinge, I can abort a headache in less than 10 mins.    You owe this to yourself.

Please let us know how your appointment goes tomorrow.
Linda
Back to top
  

Hurt people.....hurt people.   Think about it.
WWW calientev8 N/A N/A  
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: I NEED HELP
Reply #3 - Feb 24th, 2011 at 6:28pm
 
Quote:
I have tried just about everything...

Care to elaborate? Which meds? What dosages?

Quote:
...(except the oxygen)

There's your first problem.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Linda_Howell
CH.com Moderator
CH.com Alumnus
*****
Offline


Do not feed the Moderators


Posts: 11927
Santa Maria, Ca.
Gender: female
Re: I NEED HELP
Reply #4 - Feb 24th, 2011 at 7:40pm
 
Quote:
If I can get to the 092


LOL...talk about a typo.  092 is nothing like 02.   Roll Eyes

Brew is correct.  02 should be your first abortive to ask your Physician about. When you get hit...suck on 02 and see how wonderful it works you will be so very sorry you didn't find it sooner.
Back to top
  

Hurt people.....hurt people.   Think about it.
WWW calientev8 N/A N/A  
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!