Click this link to read a post I like on the clusterheadaches.com message board...

May 14^th, 2025 at 3:42pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Other Weird Side Effects of CH's???

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

Other Weird Side Effects of CH's??? (Read 4660 times)

springthyme

CH.com Newbie

Offline

I Love CH.com!

Posts: 15

Other Weird Side Effects of CH's???
Feb 26^th, 2011 at 2:23pm

I would like to know if any of you also have these symptoms or side effects of CH's as I do.

I have acquired a deep crease between my eyes from squinting during an attack. It has gotten worse over the last 2 years. Is this common?

The day after a CH or migraine attack, there is a noticeably change in my personality. I could cry or get angry in a heartbeat. I also feel more silly and do things that are out of character for me. Am I the only one?

Thanks for your replies!

SpringThyme

IP Logged

Click Here to visit the CH.com Facebook page!

Lenny

CH.com Alumnus

Offline

I love YaBB 1G - SP1!

Posts: 642
Los Angeles,CA
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #1 - Feb 26^th, 2011 at 3:25pm

I do beleive that is what they call getting older Grin

...On the serious side,for myself (i look much older than my age "in the face"no one else in my family seems to have this problem (i am the only one with this wonderful disorder ( AND I THANK THE BIG GUY ABOVE FOR THAT) as an example,my pops who will be 92 this july (has no wrinkles on his face) if you were to look just at his face and mine without looking at the rest of the body (you would think that i was the 91 year old Cry

......Most likely all these years from being in the pain that we are alway's in...No big deal...As they say "it just adds character"... I too can go from being in a good mood to the tazmainian devil in a heart beat (just thought i was getting a little off balanced as i mature Cheesy

) i wonder if others are having this aswell

yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead

IP Logged

dereksgirl CH.com Junior Offline I Love CH.com! Posts: 31 WA Gender:	Re: Other Weird Side Effects of CH's??? Reply #2 - Feb 27^th, 2011 at 4:56pm I don't have CH (Husband does) and I get two creases, they they are more prominent when I am angry (I have 6 kids, it happens occasionally ) Then the kids say, "Mom, your elevens are showing!"
Back to top	Words can not express the gratitude I have for all of you who have, in the midst of such great pain, reached out and helped so many... IP Logged

Glassman CH.com Veteran Offline I Love CH.com! Posts: 203 Ohio Gender:	Re: Other Weird Side Effects of CH's??? Reply #3 - Feb 27^th, 2011 at 7:21pm I wish I could be more silly! I become sullen. Though this cycle I've become more hopeful because of all the help I've gotten from this message board and everyone on it! However, during this cycle, I did notice that I'm making more mistakes than usual while typing.
Back to top	Maine Coon Cat Crazy IP Logged

IronCookaroo CH.com Newbie Offline I Love CH.com! Posts: 15 Shropshire, England Gender:	Re: Other Weird Side Effects of CH's??? Reply #4 - Feb 27^th, 2011 at 8:41pm Hi Glassman I get the whole angry side of it. Scarily angry. How long have you had to put up with that specific feeling? I'm just a pup compared to other people here, i'd really appreciate hearing how you tame 'the beast', especially when you feel the way you explained. Thanks in advance IronCookaroo
Back to top	IP Logged

Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Other Weird Side Effects of CH's??? Reply #5 - Feb 27^th, 2011 at 10:03pm I've had that crease between the eyes for over 30 yrs, and I blame CH for it. Mood swings are not unusual at all for clusterheads, although I usually get them as a precursor to an attack rather than after. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Other Weird Side Effects of CH's??? Reply #6 - Feb 28^th, 2011 at 12:03am Glassman wrote on Feb 27^th, 2011 at 7:21pm: However, during this cycle, I did notice that I'm making more mistakes than usual while typing. It sounds like you've got a faulty keyboard, just like mine. It's a poor speller too (nothing to do with the user of course).
Back to top	IP Logged

wimsey1

CH.com Alumnus

Offline

I Love CH.com!

Posts: 2457
MA
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #7 - Feb 28^th, 2011 at 8:00am

Of course you have mood swings...pain will do that. So will the anticipation of pain. And I am always amazed after a big hit how my eye, previously so swollen and runny, looks quite normal after an attack. It just doesn't seem fair.

In some circles, among those who study facial response to emotional reaction, those vertical lines are called "try hard" lines. Pretty common among even those who do not have CHs. Such "drivers" are a tell if you know what to look for. Blessings. lance

IP Logged

springthyme

CH.com Newbie

Offline

I Love CH.com!

Posts: 15

Re: Other Weird Side Effects of CH's???
Reply #8 - Feb 28^th, 2011 at 9:40am

Whimsy, that is so interesting to know about "try hard" lines! Never heard of that term, but makes sense to me.

I guess I associated my vertical line with my headache becuase during one, my forehead above my right eye bunches up so painfully starting at this "try hard" line. It is stuck there for about an hour until it subsides...I guess my eye is "trying hard" not to explode as it feel it might! Shocked

SpringThyme

IP Logged

Click Here to visit the CH.com Facebook page!

37-41withrestrictions CH.com Veteran Offline NOT SO PF AT THE MOMENT Posts: 124 Chester UK Gender:	Re: Other Weird Side Effects of CH's??? Reply #9 - Feb 28^th, 2011 at 9:51am I have had to have dental treatment because I pulled and pushed a tooth so much due to the pain that it broke The day after an attack I am vague and forgetful and find it impossible to concentrate, suppose I can put some of that down to disturbed sleep. My boss now asks if Im having a Dippy Day!!!
Back to top	If you see something you want.. reach out and grab it with both hands.....just watch out you dont get a smack in the chops for grabbing the wrong thing!!! IP Logged

Glassman CH.com Veteran Offline I Love CH.com! Posts: 203 Ohio Gender:	Re: Other Weird Side Effects of CH's??? Reply #10 - Feb 28^th, 2011 at 11:19pm Hey IronCookaroo, good to meet you! I'm going to IM you about my "saga."
Back to top	Maine Coon Cat Crazy IP Logged

Glassman CH.com Veteran Offline I Love CH.com! Posts: 203 Ohio Gender:	Re: Other Weird Side Effects of CH's??? Reply #11 - Feb 28^th, 2011 at 11:21pm Mike NZ, That's right...it's a faulty keyboard!!
Back to top	Maine Coon Cat Crazy IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #12 - Mar 1^st, 2011 at 5:48am

SpringThyme,

According to the experts in the pathophysiology of the cluster headache there are a lot of fluctuations in the levels of neruotransmitters, hormones, enzymes and chemical messengers in a cocktail of neurochemicals during and after a cluster headache. These include: endorphins, dopamine, serotonin, epinephrine (adrenalin), norepinephrine (noradrenalin), eicosanoids, cytokines, and the list goes on.

The following graphic from the Neurology department at NIH might help explain part of the mood swings associated with cluster headaches.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I've worked with several CH'ers over Skype and observed some go into a catatonic trance moments before an attack then giggle uncontrollably after an abort with oxygen therapy.

My wife can spot a CH coming long before I do and starts telling me to get on the oxygen... She also claims I'm more sociable and relaxed after an abort with oxygen therapy. In the early years before I started oxygen therapy, I'd usually end up like a soup sandwich after an attack then drift off to sleep.

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

springthyme CH.com Newbie Offline I Love CH.com! Posts: 15	Re: Other Weird Side Effects of CH's??? Reply #13 - Mar 1^st, 2011 at 10:02am Batch~ That was a great example of what seems to be going on in the old brain! I get that for sure. Now I need a T-Shirt that says it all: "Warning...Cluster Headache Yesterday=Personality Disorder Today"
Back to top	IP Logged

IronCookaroo

CH.com Newbie

Offline

I Love CH.com!

Posts: 15
Shropshire, England
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #14 - Mar 1^st, 2011 at 8:37pm

Batch, you said something really interesting! During the later stages of my hospital visit when i was on o2, i went all, well, childish. I'm a naturally playful peson anyway but apparently i was becoming increasingly full of life. I'm not sure if this was a reaction to the oxygen or whether i was glad to be rid of the pain. I went home scared of the next one but, for the few hours i was in the emergency room, i felt really, really good. Has that ever been the same for you, or have i completely missed your point?

IronCookaroo

IP Logged

Glassman CH.com Veteran Offline I Love CH.com! Posts: 203 Ohio Gender:	Re: Other Weird Side Effects of CH's??? Reply #15 - Mar 1^st, 2011 at 9:19pm The last time I had to do O2 was the first time I was able to do 15 LPM (jerk doctor thought that was too dangerous and kept me at 8 most of my cycle but at least that did work). Anyway, after my 15 LPM I was fairly much EUPHORIC!! I put it down to the higher O2 intake but maybe I was wrong....
Back to top	Maine Coon Cat Crazy IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #16 - Mar 2^nd, 2011 at 6:55am

Hey Glassman,

I can tell you for a fact that 30 to 40 liters/minute and up to 60 liters/minute is even better and VERY SAFE! As an old US Navy fighter pilot with over 3,000 hours flying Navy Fighters breathing 100% oxygen from takeoff to landing on every flight, there is no problem breathing 100% oxygen at these flow rates!

I've been in Dog Fights and missions over Hanoi during Operation Linebacker I and II where I sucked down 100% oxygen up to 40 and 50 liters/minute until I had to "BUG OUT" back to the ship to get more ammo.... I'm still here 38 years later at age 67... and doing just fine thank you..

Moreover, Navy and Marine Corps pilots flying tactical fixed-wing aircraft have been doing this since 1942 and the Navy still makes today's pilots do the same thing while flying $30M to $40M dollar jets on every flight... day and night off aircraft carriers! If that doesn't tell you anything... like it's VERY SAFE... think again. Even the astronauts on the Space Shuttle as I make this post, breathe 100% oxygen when doing EVA's in their space suits and if you listen closely, you can tell they're sucking down that oxygen like big dogs!!!

'Think they'd do that if it wasn't very safe?

Crank your oxygen regulator up to the max and if that's less than 25 liters/minute... You gotta get a bigger regulator capable of at least 25 liters/minute or better yet, 0 to 60 liters/minute... and that's a fact Jack!

Flotec Inc. at the following link has the only 0-60 liter/minute regulators here in the US today... They're great and I've used mine for over 5 years!

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Take care,

V/R, Batch

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Other Weird Side Effects of CH's??? Reply #17 - Mar 2^nd, 2011 at 8:59am I get that euphoric high too after an 02 abort...interesting...I also assumed it was just the joy of knowing beasty wasn't digging in. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Glassman

CH.com Veteran

Offline

I Love CH.com!

Posts: 203
Ohio
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #18 - Mar 2^nd, 2011 at 9:10am

Hey Batch,
You've lead a very interesting life!
It's on my list to get a 0-60 regulator this week. I got your information on that and want to thank you again for all your help.

As an aside, I've always loved the space program and one of my favorite youtube videos is the Saturn V launch viewed by high speed cameras. Here's the link:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Maine Coon Cat Crazy

IP Logged

ch4years

CH.com Newbie

Offline

I Love CH.com!

Posts: 5
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #19 - Mar 4^th, 2011 at 12:14am

I'm glad someone has brought this up. About 2 weeks prior to episodes I become very irritable. The smallest thing can set me off, and I know something isn't right. I develop a lot of anxiety that isn't normal for me but I am aware of it, just can't control it like I would like. Now when this happens I know what is coming.

IP Logged

primetime

CH.com Junior

Offline

Still standing....barely

Posts: 50
Baltimore, MD
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #20 - Mar 4^th, 2011 at 2:21pm

I ehco Batch's statement about the Mrs. seeing a cluster before I even know.

In my ongoing battle with the "Cycle That Wouldn't Die", my fall cycle that actual began in August is STILL kickin. Just yesterday, I walk into the living room and my wife says "Uh oh. You have a headache, don't you?"

Of course, I said, "No", because I didn't or at least I didn't think I did. Then I looked in the mirror. My eye was halfway shut, blood red and watery. Within 5 minutes...bam!!

My biggest side effect is the pain in my neck and jaw line on my affected side. In the aftermath of cluster bomb, presumably from increased tension (and that I have a tendancy to grind my teeth), I have a great deal of discomfort on my right side.

Now, when the cycle passes, I feel as if the right side of my face and head is liberated. I can't really describe the feeling except it's like an immense pressure just lifting from my head. Shortly thereafter, I have an inexplicable craving for red meat!!

"Our greatest glory is not in never failing, but in rising up every time we fail." -Ralph Waldo Emerson

IP Logged

Glassman

CH.com Veteran

Offline

I Love CH.com!

Posts: 203
Ohio
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #21 - Mar 4^th, 2011 at 9:57pm

Hey!!

I too have had an inexplicable craving for red meat this cycle... just can't get enough. Even went so far as to really splurge and in the last week of this current cycle twice I made for dinner big red juicy medium rare filet mignon drizzled with port wine reduction sauce (I'm an enthusiastic home chef). Also lamb, been craving that more than usual as well - lamb chops, braised lamb shoulder. Also had a craving for Beef Wellington (my mom used to make that) but it's more work than I cared to expend.

Anybody else have odd food cravings?

Maine Coon Cat Crazy

IP Logged

GrandPotentate

CH.com Old Timer

Offline

mmmmmmmmmm

Posts: 254
Michigan City, IN USA
Gender: male

Re: Other Weird Side Effects of CH's???
Reply #22 - Mar 4^th, 2011 at 11:23pm

I'm not sure what I would call my mood swings. Often, prior to a hit, I feel really really good. If I'm out, I am having a great time. Then there is an urge to be alone - this is about when my wife recognizes something is amiss. And then my head explodes.

If I'm home, I don't recognize this as much, since I'm not around others.

I had one weird cycle where I went through most of the same symptoms, but with very little pain. Just six weeks or so of shadows.

Jon

Jon

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!