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Freaking Frustrating (Read 4940 times)
SimplyBecky
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Re: Freaking Frustrating
Reply #25 - Mar 18th, 2011 at 7:58pm
 
Melby29 wrote on Mar 18th, 2011 at 7:07pm:
I'm so grateful to the guy who stole the tank of O2 for me from the hospital, after my neuro refused to let me try it, that I am now living with him  Cheesy Cheesy Cheesy Cheesy Cheesy Cheesy Cheesy


Okay, did your neuro tell you WHY he wouldn't let you use O2?  This is ridiculous.  I don't understand why they don't want to prescribe it.  Wtf is the big deal here?  My neuro's excuse that it's dangerous sounds weak.  I feel like he's not telling me something.  It's like I'm asking him to give me an Rx for heroin or something.

Thanks, everybody else, for the advice.
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Re: Freaking Frustrating
Reply #26 - Mar 18th, 2011 at 8:45pm
 
Seems like a pretty cut and dried solution to me: "If you won't prescribe it, I'll find somebody who will." Then be prepared to follow through.
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Skyhawk5
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Re: Freaking Frustrating
Reply #27 - Mar 19th, 2011 at 10:56pm
 
It all comes down to, the Doctor is unfamiliar with the pocedure of how to Rx the O2 and/or doesn't know where to get the info about O2 and CH. Makes it sad for us that so many Doctors don't know and don't want to know.

Don
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Though I walk through the valley of the shadow of the Beast , I  have O2 so I fear him not.
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Melby29
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Re: Freaking Frustrating
Reply #28 - Mar 20th, 2011 at 2:04am
 
Becky, I kept asking him over and over again why he wouldn't let me try it. I was trying to get him to give me something to take to the hospital - at which he has full privileges, and has residents and registrars in training with him, and is right across the road from his private rooms - to say that if I came there with a headache, to let me try O2 therapy. He just kept saying "I don't believe you have cluster headaches". That was it! No concern about any dangers or ill effects. When I asked him why he didn't think I had them, his ONLY reasoning was that 90% of CH sufferers are men and most are over 50. Even as I sat there, I knew those stats were wrong.

My GP, and later my headache specialist, were both clearly disgusted that he would use statistics to rule out a possible diagnosis.

I think in the end it was his ego.

I'm actually going back to see him on Thursday - I have to, because I was actually in his care for Maybe-Multiple Sclerosis and I'm getting the results of a spinal tap I had a few weeks ago. I'm not sure if the Headache Specialist was going to write to him about the headaches, but I'd love to take an M size cylinder of O2 to shove up his ass.

Whether it's changing neuros (a must in any case, I think) or going down the welding supply route, you need to do whatever it takes to get some O2!!
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Glassman
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Re: Freaking Frustrating
Reply #29 - Mar 20th, 2011 at 9:14am
 
You DEFINITELY need to find a new neuro. and give that arrogant SOB the heave ho! Don't even bother to tell him he's fired, just plain don't ever go back to him once you get the results of your spinal tap.  Really, if he's that way about your headaches then I wonder how good he could be for your "maybe-Multiple Sclerosis."

Then run, do not walk, as fast as you can to your welding supply shop.

On the sly, I quizzed the Praxair rep. my wife gets her O2 from (she's a lamp worker), he said it's the same O2 used to fill tanks in hospitals. He was certain there were no contaminants in the welding tanks as they pull a vacuum on the tanks every time they fill them.
-Gary
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