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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Here we go again....

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Here we go again.... (Read 1349 times)

Melby29

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Here we go again....
Mar 13^th, 2011 at 10:27pm

The Beast actually is a really, truly real living thing, isn’t it?

As in, it has a personality, it lives, it breathes… it looks into your mind, and reads your thoughts, it plots against you and torments you… it has an evil laugh, and scary eyes…… like Thriller…..

Here I am thinking I’m out of my cycle, feeling all free and wonderful, but now not so free and not so wonderful because now I think I’m getting shadows.

Today I have had 3 short headaches – nothing around my eye, but just like the pains that I typically get at the back of my head. Between 10 and 25 min.

Please not again…………………………………………

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Jair Crawford CH.com Junior Offline I Love CH.com! Posts: 43 Gender:	Re: Here we go again.... Reply #1 - Mar 13^th, 2011 at 10:47pm I don't have any experience with CH, but I know that many here are trying a high dose Vitamin D3 regimen and it's showing some encouraging results. It can't hurt to give it a try. Might be able to nip this one in the bud.
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Skyhawk5

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Ypsilanti, Mi. USA
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Re: Here we go again....
Reply #2 - Mar 13^th, 2011 at 11:14pm

Melby, I've had the same thoughts as you, and back in 2001, I thought I saw the face of the beast, and it was ugly. It took many things from me, maybe I let it.

From the good people on this site I learned to be an expert in this condition and short of getting my Flying future back, I've learned to fight this ugly faced monster, and live the best I can.

Becoming a self educated "expert" about CH is the best defense and Doctor educating approach we can have. If you want your life back, at least take back what you can...

Hang in there Sister, Don

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Here we go again.... Reply #3 - Mar 13^th, 2011 at 11:40pm What Don said...least you'll never be alone again! Joe
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Glassman CH.com Veteran Offline I Love CH.com! Posts: 203 Ohio Gender:	Re: Here we go again.... Reply #4 - Mar 14^th, 2011 at 1:09am Hey Melby, Do try the D3/fish oil, it may help and if it does please let us know the results. We're all very interested in knowing more about that regimen. Keep the board close to you at this time, I got so much encouragement and help and felt connected to good people who care. That alone made such a hugh difference! -Gary
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bejeeber

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Re: Here we go again....
Reply #5 - Mar 15^th, 2011 at 12:22am

Around this time last year I had finished an episode and was looking forward to a nice long remission when I started getting shadows coming on strong enough that an energy drink wouldn't touch them.

Like you Melby I was very concerned that it was "here we go again" time, and I was beyond fed up of course (who isn't!), so I got serious about busting and that sent mister McBeastabilly packin'.

He tried to pop in again every few months. Bust. Gone. Now I'm going on 5 beastless months and feeling very lucky and grateful.

The vitamin D3 megadose thing is getting my attention too - and I'm getting the impression from some of the latest posts to that topic with people reporting their successes, that the fish oil may not be such a vital component. If I were you I'd at least check out the vitamin D3 thing pronto.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Melby29 CH.com Junior Offline I Love CH.com! Posts: 91	Re: Here we go again.... Reply #6 - Mar 15^th, 2011 at 12:37am Will do!!! Thank you!!!!!
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