I must be amazing on a daily basis Barry because that kind of comment is simply background noise around here. 

Should produce Cluster Fudge at a commercial level in response to attempted provocation. (Sign here for free trial package. Water chestnuts not optional if you're Batty. )

We have been to the neurologist and she has suggested changing to verapamil. Oxygen tanks on their way tomorrow. Step. Step. Step.

Theotherarf wrote on Mar 23^rd, 2011 at 11:48pm:


More progress.

With the verapamil Stephen might need to go to 360-480mg or even higher. Normally he'll be started on a lower dose and have it increased (working with your doctor) until it becomes effective. Since a dose change will take about a week or so to take effect, this might take a few weeks.

Stephen will love oxygen when he gets it. The relief from knowing that you can abort a CH is just amazing. The first time I did it I wanted another CH just so I could do it again as it left me crying with tears of joy (not the normal reaction to a CH).

Read up the oxygen info on the left for lots of info on how to use this effectively.

holy hell, I feel for you.
I'm in Hamilton now, have a fabulous doctor here, but lived in Auckland and went to the Mt Eden medical clinic - I've been doing the medical dance for years with various doctors and neurologists - it sure as hell has made me more assertive with the medical profession.
I rely completely on the imigran injection - I'm only 52kg, so one full vial knocks me for 6. I pull the vial out of the holder, pull the sticker off, and jab it in my thigh and push the plunger down half way with a cotton bud.
Sounds gruesome, I know, but it sure as hell beats a cluster headache.
It may be cold comfort, but there's a way through - O2 helps me, too, but it's not swift enough for me - kids, job, all that...
Good luck - email if you're stuck for answers. I'm about 4 weeks into a bout from hades right now. Hopefully they'll tail out soon.

Gillian

gsefrancis@gmail.com

Hello all. Sorry to suck up all of your advice then disappear like an ungrateful brat.

I have returned to work (two kids, three cars and the usual debts) and had to change my hours to avoid cluster time. Work has been very understanding, but the hours are a little strange.

Things are going well and no full force attacks for a week now.

I do, however, have almost permanent low level headaches and lots of sudden stabs. I also experience a muted version of the old terror attacks. But, considering what else I could be having I'm not complaining.

I thank you all for your support and excellent information which has helped me return to some normality *twitch, tic*

Best regards
Stephen