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Hi I am new would like to say hi (Read 1156 times)
harris
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Hi I am new would like to say hi
Mar 22nd, 2011 at 7:49pm
 
Hello i am new to this site. I have had this monster since 2002 minor for about a week in late fall and didnt know what I had until it went accute last November. I suffered for almost 2 months until I was diagnosed only because that was the wait time for an appointment at Duke Neuroligical. I think I am out of my cluster period wright now. I havent had one since 12/6/2011 at 6 am. And yes I remember my last one. I am now on verpamil and sumatripton injections. I will go ahead and say, I am scared of nothing but my own head. I expect I will be ok untill next fall. Has anyone had there cluster dates change from say late fall to early spring? Or does it just random start times.
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Glassman
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Re: Hi I am new would like to say hi
Reply #1 - Mar 22nd, 2011 at 11:57pm
 
Hey Harris!
Welcome! 
From my own experience my cycle changes randomly though mostly I experience it during the long, dark months of Winter (once I had them in June but I was spending a lot of time indoors in a dark setting).

I think other folks will chime in and tell you the same thing:  That the beast can change unexpectedly.

Take a look at the information at the left side bar under "Oxygen Info."  O2 is a safe and very effective abortive that you might try in addition to (or even in place of ) the Sumatriptian.  I used it this past cycle and was able to minimize my usage of Sumitriptan. I was pleasantly surprised that I could knock out the beast within 10 minutes (if I got to the O2 ASAP).

I'd also recommend looking at the post titled "123 days pain free and I think I know why." A number of us (myself included) have benefited from the vitamin D3, fish oil, calcium, zinc, magnesium supplement regimen listed there.


Here's hoping you have a long remission!  Smiley
-Gary
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wimsey1
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Re: Hi I am new would like to say hi
Reply #2 - Mar 23rd, 2011 at 7:30am
 
Gary said it well. Just as we get used to one pattern, the beast changes direction and heads off to other times, other places...I was a spring/summer CH, and then it became Fall/Winter, and then it became the highlight of all 4 seasons. The best thing is to be always prepared with the best abortives, and if the cycle is long enough, effective preventatives. God bless. lance
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bejeeber
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Re: Hi I am new would like to say hi
Reply #3 - Mar 24th, 2011 at 10:22pm
 
Hi Harris!

I basically just agree with what the other 2 guys said.  Cool

You're a smart feller for doing some research here between episodes, when everything isn't a big emergency crisis.

I would suggest having an arsenal including O2 all planned for and ready to implement (and a plan B!) in case the beast comes a knockin' again.
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« Last Edit: Mar 25th, 2011 at 1:23am by bejeeber »  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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