Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Texas Newbie! Need help and advise. (Read 1140 times)
ScooterGoat34
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Texas Newbie! Need help and advise.
Apr 13th, 2011 at 10:44am
 
Good morning all. Im a 34 yr old male from Rosenberg, Texas. I've been a Cluster Headache sufferer for going on ten yrs. now with no help in site. In my 10 yrs. I have seen countless Neurologist and Physicians and have been to emergency rooms in the middle of the night more times than I can remember. I am currently seeing a Neurologist in Houston (Edmundson) Who has me on Imapramine 150mg and Topmax 100 mg (twice a day). I also take Butalbital for the pain witch is not working at all. I also take a Triptan that starts with the letter "A" but I can't think of the name at the moment. I have three daughters and a beautiful wife who has dealt with my sickness right along with me. My poor kids use to mimic the noises I would make and pace with me in the middle of the night when I would have an "episode". Your site is of great help to some one like me. I'm afraid I have given up hope though. I cant see the end of the tunnel, and I am having more and more frequent cluster attacks everyday. they have even gotten more intense. Im afraid I will loose my job soon due to this damn illness or what ever the hell Im suppose to call it. I'm rambling......I guess I just need help. Someone or somewhere I can go for help or to a doctor in my area that can really treat me. Not just throw a blanket of drugs over me.
Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: Texas Newbie! Need help and advise.
Reply #1 - Apr 13th, 2011 at 11:25am
 
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Here ya go.

      Potter
Back to top
  
 
IP Logged
 
bejeeber
CH.com Hall of Famer
*****
Offline




Posts: 1359
Gnashville
Gender: male
Re: Texas Newbie! Need help and advise.
Reply #2 - Apr 13th, 2011 at 12:50pm
 
There's help to be had - don't give up hope Scooter!

That O2 link that Potter supplied details the newer, more effective, high liter flow/non-rebreather way to administer O2 as an abortive, and there are legions of enthusiasts here who swear by it. It works.

There are certainly more preventative options too. More and more we're seeing people who feel they have exhausted the pharmaceutical options and are at the end of their rope turn to clusterbusters, and end up wishing they'd gone there a lot sooner! Offhand I can think of a couple CH'ers in your fine state of Texas who have turned things around this way.

Here's a Newsweek article on clusterbusting: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

And a video talk on the subject by one of our fellow CH'ers: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

And the clusterbusters message board where you'll find helpful Texans to converse with  Smiley:  Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Hang in there with us Scooter - you'll turn things around.  Smiley
Back to top
  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
IP Logged
 
ScooterGoat34
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: Texas Newbie! Need help and advise.
Reply #3 - Apr 13th, 2011 at 1:35pm
 
Thanks for the help in the right direction guys. It seems like this site really pushes O2 route more than anything else. Im interested myself having never tried that before. Would this be something that I would approach my Neurologist about or GP?
Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: Texas Newbie! Need help and advise.
Reply #4 - Apr 13th, 2011 at 2:05pm
 
ScooterGoat34 wrote on Apr 13th, 2011 at 1:35pm:
Thanks for the help in the right direction guys. It seems like this site really pushes O2 route more than anything else. Im interested myself having never tried that before. Would this be something that I would approach my Neurologist about or GP?

Have you access to someones oxy/acetylene ?  If ya do get a mask and give the o2 side a whirl.

           Potter
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Texas Newbie! Need help and advise.
Reply #5 - Apr 13th, 2011 at 3:39pm
 
Print out some relevant parts of the O2 user's guide and take them to your doc. Discuss with him or her and see if you can get a prescription. If that doesn't work, get your own from a welding supply house.

You need:

- High flow (< 15 liters per minute)

- A non-rebreather mask (like the O2ptimask)
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
ScooterGoat34
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: Texas Newbie! Need help and advise.
Reply #6 - Apr 13th, 2011 at 6:30pm
 
I have an AOC Welding right down the street from me. Me being new to all of this, I just dont want to go in their and make a total fool of myself. So any help you could give that makes me look less like a clown when I go in there would be appreciated.
Back to top
  
 
IP Logged
 
bejeeber
CH.com Hall of Famer
*****
Offline




Posts: 1359
Gnashville
Gender: male
Re: Texas Newbie! Need help and advise.
Reply #7 - Apr 13th, 2011 at 8:03pm
 
I haven't tried the welding shop route myself yet, so hopefully folks who have will be along to advise, but in the meantime I know that you do NOT want to say you're using the O2 for medical.

If it was me and and they asked what's it for I'd say a friend needs it for welding, and he already has his acetylene.

M size tanks are good for home use and E tanks are the portable size for toting around in the car.

You'll probably have to order your mask and regulator online, so that would be a good very first thing to accomplish.
Back to top
  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
IP Logged
 
Glassman
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 203
Ohio
Gender: male
Re: Texas Newbie! Need help and advise.
Reply #8 - Apr 13th, 2011 at 9:54pm
 
ScooterGoat-
I second bejeeber - don't tell the welder supply guys what you are planning to use it for.  Glass lampworker/bead makers go thru the O2 like mad so you could tell them that as an alternate to the welding scenario, should you wish.
-Gary
Back to top
  

Maine Coon Cat Crazy
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!