Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
7 yrs later I now know what is wrong! (Read 1380 times)
nnasseri
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
7 yrs later I now know what is wrong!
Apr 13th, 2011 at 11:02am
 
I am 26 yrs old and started getting these debilitating (not even a strong enough word) headaches around my left eye when I was 21 yrs old. At 1st I thought it was glaucoma, as I I had a detached retina when I was 18, but it was not the same pain.

I would started getting these headaches around finals week and they went on for about a month (once a day around 6 pm for a couple hours) They then went away and started up again the following semester during finals week again so I went to the doctor and was told they were stress induced migranes - so I started popping Excedrine Migrane pills.

But then I started to get them when I was in Africa doing doing my research (nothing stressful going on - waking up and spending 9 hours a day with elephants, lots of exercise and eating the healthiest I have ever eaten). Plus they where happening at the same time of year (April-May). That was in 2007, well this has been my yearly routine and again, I am in Africa and for the past 2 weeks have been beaten down by these headaches, being woken up around 2 am. Last night was the worst pain, and wasl iterally thinking that a bullet or hammer to my left temple would be the best thing possible. I literally thought I was having an aneursym, so cranked up the generator to get on the internet and find the symptons of one and stumbled on this "Cluster headaches" and was like BINGO!!!

So with this said, I will be in Africa for another month and have no access to Oxygen or any of the other medications or even competent doctors and was wondering if there is anything I can do to ease the pain...besides punching a wall to try to feel greater pain somewhere else on my body besides my eye/temple area?

Thank you for this site and glad I actually know what is wrong with me now!
Back to top
  
 
IP Logged
 
George
CH.com Moderator
CH.com Alumnus
*****
Offline


Black-Billed Magpie


Posts: 8126
Boise, Idaho USA
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #1 - Apr 13th, 2011 at 11:32am
 
nnasseri wrote on Apr 13th, 2011 at 11:02am:


nothing stressful going on - waking up and spending 9 hours a day with elephants


....Now there's a sentence you don't see every day.   Wink

You're in a tough situation at the moment--without access to some of the little tricks we use to get through the day when we don't have anything else. 

If you have access to any energy drinks containing taurine, try slamming one down as quickly as possible during the onset of the headache.  For some, it works to abort the thing.  Intentionally hyperventilating can help, as can vigorous aerobic exercise.  (That being said, it doesn't work for me.)

If there happens to be welding oxygen around, you may not have a proper mask or regulator, but you can vent oxygen into a large garbage bag, and breathe from the bag.  Make sure to exhale outside the bag, to ensure that you're getting 100% oxygen.  That's important. 

As you've probably gathered, it's much more effective to try to disrupt the attack than to control the pain.  Pain relief, in general, doesn't work worth a damn.  Just something to keep in mind.

When you return to a more settled area, make an appointment with a doctor specializing in headache, okay?  You may actually have cluster headaches, but there could be something else going on, and you need to have some clear answers.

Hang in there.  I know it doesn't feel like it, but you can get through this.  Clusterheads survived for thousands of years just by gritting their teeth and fighting back.

Good luck, and let us know how you're getting on, okay?

Best,

George    
Back to top
  

"Whoever loveth me, loveth my hound."  (Thomas More, author of "Utopia", and Chancellor of England.  1477-1535)
WWW George jacox6820 7165032563  
IP Logged
 
George
CH.com Moderator
CH.com Alumnus
*****
Offline


Black-Billed Magpie


Posts: 8126
Boise, Idaho USA
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #2 - Apr 13th, 2011 at 12:07pm
 
See also this link:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

...and read it carefully.  You may be able to cobble something together from available materials, assuming you have welder's oxygen available.

Best,

George
Back to top
  

"Whoever loveth me, loveth my hound."  (Thomas More, author of "Utopia", and Chancellor of England.  1477-1535)
WWW George jacox6820 7165032563  
IP Logged
 
wimsey1
CH.com Alumnus
***
Offline


I Love CH.com!


Posts: 2457
MA
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #3 - Apr 14th, 2011 at 8:25am
 
Wow...you're in a fix. I bet that made you feel better, huh? So I have from time to time been caught without any of my favorite abortives, and there are a few tricks that might help, and I stress, might. First, you can try and hyperventilate without O2 just by breathing rapidly and deeply for as long as you can. This has been moderately effective for me in the past. Also, if you can stand it, I have found that light pressure along the carotid artery below my jaw coupled with rapid, heavy breathing, has also helped mitigate the pain. Some have found (though not me) that intense cardiovascular activity (running, jumping jacks, I don't know) has assisted in aborting an attack. Maybe others know some tricks. I hope you do find a way to cut these short. Good luck and God bless. lance
Back to top
  
 
IP Logged
 
Glassman
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 203
Ohio
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #4 - Apr 14th, 2011 at 10:26am
 
Nnasseri,
For what this is worth.... the Cluster Busters site tells of the success of many who suffer by using hallucinogenic agents (psilocybin, Hawaiian Baby Woodrose seeds, Morning Glory seeds and RC seeds). Perhaps there's an African equivalent?
I've never tried any of the above but have come close. I found Oxygen and mainstream drugs easier for me to get.
-Gary

Back to top
  

Maine Coon Cat Crazy
 
IP Logged
 
ClosetCHer
CH.com Junior
**
Offline




Posts: 52
United States
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #5 - Apr 14th, 2011 at 12:03pm
 
Nnasseri,
Sad to hear that you're one of us but glad to hear you've been diagnosed properly. I've been overseas a few times to places where I didn't have access to O2, doctors, or other types of conventional medication (although I refuse to take them anyways). My advice to you would be to read some of the alternative treatments on here, most importantly being the Vitamin D3 and Omega 3 Fish Oil regiment by Batch (123 PF days......). I'm sure that you could fit a 30 day supply of D3 and Omega 3 in your bags without a problem. Others have had success with Kudzu, other supplements, and large amounts of caffeine. Before you leave for Africa again (jealous, I want to work with exotic animals!) figure out if one of this approaches works for you and get a supply.
Back to top
  
 
IP Logged
 
Bob Johnson
CH.com Alumnus
***
Offline


"Only the educated are
free." -Epictetus


Posts: 5965
Kennett Square, PA (USA)
Gender: male
Re: 7 yrs later I now know what is wrong!
Reply #6 - Apr 14th, 2011 at 12:37pm
 
Both location and time remaining on site are working against you.....(sigh). But, if you can get someone to bring stuff to you a non-Rx (in the U.S.) to try is: Melatonin, 10mg/night. Has modest record for breaking a cycle. (Used widely as a sleep aid.)

IF available without Rx and your courier can find it, this works very rapidly and you will know with 1-2 uses whether it works for you. (The potential problem is local sourcing and such a significiant % of Rx meds in your world are counterfeit.)
---
Headache 2001 Sep;41(8):813-6 

Olanzapine as an Abortive Agent for Cluster Headache.

Rozen TD.

Department of Neurology, Jefferson Headache Center/Thomas Jefferson University Hospital, Philadelphia, Pa.

OBJECTIVE: To evaluate olanzapine as a cluster headache abortive agent in an open-label trial. BACKGROUND: Cluster headache is the most painful headache syndrome known. There are very few recognized abortive therapies for cluster headache and fewer for patients who have contraindications to vasoconstrictive drugs. METHODS: Olanzapine was given as an abortive agent to five patients with cluster headache in an open-label trial. THE INITIAL OLANZAPINE DOSE WAS 5 MG, AND THE DOSE WAS INCREASED TO 10 MG IF THERE WAS NO PAIN RELIEF. THE DOSAGE WAS DECREASED TO 2.5 MG IF THE 5-MG DOSE WAS EFFECTIVE BUT CAUSED ADVERSE EFFECTS. To be included in the study, each patient had to treat at least two attacks with either an effective dose or the highest tolerated dose. RESULTS: Five patients completed the investigation (four men, one woman; four with chronic cluster, one with episodic cluster). Olanzapine reduced cluster pain by at least 80% in four of five patients, and TWO PATIENTS BECAME HEADACHE-FREE AFTER TAKING THE DRUG. Olanzapine typically alleviated pain within 20 minutes after oral dosing and treatment response was consistent across multiple treated attacks. The only adverse event was sleepiness. CONCLUSIONS: Olanzapine appears to be a good abortive agent for cluster headache. IT ALLEVIATES PAIN QUICKLY AND HAS A CONSISTENT RESPONSE ACROSS MULTIPLE TREATED ATTACKS. IT APPEARS TO WORK IN BOTH EPISODIC AND CHRONIC CLUSTER HEADACHE.

PMID 11576207 PubMed

--------------------------------------------------------------------------------


Olanzapine has a brand name of "Zyprexa" and is a antipsychotic. Don't be put off by this primary usage. Several of the drugs used to treat CH are cross over applications, that is, drugs approved by the FDA for one purpose which are found to be effective with unrelated conditions--BJ.
=====
Since this abstract was first posted Zyprexa has appeared in some lists of recommended meds for CH. [BJ]
=====
=====
The suggestion of exercise is worth a try (goal is to increase O2 intake) but, for some people, exercise, etc. which elevates body temp is a trigger for an attack. [If that, in fact occurs, keep a note because that can be prevented when you get back and have access to the needed med.]
Back to top
« Last Edit: Apr 14th, 2011 at 12:46pm by Bob Johnson »  

Bob Johnson
 
IP Logged
 
Joshl924
CH.com Junior
**
Offline


I Love CH.com!


Posts: 84
Re: 7 yrs later I now know what is wrong!
Reply #7 - Apr 14th, 2011 at 1:28pm
 
since you are there... maybe seek out some tribe with a medicine man/witch doctor   or multiple variations thereof and report back to us. some root or plant or combination could hold the key...

I really am not being sarcastic nor joking.

Back to top
  
 
IP Logged
 
nnasseri
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 3
Re: 7 yrs later I now know what is wrong!
Reply #8 - Apr 21st, 2011 at 3:44pm
 
Just wanted to say thank you for all of the suggestions. Unfortunately, I can not get hold of Oxygen, but on the onset of the headaches, I started to hyperventilate for about 30-45 seconds than chug about 1 L of water followed by more hyperventalating and they abort about 5 min later. The other night they were pretty bad so I proceeded to to wind sprints out side and jumping jacks and that helped a lot also.

Again thank you very much for all of the help/advice and will be looking into getting some O2 when I get back States side.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!