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Thank you ALL for getting the word out!!! (Read 4236 times)
Linda_Howell
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Re: Thank you ALL for getting the word out!!!
Reply #25 - May 13th, 2011 at 9:11pm
 
Quote:
m afraid to use O2 because very soon i will be in a place where i have no access to it.


Bird, having no idea whst your situation is with the army, I have to tell you this.  An e-tank on a portable cart takes up virtually no room.  It can fit in a 4-ft. locker.  Also there are even smaller tanks with even more portability.  You should get it anyway for home and save the nasel sprays for work if need be.   Go to the left of here under oxygen links in yellow and click on it.  Scroll down so you can see the tanks I'm talking about. 

Linda
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Hurt people.....hurt people.   Think about it.
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AubanBird
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Re: Thank you ALL for getting the word out!!!
Reply #26 - May 14th, 2011 at 11:24am
 
thank you for the recomendation Linda.  i certainly will be getting oxygen for home, but not until i come back from deployment.  i wont be able to use oxygen while deployed, since i will be living in typical infantry conditions(we carry our homes on our backs).  so far the fish oil/D3 are working pretty well, so hopefully i wont need much in the way of abortives.  im reluctant to give a timeline for my deployment, but i can say that it is very soon. 
-Bird
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AubanBird
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Re: Thank you ALL for getting the word out!!!
Reply #27 - May 14th, 2011 at 7:48pm
 
HA! PF all day so far... SWEET! already cleaned the living room, cleaned more dishes, topped off water on my big fish tank, spent some time holding the tarantulas, fed the dart frogs, weeded the fish tank, fed the little snake, talked the wifes ear off, fed the fish too much, fixed the green laser pointer, broke the green laser pointer, re-fixed the green laser pointer...  hehe, a PF Bird is a dangerous thing..  Smiley
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bejeeber
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Re: Thank you ALL for getting the word out!!!
Reply #28 - May 14th, 2011 at 8:38pm
 
I like the PF direction this is going in!  Smiley
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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AubanBird
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Re: Thank you ALL for getting the word out!!!
Reply #29 - May 15th, 2011 at 1:13am
 
PF and loving it.  normaly i have shadows that may last most of the day, if not all of it.  those were the first to go.  in other news, talked to my dad, got him to describe the headaches he has had for years.  he describes a sharp pain behind the eye that feels like someone is poking him in the eye.  now, i have seen my dad cut his hand open so bad at work that he walked around the shop grossing people out by pulling on the severed tendons in his hand and making his fingers move.  his kind of joke.  my dad, my brother and i have always been like that.  we dont always know when we are in pain... sometimes getting us into trouble(like my exhertional rhabdomyolisis incident...).  that said, when he told me that his headaches make it hard to work sometimes, i know they must really hurt.  makes me wonder if he suffers CH.  he is way too stubborn to go to the doctors(wonder where i got it) and i do remember him going on "walks" when i was little when he had these headaches.  anyway, i told him about this site and what is working for me.  after doing a lot of searches on vitamin D3 and headaches, im finding it works for all kinds, not just CH.  i guess if his head ever hurts bad enough he will start going to the doc... maybe...
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Re: Thank you ALL for getting the word out!!!
Reply #30 - May 15th, 2011 at 11:55am
 
hmmm... just had a thought about arterial ph affecting CH.  i rarely ever had really bad hits until i went down from exertional rhabdomyolisis.  for those who dont know what that is, it is what happens when you exercise too hard and damage too many muscles at once.  the contents of the muscles spill out into the blood stream, myoglobin(which crystalises in the blood stream and can damage the liver) and creatine kinase(which can also crystalise and damages the kidneys).  what got me thinking is that my blood ph was very low because of all the lactic acid i had built up.  they actualy IVed baking soda into my blood to balance it out.  im thinking that may be why my CH got so much worse from that day forward.  i was much more susceptable to rhabdomyolisis after i was injured the first time, and thinking about it, i normaly do get hit an hour or so after pt, when lactic acid is again built up.  im gonna go get some calcium citrate to have on hand...  i may be chasing red herrings here, but it does feel good to have SOMETHING to chase... Smiley
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RichardN
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Re: Thank you ALL for getting the word out!!!
Reply #31 - May 15th, 2011 at 6:31pm
 
Great News Bird

  You may have this beast on the run and we all appreciate the way you've reported your progress . . . That's what happens here.  You may be "In-the-Army-Now" . . .  . But you're also in a big family of folks who understand this beast of ours and help where we can.

  I'm hoping the D3, fish oil, calcium citrate is going to do the trick for you.  I've been mostly PF for the past year or more . . . Friday I called my druggist to ask when I got my D3 script (originally large doses for a month . . . then started 5,000 IU per day) . . .  1/13/10 . . . a year and four months ago. 

  So, my next step is to get the fish oil (druggist will order in the small capsules for me) and the calcium citrate) and see if I can go from "mostly pf" to totally PF. 

  Oh . . . what does your PA and neuro have to say about your current condition?

     Be Safe,   PFDANs

         Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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Re: Thank you ALL for getting the word out!!!
Reply #32 - May 15th, 2011 at 7:22pm
 
thanks for your support Richard.  this seems to me to be a pretty strong family.  the army being what it is, and army sick-call being what it is, i dont always see the same PA.  i rarely go to sick call unless i am told to, but when i do i usualy end up seeing a captain or a major, both of whom are quite full of themselves and do thier best to let me know they dont want to waste thier time on a "headache" patient.  our brand new luitenant right out of med school took one look at my face and refered me to neurology.  ive only seen the neurologist once, as she also treats TBI, which we get a lot of with people jumping out of planes and all.  with 40000 or so airborne personell on base and only 1 TBI clinic, its way overbooked.  she basicaly just diagnosed me, gave me a Rx for verapamil, and told me to look up this website(even though she couldnt remember the name of it).  she told me to schedule the nearest possible follow-up, which is for wednesday, the 18th.  so basicaly, ill be able to answere your question after that Smiley  i dont think ill get another apointment in before i deploy, so i gotta get what i can out of this one.  the information im getting here and my experiences are all going with me.  just having all this info makes a difference, its like i was going to war armed with a pocket knife and i was just given access to an armory.  anyway, i hope the calcium citrate and fish oil push you over the edge to PF.
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Re: Thank you ALL for getting the word out!!!
Reply #33 - May 16th, 2011 at 4:14am
 
Just woke up with a wierd shadow bouncing back and forth between my neck and temple.  For some reason, I didn't take my d3 and fish oil till 0100 yesterday morning, then didn't take any yesterday after I woke up.  I thought I slept wrong until I took an energy shot and the pain went away.
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« Last Edit: May 16th, 2011 at 8:37am by AubanBird »  
 
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Re: Thank you ALL for getting the word out!!!
Reply #34 - May 18th, 2011 at 8:42pm
 
ok, for the most part, still painfree.  slight shadows the last two mornings, but nothing more painful than a toothace.  i saw the neuro today, got a three month supply of 240mg verapamil, with 4 refills available.  looks like i wont be running out while im overseas.  i also got the imitrex injectors, ten injections with 3 refils.  i hope i dont have to use it.  i also got a prescription for the fish oil i take, so i dont have to buy it anymore.  she actualy prescribed me exactly what i said worked, 3000mg of fish oil per day.  if the pharmacy had vitamin d3, she would have prescribed that too.  at least i dont have to buy fish oil anymore Smiley  she also wants me to try maxalt melt as an alternative to the slow acting imitrex pills i had taken before, so i have a whole lot of those as well.  anyone have experience with rizatriptan(maxalt melt)?  im thinking about baiting the beast by stopping the fish oil and vitamin 3d so that i can test maxalts effectiveness.  i just dont want to find out if it works while driving a humvee...
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Re: Thank you ALL for getting the word out!!!
Reply #35 - Jun 20th, 2011 at 9:33am
 
well, i finally got some communication methods set up, although they are spotty at best over here(deployed).  the D3 is still working, for the most part.  i tried to back off to 5,000 ui a day, but i started getting some really annoying shadows again so i bumped it back up to 10,000.  i have access to vitamin d3 here, not the same kind im used to and it costs twice as much, but at least i can get it.  the acclimatization period was rough.  i have only had two headaches since i got here, and they were both in the first week.  only one was bad, killed it with a trex shot.  for the most part, life is beautiful...  except that the country im in makes me miss home.  and makes me appreciate it...
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