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Newbie asking??? (Read 1026 times)
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Newbie asking???
Jun 5th, 2011 at 11:56pm
 
Cry I am again a devotee to this site, I am back because the cycles won't stop, takeinf 25 mg zomig at on set(when the ghost is near but the beast still only lurks) and then another 25 mg a hour later. But i still am shaken, torn and mauled by the beast for hours at a time. This has lasted six weeks so far . Honestly folks I am getting scared, I do not say this lightly as I am a 55 yr old male, retired Marine and a volunteer firefighter so I think I can honsetly say I do not scare easily. I have to go thru the VA for my meds and only get 9 tabs per script which go so quickly that I have nothing left till the refill comes in the mail in 10 to 14 days.
ANY ideas would be helpfull, would write more but the beast stirs.  Angry
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Racer1_NC
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Re: Newbie asking???
Reply #1 - Jun 6th, 2011 at 12:14am
 
Oxygen works wonders for many of us......take a moment and read here:Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register if you haven't already done so. Personally, I swear by it.....
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“We see what we believe, not the other way around." — Varga
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bejeeber
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Re: Newbie asking???
Reply #2 - Jun 6th, 2011 at 2:31am
 
What Racer1 said about the newer more effective way to administer O2 that legions of us here swear by, but doctors generally haven't caught onto yet.

And there's a load of other stuff that some CH'ers have found dramatic relief with. For instance:
  • Melatonin before bed for night hits prevention. 9 to 21 mg.

  • The high dose vitamin D3 regimen discussed here:Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

  • The powerful clusterbusters approach to prevention: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

  • Red Bull type energy drink at onset of the attack to aid the effectiveness of the O2.
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« Last Edit: Jun 6th, 2011 at 2:42am by bejeeber »  

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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Guiseppi
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Re: Newbie asking???
Reply #3 - Jun 6th, 2011 at 8:00am
 
I use an old push button style paramedic mask that a fire fighter gave me a hundred years ago. (I'm retired sheriff) I removed the mask and just draw off the stone. This way I get 100% 02 to my lungs, at as high a breathing rate as I want. Used this way my abort times run 6-8 minutes. Grab an E-Tank from work and give it a shot, I think you'll be amazed at how fast you can send beasty running and save the expensive pills for when you're caught away from the 02. I kept an E-Tank in the trunk of my cruiser when I was on cycle. I get about 6-8 aborts per E-Tank so it's only a couple of bucks per abort.

I'm 51, a 33 year CH'er, 02 has really taken a lot of fear away from old beasty for me. Welcome to the board.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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wimsey1
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Re: Newbie asking???
Reply #4 - Jun 6th, 2011 at 8:24am
 
Dittos to all above, and we do get feeling scared. CHs come with a bunch of good news-bad news bits.  Good news: it won't kill you; there are interventions available that actually work; this site; a growing body of medical research.  The bad news: it won't kill you; the interventions need to be personalized; people who don't have CHs telling you it's just a headache how bad can it be; many doctors have only only a passing acquaintence with this horrible affliction.

All in all: not a bad place to be in except when being hit by the beast. Then it sucks, the world sucks, the pain sucks, everyone around me sucks....you know what I mean. Faith, hope, a good outlook, a positive determination not to let this beast destroy the life I have in between hits...these are your best defensive weapons.

BTW, I am a 24 year sufferer who is chronic and has been for the past 4 years. Without this site, I would have had no life at all left. You're in a good place, man. Take what you read here and apply it. Blessings. lance
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Bob Johnson
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Re: Newbie asking???
Reply #5 - Jun 6th, 2011 at 11:11am
 
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you

You can add your location by editing your profile. CP Member --> profile
=========
If one med is not  working for you there are others in the same class which can be tried. Imitrex has greater kick than zomig (using the injection form) and would be a worth a try.

So raises the question: who is treating you? Ideally a headache specialist, especially when you treatment progress is iffy. If you have the option:

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.





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Bob Johnson
 
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