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Can anyone have alcohol in cluster? (Read 17164 times)
Zeitgeist
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Re: Can anyone have alcohol in cluster?
Reply #25 - Jul 4th, 2011 at 2:35pm
 
For me, alcohol usually trigger an attack, let's say in 3 of 4 cases.  Beer and brown booze is a more likely trigger than gin. I've generally avoided alcohol when in cycle.  But the last year, I've gone chronic, so I sometimes gamble.
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Wendy1
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Re: Can anyone have alcohol in cluster?
Reply #26 - Jul 19th, 2011 at 9:58pm
 
I am episodic, and nope, no alcohol...  that is usually the real test if I'm done with the cycle or not.   Stinks, cause I do like to have a glass of wine or a few beers, especially in the summer : (
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Re: Can anyone have alcohol in cluster?
Reply #27 - Jul 25th, 2011 at 3:20am
 
Nothing triggers major CH like cheap beer and Chinese food.
But only during a cycle
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Batch
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Re: Can anyone have alcohol in cluster?
Reply #28 - Jul 25th, 2011 at 8:04am
 
I guess I'm one of the exceptions.  I never had my CH react to ETOH one way or the other so it's never been an instant or even a delayed trigger. 

I tried skipping my nightly tot of rum & coke many times for up to a week while episodic and again after turning chronic...  I kept logs at the time and there was no clear difference in the frequency, severity, or patterns of my CH between nights while drinking a couple rum & cokes and nights without... 
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Re: Can anyone have alcohol in cluster?
Reply #29 - Aug 6th, 2011 at 1:50am
 
I'm Chronic, and not only does alcohol NOT affect my clusters, it is an abortive for my migraines.

If I've had a migraine that won't go away after I've tried the two triptans at my disposal, and the over the counter migraine tablets I have, and it's been 3 days, and I HAVE to go to work tomorrow, 4-6 shots of vodka and a good nights sleep and I'm right as rain.

It works every time. And yes, I am careful to not over do it, to not use it too often, I have talked it over both with my GP and Neurologist, etc. etc. etc.  It is very much my last resort measure.

But it does work when all else fails.
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Re: Can anyone have alcohol in cluster?
Reply #30 - Aug 6th, 2011 at 5:29am
 

I just came across this.
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Just a little light relief ,
By the way I'm episodic and I can drink off cycle , on cycle I can some times get away with stout or white wine but it's a bit of a gamble.

God bless

Nigel
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Re: Can anyone have alcohol in cluster?
Reply #31 - Aug 6th, 2011 at 8:11am
 
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Well we must hear both sides of the story, the rebuttal to Nigel! Wink

Joe
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Re: Can anyone have alcohol in cluster?
Reply #32 - Aug 6th, 2011 at 10:39am
 
Cupper wrote on Jun 30th, 2011 at 7:19pm:
I can't do alcohol during a cycle. It makes it far worse. Hence, I've pretty much given up drinking. It's a terrible drug anyhow.
I prefer the Cheeba.


AMEN!
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Re: Can anyone have alcohol in cluster?
Reply #33 - Aug 18th, 2011 at 8:17am
 
Brew wrote on Jun 17th, 2011 at 3:58pm:
A few who are classified as chronic are not affected by alcohol. I've yet to meet an episodic who isn't triggered by booze while in cycle.


Oh bloody, buggery bollocks!!!

I thought I was special because I could still drink (in moderation of course... unless it's my birthday) and you tell me I'm chronic?
All hope is gone. I'm off to see my bartender.

Cheap booze, my good man and have one for yourself.
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Re: Can anyone have alcohol in cluster?
Reply #34 - Aug 18th, 2011 at 8:21am
 
Zeitgeist wrote on Jul 4th, 2011 at 2:35pm:
For me, alcohol usually trigger an attack, let's say in 3 of 4 cases.  Beer and brown booze is a more likely trigger than gin. I've generally avoided alcohol when in cycle.  But the last year, I've gone chronic, so I sometimes gamble.


3 cases is a lot of alcohol.
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LasVegas
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Re: Can anyone have alcohol in cluster?
Reply #35 - Aug 24th, 2011 at 12:45am
 
Alcohol is my IMMEDIATE trigger, within 60 seconds flat. 

I would never chance it again while in cycle, nor within at least two weeks out of cycle.

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Batch
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Re: Can anyone have alcohol in cluster?
Reply #36 - Aug 24th, 2011 at 3:14am
 
Nigel,

Clever video on "I don't drink beer..."  but when I was younger... I didn't drink beer... at least not until I found they'd invented the funnel...  I also found it hard to imagine getting up in the morning knowing that's the best you're going to feel all day long...

Then again... had I known I was going to live this long, I'd have taken a hell of a lot better care of myself when I was younger... in stead of flying around in afterburner at the speed of heat with my hair on fire like there was no tomorrow...

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Take care,

V/R, Batch
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« Last Edit: Aug 24th, 2011 at 3:26am by Batch »  

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Re: Can anyone have alcohol in cluster?
Reply #37 - Aug 24th, 2011 at 7:07am
 
I cannot drink alcohol without getting hit. I quit drinking alcohol after I was diagnosed with ch back in 2003, but I have tried a sip since and regretting on both occasions. It led to shadows almost immediately and hit a bit later. Me and alcohol just don't mix; luckily I wasn't much of a drinker in the first place.

PF days to all,
Sanna

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Re: Can anyone have alcohol in cluster?
Reply #38 - Aug 29th, 2011 at 12:46pm
 
Skull Buster wrote on Jun 20th, 2011 at 7:05pm:
its odd, but i can drink vodka/ clear liquors while im in cycle, but I cant even finish one beer without getting hit.  And the clear liquors are a crap shoot. id say 85% of the time i can drink it without a hit. But beer will give me one 100% of the time.  That odd?

If it is, then call me odd.  I have given up beer and red wine forever.  If I have a drink of scotch or vodka, I am taking a risk, but 85-90% of the time I am ok.  Last Saturday night was one of those 10-15% times. Sad

ETA: If you take a gamble with the beast and lose, be prepared with 02, etc.....I refuse to let the beast rule my life.
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« Last Edit: Aug 29th, 2011 at 12:49pm by midwestbeth »  

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LasVegas
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Re: Can anyone have alcohol in cluster?
Reply #39 - Aug 29th, 2011 at 10:18pm
 
For those unsure if alcohol is truly their personal trigger like most of us....here's an extremely daring (and debatably guinea pig stupid) thought to determine if alcohol will trigger or not...

if you are getting "rogue hits" such as I have over these past few weeks and not sure if you are starting a cycle or not, try a drink or two.  The beast will hit or not.

I'm not much of a gambler after residing in Las Vegas 19 yrs, so I wouldn't take the chance of personally testing this daring test and live w/ the attitude of "preparing for the worst, but hoping for the best".

Good luck to anybody testing this
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Re: Can anyone have alcohol in cluster?
Reply #40 - Aug 29th, 2011 at 11:19pm
 
For my money...Tom Waits is the clusterhead poet....

In cycle..."The Piano Has Been Drinking....NOT me....NOT me"
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Re: Can anyone have alcohol in cluster?
Reply #41 - Aug 30th, 2011 at 12:51pm
 
LasVegas wrote on Aug 29th, 2011 at 10:18pm:
if you are getting "rogue hits" such as I have over these past few weeks and not sure if you are starting a cycle or not, try a drink or two.  The beast will hit or not.



This is my situation exactly!  I was in denial about it after having been PF for so long.  Putting down a couple cold ones confirmed my fears though.  I used to be extremely regular, every night at precisely 12:32am I'd get nailed.  The past couple weeks have been kind of random though.
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Re: Can anyone have alcohol in cluster?
Reply #42 - Aug 30th, 2011 at 4:38pm
 
It used to be that I could be certain that my hits would be much more intense and eminent if I consumed any type of alcohol while in cycle.  But this cycle has been different.   I seem to either get hit or not,  regardless of what I do, alcohol consumption included. 
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« Last Edit: Aug 31st, 2011 at 9:17am by Jeannie »  

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Re: Can anyone have alcohol in cluster?
Reply #43 - Aug 30th, 2011 at 5:50pm
 
I like beer too and have found the good beer (Sam Adams, for example) will bring one on when one of the thin beers (Miller Lite) won't.  This has me wondering if it's the alcohol or perhaps the hops.
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Re: Can anyone have alcohol in cluster?
Reply #44 - Sep 2nd, 2011 at 2:22am
 
Basically reposting what many have already said. My SO cannot have a single sip of a beloved Stone IPA or Founders Centennial or many, many other beers that he so enjoys during his "season." Big, big pain follows if he tries. This year is a little off, as hes been exhibiting some symptoms (minus the actual pain itself), so we've been able to take advantage of the many seasonal festival offerings in our neck of the woods. Some hope for those who may perchance luck on a regime that works (took my darling 10 years).
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