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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › hello my friends

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hello my friends (Read 734 times)

anthony g

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hello my friends
Jul 13^th, 2011 at 11:43am

I am back! Been awhile and looking for support and to give support. I have hermicrania continua which is very similar to cluster's I know cause i had them too Sad

and I am in a cycle now and it's really got me in a dark place! I am trying my best to stay as strong as possible and love knowing that u guy's are here to guide me and help with the support I need.
Thank's all
Anthony

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: hello my friends Reply #1 - Jul 13^th, 2011 at 5:18pm Sorry you're back on cycle Tony, but good to see ya again! Joe
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anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: hello my friends Reply #2 - Jul 13^th, 2011 at 7:44pm thanks so much joe! yeah it suck's but glad i got u guy's for sure. How are u my friend?
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: hello my friends Reply #3 - Jul 13^th, 2011 at 10:26pm Off cycle, at the Nashville Convention, loving life. I decided my last cycle was just that....my last cycle. I'm done with this crap! Joe
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wimsey1

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Re: hello my friends
Reply #4 - Jul 14^th, 2011 at 7:33am

Those dark places will yield to the light of hope...once effective interventions kick in. Is there much crossover between the meds you take for hemacrania continua and CHs? Can you treat them both at the same time or do you need a different set of Rxs? Hang in there, and know we are praying for you and everyone to be pf. Blessings. lance

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anthony g

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manhattan nyc
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Re: hello my friends
Reply #5 - Jul 14^th, 2011 at 9:07am

thanks for your kind words! im actually still learning the whole hermicraina continua thing . Its very similar to clusters but the number one line of prevent is indomethicin which tears up the stomach Sad

. i was at my headaches specialist on mon and just found out that hermicraina had cycles too Sad

very similar to cluster's Im almost thinking that I have chronic cluster's but I dont know. i am in talk therapy now and we will see where it goes. Im so glad to have the support of u guys
thanks alot
Anthony

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