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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › back from the headache specialist

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back from the headache specialist (Read 1232 times)

anthony g

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manhattan nyc
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back from the headache specialist
Jul 20^th, 2011 at 7:12pm

hey all well I got some bad new's today from my headache specialist look's like I dont have hermicrainia continua as i was diagnosed after a cluster cycle back in dec 09 from my specialist in miami i am back in nyc since march was away in florida for over a year and my specialist here Dr newman (excellent doc) that I have been seeing once a month diagnosed me with cluster's agin since I have been in a headache cycle and the indomethcin ( # 1 line prevent wasnt keeping headaches at bay any more! Sad

my hit's are not so bad but that is cause the indo so we are doing a pred taper and i started verapamil today. Just sharing my story and dont really know if I am chronic although I have not been what we call shadows since my last cycle dec 09 till april 10. Look forward to input and support u all!
thanks
Anthony

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Linda_Howell

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Re: back from the headache specialist
Reply #1 - Jul 20^th, 2011 at 7:42pm

Quote:

and my specialist here Dr newman (excellent doc) that I have been seeing once a month diagnosed me with cluster's agin

Anthony...would you be willing to share your Doctors name and address with me? Bill Mingus is trying to update the "sufferer reccomended Doctors" list at O.U.C.H. and if you are o.k. with pm-ing me with the info I'll send it along to him.

Getting a good and informed Doctor is one of the things we consider a priority and anytime one of us find one we like to share that with newcomers.

Linda

Hurt people.....hurt people. Think about it.

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: back from the headache specialist Reply #2 - Jul 21^st, 2011 at 8:29am I get your disappointment but hey, you get to hang around with this great bunch of CH dudes and dudettes! And there is life in between hits. Focus on what you got and how to deal with the beast when it comes a'knockin'. Blessings. lance
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: back from the headache specialist Reply #3 - Jul 21^st, 2011 at 8:34am What Lance said. Enjoy the pain free time, the company of the people on this board, and always be ready to do battle. You'll be fine! Joe
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anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: back from the headache specialist Reply #4 - Jul 21^st, 2011 at 8:25pm thanks guys I needed that! Im here to stay and aint goin NOWHERE!!!
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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: back from the headache specialist Reply #5 - Jul 21^st, 2011 at 9:54pm When we finally decide we have to take personal control and know what our Doctors don't, we start the road to managing CH. Attack the beast with all you can muster. Don
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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: back from the headache specialist Reply #6 - Jul 22^nd, 2011 at 10:05am That'll preach, bro. (that's a good thang)
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