Click this link to read a post I like on the clusterheadaches.com message board...

Jun 8^th, 2025 at 2:41am

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Anyone here gluten or grain free?

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

Anyone here gluten or grain free? (Read 1577 times)

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Anyone here gluten or grain free? Jul 29^th, 2011 at 8:07am I'm just curious to know. I eat no grains myself (nor sugar) and was wondering if anyone else here does the same or does not eat gluten (by choice or necessity).
Back to top	« Last Edit: Jul 29^th, 2011 at 8:09am by Melissa » Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Click Here to visit the CH.com Facebook page!

anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: Anyone here gluten or grain free? Reply #1 - Jul 29^th, 2011 at 8:14am I have been gluten and dairy free for a year now. It was a choice after having extensive food panel tests. I am sensitive to gluten and dairy not intolerant perse' I guess I feel better not sure it help's with the "headaches"
Back to top	IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: Anyone here gluten or grain free?
Reply #2 - Jul 29^th, 2011 at 8:23am

anthony g wrote on Jul 29^th, 2011 at 8:14am:

I have been gluten and dairy free for a year now. It was a choice after having extensive food panel tests. I am sensitive to gluten and dairy not intolerant perse' I guess I feel better not sure it help's with the "headaches"

Anthony, do you also eat sugar and are you in cycle right now?

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

anthony g

CH.com Old Timer

Offline

I Love CH.com!

Posts: 318
manhattan nyc
Gender: male

Re: Anyone here gluten or grain free?
Reply #3 - Jul 29^th, 2011 at 8:48am

I dont eat refined sugar i eat un refined from time to time. "Am I in cycle right now" Thats a good question

I was treating my what we call "shadows" for the last year with indomethicin cause I was diagnoswd after my last cluster cycle that ended in april 2010 after around 4 months,I had contstant shadows and was diagnosed by my headache specialist in florida with "hermicrainia continua. I moved back to ny in march of this year and the indo wasnt workin and I was getting heavier "shadows" and my new specialist said if the indomethicin isnt working at 200 mg then he ruled out hc and my diagnosis as of 2 weeks ago is cluster's. I started a pred taper a week ago and so far so good also started verap im down to 20 mg of pred now after being 60mg to 50 ect. So far im ok time will tell.
Im confused with the whole thing since my cycle back in dec09 was the second cycle I ever had in 11yrs. So There is my story and will def keep u posted
blessing
Anthony

IP Logged

Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Anyone here gluten or grain free? Reply #4 - Jul 29^th, 2011 at 9:09am Very happy to hear you are PF Anthony! I pray it continues for you.
Back to top	Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: Anyone here gluten or grain free? Reply #5 - Jul 29^th, 2011 at 9:12am Melissa wrote on Jul 29^th, 2011 at 9:09am: Very happy to hear you are PF Anthony! I pray it continues for you. Thank you so much friend!!! God Bless Anthony
Back to top	IP Logged

Mike Bernardo

CH.com Veteran

Offline

I Love CH.com!

Posts: 231
Chesterfield, NJ
Gender: male

Re: Anyone here gluten or grain free?
Reply #6 - Aug 3^rd, 2011 at 11:07am

I have celiac disease, so I have been gluten free for almost 13 years now (found out I had it in 1998). I do eat refined sugar, but not much, as the ups and downs of the sugar rush affects my HAs. Surprisingly, caffeine does not have the same effect. I only wish being gluten free would prevent or help my CH, though, who knows, if I was eating gluten, maybe they'd be worse.

IP Logged

midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: Anyone here gluten or grain free? Reply #7 - Aug 3^rd, 2011 at 12:18pm Melissa wrote on Jul 29^th, 2011 at 8:07am: I'm just curious to know. I eat no grains myself (nor sugar) and was wondering if anyone else here does the same or does not eat gluten (by choice or necessity). What type of sugar substitute do you use, Mel? Just curious.
Back to top	Dum vita est spes est IP Logged

Melissa

CH.com Moderator
CH.com Alumnus

Offline

Don't give up!

Posts: 7238
Central WI, USA
Gender: female

Re: Anyone here gluten or grain free?
Reply #8 - Aug 3^rd, 2011 at 12:26pm

midwestbeth wrote on Aug 3^rd, 2011 at 12:18pm:

Melissa wrote on Jul 29^th, 2011 at 8:07am:

I'm just curious to know. I eat no grains myself (nor sugar) and was wondering if anyone else here does the same or does not eat gluten (by choice or necessity).

What type of sugar substitute do you use, Mel? Just curious.

Sucralose (like Splenda) or agave nectar. I want to get off the sucralose and start using palm sugar, but our finances just aren't there yet.

Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!