Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
hello im new (Read 1515 times)
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
hello im new
Aug 10th, 2011 at 5:19pm
 
well this is might be the weirdest place for the first post i'm currently sitting in my hospital room/bed with a massive headache which me and my doctor seem to think is a cluster headache I've been here since Monday Sad and all my symptoms seem to add up pain on 1 side of the head affected side eye feeling like its going to pop out burning pain in my head swelling in the area of the headaches so anyways there giving me 4mg of dilordan every 4hrs and waiting for the neurologist to show up and i'm itchy as hell my nurse just gave me benadryl so if you post to me and i don't answer I'm more then likely pass out (25mg of benadryl) they think the itch is from an adverse reaction anyways feel free to respond back t (also note i pointed all this out to the doctor before thy figured it out but seems me and the doc are on the same page.. please feel free to respond back

Also not im a 24/M/RI
Back to top
  
 
IP Logged
 
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
Re: hello im new
Reply #1 - Aug 10th, 2011 at 5:28pm
 
Throbster wrote on Aug 10th, 2011 at 5:19pm:
Also not im a 24/M/RI


lol at typing while on benadryl
Back to top
  
 
IP Logged
 
Potter
CH.com Alumnus
***
Offline


Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff


Posts: 3600
Blgs.Mt.
Gender: male
Re: hello im new
Reply #2 - Aug 10th, 2011 at 6:28pm
 
Throbster wrote on Aug 10th, 2011 at 5:19pm:
well this is might be the weirdest place for the first post i'm currently sitting in my hospital room/bed with a massive headache which me and my doctor seem to think is a cluster headache I've been here since Monday Sad and all my symptoms seem to add up pain on 1 side of the head affected side eye feeling like its going to pop out burning pain in my head swelling in the area of the headaches so anyways there giving me 4mg of dilordan every 4hrs and waiting for the neurologist to show up and i'm itchy as hell my nurse just gave me benadryl so if you post to me and i don't answer I'm more then likely pass out (25mg of benadryl) they think the itch is from an adverse reaction anyways feel free to respond back t (also note i pointed all this out to the doctor before thy figured it out but seems me and the doc are on the same page.. please feel free to respond back

Also not im a 24/M/RI

That don't Google.

      Potter
Back to top
  
 
IP Logged
 
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
Re: hello im new
Reply #3 - Aug 10th, 2011 at 7:48pm
 
Potter wrote on Aug 10th, 2011 at 6:28pm:
Throbster wrote on Aug 10th, 2011 at 5:19pm:
well this is might be the weirdest place for the first post i'm currently sitting in my hospital room/bed with a massive headache which me and my doctor seem to think is a cluster headache I've been here since Monday Sad and all my symptoms seem to add up pain on 1 side of the head affected side eye feeling like its going to pop out burning pain in my head swelling in the area of the headaches so anyways there giving me 4mg of dilordan every 4hrs and waiting for the neurologist to show up and i'm itchy as hell my nurse just gave me benadryl so if you post to me and i don't answer I'm more then likely pass out (25mg of benadryl) they think the itch is from an adverse reaction anyways feel free to respond back t (also note i pointed all this out to the doctor before thy figured it out but seems me and the doc are on the same page.. please feel free to respond back

Also not im a 24/M/RI

That don't Google.

      Potter

dilaudid sorry
Back to top
  
 
IP Logged
 
Guiseppi
CH.com Moderator
CH.com Alumnus
*****
Offline


San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: hello im new
Reply #4 - Aug 10th, 2011 at 7:54pm
 
Dilaudid....what a beautiful thing! I got that after a nasty bike accident...........fell in love at the first injection!! (Which of course scared the hell outta me!)
Ch does not respond well to most opiates, the pain is too great and too often repeated to risk using opiates.

Read this link and share it with your docs. 02, 100%, at a reate to support hyper ventilation, will abort for me in 6-8 minutes. Some report even faster Aborts!

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Are you working with a headache specialist neuro yet? We have seen the best results from doing so. There are hundreds of headache types, some which mimic CH, and it’s important to eliminate those before arriving at a firm diagnosis. I’ve had CH for 33 years, they haven’t killed me yet! You need an organized approach to managing them so they don’t manage your life. I use a 3 pronged approach, many use a similar approach:

1: A good prevent med. A med I take daily, while on cycle, to reduce the number and intensity of my attacks. I use lithium, it blocks 60-70% of my attack. Verapamil is the most common first line prevent, topomax also has a loyal following. Some have to combine lithium and verapamil together to get relief.

2: A transitional med. Most prevents will take up to 2 weeks to become effective. I go on a prednisone taper, from 80 mg to zero over a two week period to give me a break while my prevent builds up. Prednisone will provide up to 100% relief for many CH’ers but is harsh on the system and should only be used for short periods of time.

3: An abortive therapy, the attack starts, now what? Oxygen should be your first line abortive. Breathing pure 02 will abort an attack for me in less then 10 minutes, that’s completely pain free. Read that link above as it must be used correctly or it will not work

Imitrex nasal spray and injectables are very effective abortives. I use the injectables, they’re expensive, and I rarely use them, mostly just when I get caught away from the oxygen. The pill form generally works too slow to be effective for CH’ers.

For now, get some energy drinks. Rock Star, Monster, any containing the combo of caffeine and taurine, chug it down as fast as you can when you feel an attack starting. Many can abort or at least really reduce an attack using these.

Read everything you can on this board, if you are a CH’er, knowledge is your best ally. We’ll help you all we can.

Joe


Back to top
« Last Edit: Aug 10th, 2011 at 7:55pm by Guiseppi »  

"Somebody had to say it" is usually a piss poor excuse to be mean.
 
IP Logged
 
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
Re: hello im new
Reply #5 - Aug 10th, 2011 at 8:23pm
 
yeah im still sitting in the hospital in my room they just gave me another shot of imitrex
the o2 is not working it works for a bit then when i get off it it starts up again but yeah still waiting on the neuro they said hes suspoda come in tonight but its already 830
Back to top
  
 
IP Logged
 
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
Re: hello im new
Reply #6 - Aug 10th, 2011 at 8:25pm
 
and yeah the diladid is nice it was lastimg tje full 4 hrs befrore but not anymore
Back to top
  
 
IP Logged
 
Throbster
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 11
Re: hello im new
Reply #7 - Aug 10th, 2011 at 9:19pm
 
k i just talked to the neuro hes giving inject able something and lithium and prednizone with 02 therapy
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!