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shane mac CH.com Newbie Offline I Love CH.com! Posts: 5	cluster monsters Aug 10^th, 2011 at 11:04pm Hi fellow sufferers, nice to know I am not alone because it's hard to explain the pain to anyone else. Cheers Shane Mac New Zeala nd
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RichardN

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Re: cluster monsters
Reply #1 - Aug 11^th, 2011 at 12:13am

Hello Shane Mac & Welcome to Clusterville

We have several members here from New Zealand.

Tell us a bit more about yourself. How long have you known our beast? Do you have working preventative(s) Do you have working abortive(s) . . . especially oxygen?

Much information here from people who truly understand your pain . . . you're no longer alone.

Read, read, read . . . ask any questions you may have.

Be Safe, PFDANs

Richard

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I can live with the beast as long as I don't have to "dance" with the bastard.

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shane mac

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Re: cluster monsters
Reply #2 - Aug 11^th, 2011 at 12:54am

thanks mate. Have had them for about 2 weeks. Spent 7 days in hospital. Am on prednisole. The doctor said I am not allowed o2 in my home under nz law for some reason. I will investigte further as it helped a lot in hospital. I have noticed sufferers drinking red bull etc for relief. When do you have this, assoon as symptoms start? cheers ShaneMac

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Mike NZ

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Oxygen rocks! D3 too!

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Re: cluster monsters
Reply #3 - Aug 11^th, 2011 at 2:28am

Hi Shane

Your doctor is totally incorrect about having oxygen at home in New Zealand. I should know as I've got it in my home, supplied by the local hospital and by BoC.

For info about how I got my oxygen, read the following topic - Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

A steroid, like prednisone, is normally used as a short term preventive whilst a longer term one, like verapamil, lithium or topomax builds up to an effective level. Staying on steriods long term is not good for your body as it can do serious damage, hence restricting it to a week or two as a transitional preventive.

Have you got something like verapamil, lithium or topomax to use as a preventive?

Have you got anything to abort a CH? In NZ you can have Imigran (known as Imitrex in the US) on perscription which only costs NZ$3 per perscription. Make sure you get the injectable form and not tablets.

Drinking a Red Bull or similar drink with caffeine / taurine at the start of a CH can help drop the intensity and / or duration. I just drink the can as quick as possible, normally in 30 seconds or less.

Where are you in NZ? I'm in Auckland (although away on holiday at the moment).

Let me know if you've other questions as I've had plenty of experience in getting my CH treated in NZ.

Keep reading and asking questions.

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shane mac CH.com Newbie Offline I Love CH.com! Posts: 5	Re: cluster monsters Reply #4 - Aug 11^th, 2011 at 6:06am Hi I've got maxalt but they only gave me 5 tabs when I l left hospital and i'm scared to use them all in case there is an 11 or 12 that I dont yet know about( pain wise )
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: cluster monsters Reply #5 - Aug 11^th, 2011 at 7:40am Maxalt melts can work with CH, but they are nothing like as effective as oxygen or imigran (imitrex). I'd work with your GP / neuro to get both. Have you read through the topic around getting oxygen in NZ?
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Guiseppi

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San Diego to Florida 05-16-2011

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Re: cluster monsters
Reply #6 - Aug 11^th, 2011 at 9:06am

I'm glad Mike chimed in. Oxygen should be your first line abortive. I kill mine off in about 6-8 minutes by huffing the 02. You have to get on it quick, for me a delay of even a few minutes can double the abort time.

Time to become a bit more vocal for yourself and push for the relief you need. Thanks again Mike for steering him thru the medical maze on your side of the world.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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RichardN CH.com Hall of Famer Offline Posts: 963 x1\|Crossville\|USA,Tn Gender:	Re: cluster monsters Reply #7 - Aug 14^th, 2011 at 1:56pm Another vote for 02. My miracle abortive. I can't use sumatriptans due to some artery blockage and high cholesterol . . . so 02, energy drinks, ice packs are my only abortives. Be Safe, PFDANs Richard
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B.Baer CH.com Veteran Offline I Love CH.com! Posts: 154 Northeast Pennsylvania Gender:	Re: cluster monsters Reply #8 - Aug 27^th, 2011 at 7:27pm Since high flow 02 and demand valve, I've never looked back or had a faster abortive.... Good luck .
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Barry_T_Coles CH.com Alumnus Offline Posts: 2073 Karratha\|,West_Australia Gender:	Re: cluster monsters Reply #9 - Aug 27^th, 2011 at 11:42pm Hi Shane Welcome aboard, I see Mike has already taken you under the wing, listen to him mate he knows his stuff about getting what you need over there. O² Rocks, I can kill a hit in just a few minutes. All the best from over the ditch. Cheers Barry
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