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Read the whole thing. Then read it again.

Then one more time, just for good measure.

Welcome to the board Jordyn, are you working with a headache specialist neuro yet? We've seen the best results from those who have the ability to work with one. Glad you found us.

Joe

Fioricet is basically useless against CH. This is why you need to find a headache specialist who knows how to treat this disorder.

If you can, please list specifically which medications you've taken and in what dosages. We'll have a much better chance of helping you find where to go if we know where you've been.

Hi Jordyn,
You have the best info about CH's ANYWHERE available right here.  Lots of reading to do.  Most of your questions cans be answered by reading current and archived threads.  The O2 helps!  But only if you use it correctly.  The meds suggested all help, but only if used correctly.

The Verap of 100mg yo mentioned is no where near enough to be effective as a preventative med. 

You need to read up on preventative, transitional and abortive treatments. 

Chances are you will know more about CH's than your doctor after you are done reading for a few hours and taking notes.

After you've felt comfy with your reading and understanding what CH's are, and how to fight the beast...print info from this site and send to your doctor a few days BEFORE your next appt. 

Until then, read up on what you can do on your own without a doctor.  YOU are your best and only true ally.  It is VITAL for your sanity and health that you become educated. 

PLENTY of helpful info from plenty of helpful people who ALL understand EXACTLY what you are going through. 

You are not alone.  Welcome to Clusterville

15? 

Mine started at 11, I am now 43.  I relate.  Read & Learn.  This might be, might not, be something you will battle until you are a senior citizen.  Not trying to scare you, trying to prepare you to possible reality. 

Most doctors have no clue about CH's because there is not enough of us in the world that suffer or that have been accurately diagnosed.  Have you taken the cluster quiz, survey, etc on the left side of the screen. 

O2 really does work, tab on O2 also on the left side of your screen.  Keep in mind, O2 is an abortive, not a transitional nor preventative treatment.  You will need all 3...abortive, transitional and preventative. 

Good luck

THREE!!! okay that just sucks. Good on you for taking the initiative to understand what's hurting you. Knowledge is your new best friend, we'll do all we can to help you. The good news is you are not alone anymore.

Joe

Hi Jordyn - you've had great advice so far, so hopefully by working with a neurologist who knows what they are doing with CH plus the benefit of the advice and experience here you will be able to make huge improvements in how you are treating and aborting CHs. This for many, myself included, has turned our lives around.