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evie CH.com Newbie Offline I Love CH.com! Posts: 16 united kingdom Gender:	short of breath Aug 27^th, 2011 at 5:29pm hi everyone during a cluster cycle i get really short of breath when i bend down to pick something up or simply walk upstairs i feel like i have run 10 miles i just cant seem to catch my breath is this normal ? does anyone else experience this i find it quite frightening
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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: short of breath Reply #1 - Aug 27^th, 2011 at 5:37pm Depends on what meds you are on.......Verapamil for one, can do that.......
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: short of breath Reply #2 - Aug 27^th, 2011 at 6:32pm As Racer said, Verapamil can lower your blood pressure, so that would cause some dizziness. But just a CH cycle does not bring that on for me. Joe
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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: short of breath Reply #3 - Aug 27^th, 2011 at 7:06pm Pop into your doc's office and ask for a blood pressure check--them them what is happening.
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jackieeyerly

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Re: short of breath
Reply #4 - Aug 29^th, 2011 at 12:26pm

YES! I too notice More shortness of breath,also sometimes brief heart flutters, and sore or tense neck and shoulder pain (one side.) I take neurontin which seems to help prevent and lessens the pain when I do get the cluster.I use 300mg TID. Also, when the pain gets really bad and O2, percocet don't help, I use 60mg Torodol injection Intramuscle in hip. You need a RX for that , but be careful if you have kidney problems. ER Doc that suffered with cluster told me about the Torodol.

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Dyno CH.com Junior Offline I love YaBB 1G - SP1! Posts: 64 Tenby, Wales, UK	Re: short of breath Reply #5 - Aug 29^th, 2011 at 1:11pm In a previous post you said;- Quote: the doc has put me on verapamil and prednisolone for 2 weeks What dose did he start you on? Is it Verapamil BP or SR (slow release) or MR (modified release)? Did you have an ECG? also - HAVE YOU CALLED THE HELPLINE YET ?
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evie CH.com Newbie Offline I Love CH.com! Posts: 16 united kingdom Gender:	Re: short of breath Reply #6 - Aug 31^st, 2011 at 12:57pm hi i am on 80mg verapamil a day and 40mg prednisolone a day but i started with the shortness of breath before i started on the verapamil i had an ECG about a year ago and it was clear all is good at the mo been CH free for a week havent rung the helpline yet though
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Lenny CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 642 Los Angeles,CA Gender:	Re: short of breath Reply #7 - Aug 31^st, 2011 at 2:46pm Evie...do you smoke ???
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evie CH.com Newbie Offline I Love CH.com! Posts: 16 united kingdom Gender:	Re: short of breath Reply #8 - Sep 1^st, 2011 at 2:28pm no i quit smoking 2 years ago thought it might be a trigger wrong on that one at least im healthier for quitting though
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CHsRtheDeviL

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Re: short of breath
Reply #9 - Sep 17^th, 2011 at 12:41pm

Sometimes when I get a really bad attack and this is kinda rare but it happens sometimes I literally cant breathe all of a sudden its so scary!!! I mean I can breathe but it feels like the air i'm getting in is not doing anything and I just gotta like fight through the pain and try and relax and tell myself your okay you can breathe you'll be fine it'll pass just relax. Keep inhaling and exhaling and you'll be okay

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