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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Cluster pain site move

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Cluster pain site move (Read 1694 times)

Mike NZ

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Oxygen rocks! D3 too!

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Auckland, New Zealand
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Cluster pain site move
Sep 21^st, 2011 at 4:27am

My cluster pain has always been located around my right temple for my first episode of 11 months, however I seem to be starting another episode (I got a 6 month break with just a single CH), however this time it seems to be behind my right eye.

The best way I can describe it's location is from the picture on the Wikipedia CH entry:
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That's such a powerful image it saved me from trying to pull my eyeball out.

Has anyone else had the pain area move like this?

Time to dust off the oxygen kits which have been waiting ready for the beast to return...

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wimsey1

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MA
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Re: Cluster pain site move
Reply #1 - Sep 21^st, 2011 at 7:59am

Hey Mike. For the longest time I experienced CHs as an incredible pressure behind my right eye. Then it morphed so I felt the pressure, plus stabbing and then piercing pain through my temple. Now I'm back to the first experience primarily. I think it all has to do with how the trigeminal nerve reacts or is affected during the hit. Sorry it's time to hit the tanks. Use everything you've learned to battle the beast. Prayers your way. lance

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ttnolan CH.com Veteran Offline beats me Posts: 247 Scotts Valley, CA Gender:	Re: Cluster pain site move Reply #2 - Sep 21^st, 2011 at 8:32am Yes a fickle beast... eye is the norm, temple yes, I have even had it switch sides. But whatever the beast decides... it is usually consistent for the whole cycle.
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Pfunk

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Summerville,South_Carolina
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Re: Cluster pain site move
Reply #3 - Sep 22^nd, 2011 at 12:30am

I too have had the beast morph on me on two different occasions. Typically mine are normally localised behind my left and both times Beasty just decided he was going to work on the right for a while. The scariest part last year was that I actually had it happen right in the middle of a hit, which made it feel as if the pain and intensity were worse as that side is not prepared or accustomed to the battles. Just my experience. PF wishes, my friend.

Pfunk Cool

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B.Baer

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Northeast Pennsylvania
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Re: Cluster pain site move
Reply #4 - Sep 22^nd, 2011 at 8:52pm

Mike,

Yes, last cycle, it tried to jump from the left , I'd been left sided cyclic for over 15 years.

Then it started mid cycle to migrate to the right.... never really got a hold on the right but kept on trying for the worst part of a year.... Then as if it never happened, stopped altogether. Fickle Beast indeed...

Here's to a short stay by the Beast this go round and glad you have the Oxygen at the ready.

I too have a tank always near at hand.

All the best,

Baer

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AubanBird

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everywhere...
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Re: Cluster pain site move
Reply #5 - Sep 25^th, 2011 at 5:00am

im normally left sided chronic, but i do get some periods of pain free time. a couple years ago, after a few weeks with no CH, i had one knock the crap out of my right eye. like Pfunk said, it seemed worse being on the side that isn't used to it. it lasted an unusually long time too. the next few days it was a shadow that hung around and finally vanished. a week later things picked up on my left side as normal.

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ClosetCHer

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Re: Cluster pain site move
Reply #6 - Sep 25^th, 2011 at 10:24am

Mike,
My CHs are a freak of nature, seriously. From the first time I had a CH, they frequently switch from the left to right eye. Historically the left eye CHs are at the beginning of the cycle and are usually anywhere from a Kip 1-6. When I near the end of my cycle or high point, they switch to the right eye which is the Kip 6-10 side. During this transition and when my cycle is ending, I regularly have CHs that start on the right and end on the left and vise versa. I know that when I get one on the right side, I need to get to an abortive fast! On a few occasions I've aborted a right eye CH that came back as a left eye CH only minutes later, even after breathing oxygen at the proper rate and time. Go figure!

« Last Edit: Sep 25^th, 2011 at 10:24am by ClosetCHer »

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bejeeber

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Gnashville
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Re: Cluster pain site move
Reply #7 - Sep 26^th, 2011 at 10:35pm

Ugh, Mike, if you keep getting hit behind the eye, you're going to have to get a tattoo of that drawing - like this guy's:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Cluster pain site move Reply #8 - Sep 27^th, 2011 at 3:22am Will still give the tatoo a miss, but seeing it now invokes a totally different reaction to when I first saw it. Currently the beast isn't sure if he should have fun with my right eye or temple, but being prepared rocks.
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