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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Relief? plz read it to the end

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Relief? plz read it to the end (Read 1025 times)

Big J

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Relief? plz read it to the end
Sep 24^th, 2011 at 11:37am

Hi all i have suffered from ch for 3 years+ now. started off episodic but is now chronic. My worst day been fairly recently with 4 through the
night and 8 through the day. . 4 those who dnt no, this destroys lifes

Anyways i'll cut to the chase. the last 2 nights about 11 they have been hardcore, not that they r ever nice. having had more sumitriptan than i dare take and not been able to sit still lng enough 4 o2. i try'd sumthing new.

i find in the winter going walking in the cold helps. But the last two warm nights on the belt i have placed my head in the bottem of my dads chest freezer and beath deeply alternating from nose 2 mouth. I have never managed to get relief like this b4 its brilliant, i cn feel the disasterous pain going num and cn manage to sit still

Plz try this and let me and others no your results.

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Bob Johnson

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Re: Relief? plz read it to the end
Reply #1 - Sep 24^th, 2011 at 11:52am

One of the joys of this place is that we keep reinventing the wheel!

Years ago, the use of heat and/or cold was a regular topic here. No much else useful then but, with the introduction of the triptans, etc., this subject has largely disppeared.

But it's super that you have found relief!

Might consider using Frova for its longer usefl life.
----
Expert Opin Drug Metab Toxicol. 2011 Sep 20.
Pharmacokinetic evaluation of frovatriptan.
Negro A, Lionetto L, Casolla B, Lala N, Simmaco M, Martelletti P.
SourceSapienza University, Regional Referral Headache Center, School of Health Sciences , Department of Medical and Molecular Sciences, Rome , Italy.

Abstract
Introduction: Migraine is the most common painful neurological disorder, affecting 13% of the general population. Triptans represent a powerful pharmacological tool in acute migraine treatment, however, a significant portion of treated patients cannot have access to this class due to possible adverse affects. Today, a total of seven triptan molecules are available, representing a commonly prescribed migraine treatment. Although there is a need of extensive use of triptans, only 25% of migraine patients are using triptans. Areas covered: This review includes triptans and evidence for the use of frovatriptan. A systematic approach is used to discuss the pharmacodynamic and pharmacokinetic aspects of frovatriptan, considering the emerging data on the clinical efficacy of frovatriptan in the treatment of migraine and cluster headaches. The data were obtained by searching the following key words in MEDLINE: pharmacokinetic, pharmacodynamic, triptans, frovatriptan, migraine, menstrual migraine, relatively to the period 1988 - 2011.

Expert opinion: Frovatriptan has been developed in order to improve safety and efficacy of triptans. It shows a favorable tolerability and efficacy profile, limited to 24/48-h headache recurrence, when compared with other triptans. Preclinical data suggest that the pharmacokinetic profile of frovatriptan may differ from other available triptans.

IN FACT, AMONG TRIPTANS, FROVATRIPTAN SHOWED THE HIGHEST POTENCY AT THE 5-HT1B RECEPTOR (8.2) AND THE LONGER HALF-LIFE (26 H). THESE PARAMETERS DETERMINE THE CLINICAL PROPERTIES OF FROVATRIPTAN; IN PARTICULAR THE LOWEST RATE OF HEADACHE RECURRENCE IN COMPARISON WITH OTHER TRIPTANS.

PMID:21929465[PubMed]

Bob Johnson

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Brew

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Re: Relief? plz read it to the end
Reply #2 - Sep 24^th, 2011 at 11:56am

Sounds to me like you are on the downward spiral of never-ending sumatriptan rebound headaches. You need to use that stuff very judiciously.

Have you tried hyperventilating with 100% oxygen at high flow rates? Works like a charm for almost everybody, but you gotta do it right.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Big J

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Re: Relief? plz read it to the end
Reply #3 - Sep 24^th, 2011 at 12:38pm

I realy aprreciate the quick responses.

i am in the uk, and not many docters no about it. at first they try'd me on verapamil but after they upped thte dosage the ecg told the nurse i woz having a heart attack, redone the test and same again. i woz then

told to go wait in the waiting room. 30 mins l8r they came out, told me i woz ok and 2 go home. only ever so slightly worried i went home never to take them again. Then i woz introduced 2 sumitriptan, but have now stopped taking it as i was having to much. several docters and 3 years l8r i am getting refered for botox injections and possible deep brain stimulation.

Has anybody got any advice on this plz

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Relief? plz read it to the end Reply #4 - Sep 24^th, 2011 at 1:22pm Don't even consider the DBS until you've exhausted EVERY other option, namely O2 and clusterbusters.com.
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Bob Johnson

CH.com Alumnus

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"Only the educated are
free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: Relief? plz read it to the end
Reply #5 - Sep 24^th, 2011 at 1:46pm

Your recent identifying your location is why this is important:
Please tell us where you live. Follow the next line to a message which explains why knowing your location and your medical history will help us to help you.

Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you
You can add your location by editing your profile. CP Member --> profile
BUT, Please!, don't post your messages at this location. They won't get the attention you want: use the appropriate sections which follow.
=====

It's my understanding that your healthcare system allows you direct access to any headache clinic of your choice. This is the only approach which will get you the skilled attention needed.

If you need assistance, see your excellent support group:

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Bob Johnson

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