Click this link to read a post I like on the clusterheadaches.com message board...

BarbaraD

CH.com Alumnus

Offline

Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

SERIOUS.. new news from my neuro
Sep 29^th, 2011 at 6:16pm

Went in for my 50,000 mile check up yesterday and (don't cringe) got a NEW diagnoisis along with CH... I now have Chronic migraines (had just plain ones before) along with Chronic CH -- aren't I the lucky one????

But my neuro is doing some research (mostly in migraines cause he has THEM).. He says he's having really good luck with botox injections in the middle of the forhead (esp. for the chronics) But that's it's working somewhat (and he didn' t have a lot of data - just some of his "bad" patients... on CH.

So I'm scheduled for my BOTOX injections in Nov. Seems we put 31 shots in the old forehead (at one time) and then 3 months later get to do it again.

(Course being the shy retiring person I am, I did ask if we could put a little around the "laugh" lines around the eyes and maybe add a little "fullness" to the lips) Think this was about the time he kicked me out of his office till Nov.

Those of you who've known me for 100 years know I've been game for anything that MIGHT work to get over being chronic... Keep your fingers crossed on this one. THese dam migraines on top of the CH are NOT a fun thing.

Ya know, I think this is my punishment for all the years I "looked down" on people who had migraines.. I thought they were just "putting on" cause they were lazy or didn't want to do something - I mean how could a little headache hurt THAT much.. come on ...

Today, if someone complains about a broken fingernail - hey, they've got MY sympathy..

So now I've solved the mystery of the REASON for CH and migraines.. you can all rest in peace now..

Thanks for being here... Kiss

Back to top

What don't kill ya, Makes ya stronger!

IP Logged

Click Here to visit the CH.com Facebook page!

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: SERIOUS.. new news from my neuro Reply #1 - Sep 29^th, 2011 at 8:08pm I hope it works for you Barb. If nothing else no one will know when your pissed till your mouth opens -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: SERIOUS.. new news from my neuro Reply #2 - Sep 30^th, 2011 at 9:22am LMAO -- I can "relate" to that one...
Back to top	What don't kill ya, Makes ya stronger! IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: SERIOUS.. new news from my neuro Reply #3 - Sep 30^th, 2011 at 11:57am Good luck! Now you can join one of those"real housewives" shows and show the rest of the world how hot ya are.
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: SERIOUS.. new news from my neuro Reply #4 - Oct 1^st, 2011 at 4:44pm I did botox injections for a while. They got rid of my chronic migraines that I had on top of chronic ch. Then I got a hysterectomy and that stopped the migraines. Turns out they were hormonally triggered. I hope you get relief from them real soon. Praying for sucess for you.
Back to top	Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi IP Logged

flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: SERIOUS.. new news from my neuro Reply #5 - Oct 2^nd, 2011 at 7:46am Phil had Botox for his chronic migraine and he got about a month's worth of relief out of it. We thought it was the awesome for that month Hope it works out better for you
Back to top	Only one life.....only one chance to make the moment count for something - Racer1_NC IP Logged

Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: SERIOUS.. new news from my neuro Reply #6 - Oct 2^nd, 2011 at 7:52am Goodluck, sounds like you could do with a break!
Back to top	IP Logged

BarbaraD

CH.com Alumnus

Offline

Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: SERIOUS.. new news from my neuro
Reply #7 - Oct 2^nd, 2011 at 10:27am

Well, this morning (I do my heavy thinking in the mornings) - I figured it all out -- all MY problems are the fault of MEDICARE...

Before medicare I ONLY had CH and I'd pretty well got them under control (oh I'm chronic but I'd learned to live with that - 2 trips a year to the neuro - refill meds - keep O2 on hand - live with it). Had LUNCH with my doc a couple of times a year - he checked my pulse - and unless I had an "accident" didn't see him much more often than that..

THEN I got Medicare! And I swear I've seen doctors more since that happened than have in all the years proceeding it.. And they KEEP finding things WRONG.. How can a person fall apart in only two (well almost three) years? I go in for a "simple" cold and they find all sorts of other things that don't have anything to do with a "cold" and run tests and find something else again.. I come home because I'm falling apart..

The "latest" is the ENT doc who was treating a "sinus" infection has decided that I have all the signs of diabetis and insists that I go to my reg doc for THAT test...

Is there any way to opt OUT of Medicare or go back to being 64 again? At this rate I'm going to be counting dust balls in a nursing home before I'm 70!!!!! Huh

Personally, I think they've got too many doctors doing too many damn tests these days and finding too much wrong with OLD people who could live just as well with stuff if they didn't know they had it..

Oh and while I'm on a rant - Just got another one - did you KNOW that Valium is NOT on the "approved" Medicare RX list for Vertigo (which I actually have). Never mind that it is an OLD tried and true remedy (when mixed with antivert and niaciain) to clear this up (for years in my case - had it when I was 40 and it worked after only 6 months for all these years until lately). But I guess I shouldn't complain - for $29 I get 100 pills, break them in half and that lasts me a couple of months so I figure for about $60-90 I'm good for about another 27 years of no vertigo.. then if they don't find anything ELSE wrong with me I can climb on chairs again... Tongue

End of rant for today... Think I'll take a WHOLE valium today! Kiss

Back to top

What don't kill ya, Makes ya stronger!

IP Logged

Beth E CH.com Junior Offline Thanks for understanding CH.com! Posts: 88 Union City (Erie) PA Gender:	Re: SERIOUS.. new news from my neuro Reply #8 - Oct 13^th, 2011 at 6:16pm Whew....go ahead....after that...I may need one myself.
Back to top	No longer Helpless now! IP Logged

Click Here to visit the CH.com Facebook page!

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: SERIOUS.. new news from my neuro Reply #9 - Oct 14^th, 2011 at 8:39am Het Barb, I visited the one and only "drummer" last week. He escorted me into the hallowed "GARAGE". What an honor! BTW - he's still an idiot.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: SERIOUS.. new news from my neuro Reply #10 - Oct 14^th, 2011 at 9:07am Bob P wrote on Oct 14^th, 2011 at 8:39am: Het Barb, I visited the one and only "drummer" last week. He escorted me into the hallowed "GARAGE". What an honor! BTW - he's still an idiot. I SO feel the love Bob! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: SERIOUS.. new news from my neuro Reply #11 - Oct 15^th, 2011 at 8:27am I miss that Idiot.. And am glad to know the "garage" is still here -- aww such fond memories... Give the big lug a hug for me the next time you talk to him...
Back to top	What don't kill ya, Makes ya stronger! IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: SERIOUS.. new news from my neuro Reply #12 - Oct 16^th, 2011 at 7:19am and blessedly, after many years of being chronic, he's been PF for the past year!
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: SERIOUS.. new news from my neuro Reply #13 - Oct 16^th, 2011 at 12:05pm I don't suppose you took any pics of him in the infamous garage, did you? Sitting at his drums maybe?
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Charlie

CH.com Alumnus

Offline

Happy to be here

Posts: 18971
Jamestown, NY
Gender: male

Re: SERIOUS.. new news from my neuro
Reply #14 - Oct 16^th, 2011 at 3:29pm

We all get mysterious illnesses and the need for all kinds of tests when Medicare or Medicaid is involved. Basically, I have two doctors, if you count my neurologist that handles my epilepsy. The neurologist is disappointed in me. I told him that I don't need to see him 5 times a year to write prescriptions. Way too many doctors seem to think that it's okay to use Medicare as a cash machine. The AMA fought it tooth and nail until they discovered what a cash cow it is.

I'm no fun. One CT scan in my life is plenty unless I'm at death's door and then it's likely redundant. I've had seizures for 52 years and I know what to expect. I told him that if anything changes, I'll let him know and that 3 visits are all I'll put up with. The third is for a doppler once a year that makes sense to me since my T. I. A. a few years ago. Anyway, I fired a dermatologist that insisted I see him 6 times year rather than once since Medicare took over. What a crook.

Basically we are tested to death and just about all Medicare patients spend half their time in waiting rooms.

They aren't all guilty of this but for a lot of them it's a sleazy business. The only time I feel sick is after a checkup. When I was a kid, we never went to the doctor, he came to us....Yes. I am that old.

Be careful Barb but don't let them get away with something. Good luck kid.

Mean Old Charlie

Back to top

There is nothing more satisfying than being shot at without result---Winston Churchill

IP Logged

Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: SERIOUS.. new news from my neuro Reply #15 - Oct 17^th, 2011 at 7:58am Just took this one pic .... Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: SERIOUS.. new news from my neuro Reply #16 - Oct 17^th, 2011 at 8:07am My word!!! The kid grew up on me... what happened to his HAIR???
Back to top	What don't kill ya, Makes ya stronger! IP Logged

Click Here to visit the CH.com Facebook page!

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: SERIOUS.. new news from my neuro Reply #17 - Oct 17^th, 2011 at 11:38am Awwww. Thanks for posting that Bob.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!