I have had CH for years. Prednisone has always worked in the past. For some reason it does not work anymore. Has anyone out there had the same thing happen? The attacks are very sporadic. They hit me at  different times of the day. Sometimes I go 2 days without any attacks then all of a sudden I get three in one day lasting for about 1.5 - 2.5 hours of hell. Can't afford Doctor right now, I can't keep going like this. I am at the point to try anything. Does anyone out there know of a inexpensive way to help, ethical or not, I don't care anymore, I just want these to go away.

I am trying to find an oxygen tank right now on Craigslist. I am going to try the "Filling a plastic bag with o2 and breath from the bad trick". I read that on here and I hope it works. I have never had any other treatment since the prednisone has always worked in the past. The melatonin, Is that something you get at the vitamin store? I am going to get red bull also. If I don't get control of this, I don't know what I am going to do.

I'm using Nature's Bounty Melatonin 3mg tablets and taking 9mg before bedtime. It must say n-Acetyl-5-Methoxytryptamine on the bottle (tiny letters). I have used other Melatonin before and this has worked the best for me. Try and stay awake during the day. Naps bring on the headache so don't fall asleep.

If you can get on the D3 regimen. Here is the link. I felt great within 2 days. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

You need to order the mask right away to connect to an oxygen tank. I purchased the regulator at Harbor Freight tools. You rent the tank at a welders supply house.

You order the mask from this site you are on right now.

In answer to the first question you asked, yes, many of us (myself included) found prednisone did not work after the third, or even the second, time we used it. The beast morphs, and what used to work, often will no longer be effective. There are links here, as it seems you have read, about how to use welders O2 effectively. Perhaps you can rent a welder's tank? Anyway, the sooner you couple Red Bull with a means of hyperventilation, the better. You can hyperventilate on your own by breathing deeply and rapidly, expelling all lung air with each exhale. It's harder and takes longer, but it can be done.

I'm not sure what you mean by nonethical. Clusterbusters is a homeopathic means of regulating the beast. The ethics of an action are not determined solely by whatever laws regulate the action contemplated. For example, it is illegal to jump on top of someone and start pounding on them, except when attempting to give CPR. Circumstances and the desired goal play a large part in determining the ethics. Using nonconventional means to tame the beast is not unethical, in my opinion.

Let us know how you make out. Blessings. lance

It's simple. Take a small trash bag, poke a hole in the bottom, tape the 02 line so it's air tight. Fill the bag with 02, exhale completely, inhale from the top of the bag, close it back up with your hand, exhale. Repeat as fast as you can to achieve hyper-ventilation. You'll be delivering 100% 02 to your lungs, that's the critical part.

Joe

wimsey1 wrote on Oct 3^rd, 2011 at 7:43am:


Most excellent post Lance!!!  I guess you could say that the folks in the VA mental ward seemed to think my 2 failed 1998 suicide attempts were nonethical........ neither of which would have ever occurred had I known then what I know now about controlling the beast via the clusterbuster route!!! 

Dallas Denny