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Cluster Headache Help and Support › Getting to Know Ya › Newbies, Help us...help you
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Your doc experience is all too common here. We strongly suggest finding a specialist:

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3.  Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or ; On-line screen to find a physician.

5. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

6. Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
        Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.
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No material in my files re. anti-depressants triggering a cycle

Might print out the PDF file, below, and use it to discuss treatment options with any doc you see.

Welcome aboard Elle,

Read the links provided and best of luck, we've all been there, and for the most part... Continue to be...

Almost 20 years... and I'm still kickin'......

All the best,

Baer

Hi Elle and welcome.
I always encourage people to get their own O2 equipment. It is not as expensive as you might expect. After getting caught several times in my early years... moving, finding a good doctor, insurance companies that balked at providing it, etc. I just couldn't see another way to avoid it. I have always been glad I made the investment. I personally can't imagine having to suffer through my CH without O2... although I did for many years.
About the anti-depressants... I personally have not noticed them making a difference (on my depression either). I have heard of verapamil (and prednisone) stop working, the beast has changed things up on me several times.
Stay strong.