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Prednisone Works For Me (Read 4451 times)
LucyBee210
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Prednisone Works For Me
Oct 11th, 2011 at 7:20am
 
As wicked and with sometimes awful side effects, Prednisone works for me in aborting my episodes of Cluster Headaches. Since they have just started back after 2 yrs, I am on 10 mg Prednisone X 6 (60 mgs per day) for 5 days and then decreasing 10 mgs per day for 3 days, then decreasing each day thereafter - the weaning off process.  Unfortunately, my episodes last approximately 6 weeks so I have to revise this dosage once I get to 30 mgs a day and keep it there .. Since insurance will not pay for my oxygen and I've tried other meds that don't help, Prednisone is my life saver as dangerous a drug as it is.  I hope this is helpful information for a fellow sufferer.
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Brew
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Re: Prednisone Works For Me
Reply #1 - Oct 11th, 2011 at 7:28am
 
Very dangerous as its effects on the body are cumulative.

If insurance won't pay for medical oxygen, why not get your own welder's rig? For a few hundred bucks you could be aborting attacks until the cows come home.

Ironic that insurance won't pay for O2, which is relatively inexpensive, but they will pay for the hip replacement that results from overuse of steroids.
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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anthony g
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Re: Prednisone Works For Me
Reply #2 - Oct 11th, 2011 at 8:13am
 
so true Brew!
insurance companies are the worst bro
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Guiseppi
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Re: Prednisone Works For Me
Reply #3 - Oct 11th, 2011 at 9:14am
 
I hear ya Lucy, I once stayed on prednisone for over 6 months, unknown to my doctor,  Roll Eyes at the time it was the only thing that worked for me. Back then my only meds were fiorinal, lidocaine nose drops and oral cafergot.

Don't kid yourself, there will be a steep price to pay later in your life with continuing on such a long term course of steroids:

Given below are some of the side effects of prednisone that can have hazardous effect on women's health.
•Prednisone is known to interfere with the menstrual cycle of women. Many women complain of irregular periods after the prolonged use of this drug. Some women also complain of heavy bleeding, upset stomach, and abdominal cramps, etc. while being on this drug.
•This drug also intervenes with the hormonal changes in the body and is also notorious for causing various hormonal imbalance leading to various emotional problems. For example, many women suffer from severe depression, extreme mood swings, and increased anxiety, etc.
•Apart from this, pregnant women are extremely vulnerable to prednisone as it is known to have fatal effects on the mother as well the baby. It is also known to cause hives and rashes in pregnant women. Some pregnant women also complain of excessive stretch marks during and after pregnancy.
These were some of the prednisone side effects that can be experienced by women. Now let's take a look at some of the general side effects that can be faced by both men and women.

Other Prednisone Side Effects
•As mentioned above, being an immunosuppressant, prednisone can cause severe skin infections, such as, hives, rashes, and itching, etc.
•It also causes various respiratory infections that could lead to difficulty in breathing, tightness in the chest, swelling of organs involved in respiratory system, etc.
•This drug is also known to cause weight gain as it increases the appetite and hunger. In some cases it decreases appetite which can lead to excessive weight loss.
•Prednisone is also linked with various stomach and abdomen problems, such as, diarrhea, black and tarry stools, stomach ulcers, nausea, and vomiting, etc. Many people complain of bleeding of the stomach and the intestine as well.
•Some people have also reported to suffer from chronic sleep disturbances, sleep related problems, water retention, and excessive sweating, etc. as prednisone interferes with many bodily systems of an individual.
•Apart from this, it also causes headache, abnormal fat distribution, numbness and tingling in hands and feet, unusual hiccups, excessive hair growth, high blood pressure, fits, abnormal heart rhythm, cataracts, vasculitis, fever, dizziness, prolonged sore throat and cold, and enlarged liver, etc. But these are rare side effects.
•There are few rare psychological side effects that prednisone can have. Personality changes, false sense of well being, and chronic stress accompanied with personality disorder/s are some of the very uncommon side effects of this drug.



Our treatment decisions are some of the most personal and private decisions we make, balancing pain tolerance with potential short and long term side effects. Please make sure you're fully educated as to what these are. Wishing you peace and some pain free time.

Joe
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ttnolan
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Re: Prednisone Works For Me
Reply #4 - Oct 11th, 2011 at 2:27pm
 
Good reply Joe...
Yet they still give it to us like it was candy. O2 equipment is relatively inexpensive ($ and physical damage) compared to all other treatments. I know we will do almost anything to end the pain... but I would implore you to find a way to get your own O2 and not be at the mercy of idiots.
Best wishes.
Edit: I will add Avascular Necrosis to Joe's list, look it up... this is what Brew was talking about when he mentioned hip replacement.
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« Last Edit: Oct 11th, 2011 at 2:35pm by ttnolan »  
 
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wimsey1
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Re: Prednisone Works For Me
Reply #5 - Oct 12th, 2011 at 8:03am
 
Prednisone was, for me, a wonder drug when I first tried it. Back then I was still episodic, so the one round of pred taper was all I needed to break the cycle. I really didn't care if there were side effects because I was getting hit so often at such a high KiP rate. I must say though that it stopped working for me and the next time around, would only have some effect at really high doses. Quit taking it in favor of the O2/energy drink combo we have discovered. Amazing how something that is really beneficial to our systems also helps abort and mediate the CH.

Brew, I didn't quite get the chocolate reference, but I think it may have been a reference to the munchies some get sometimes using something we do not recommend for CHs if you know what I mean. Anyhoo...blessings. lance
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Imitrex4Breakfast
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Re: Prednisone Works For Me
Reply #6 - Oct 12th, 2011 at 7:12pm
 
Brew wrote on Oct 11th, 2011 at 7:28am:
Very dangerous as its effects on the body are cumulative.

If insurance won't pay for medical oxygen, why not get your own welder's rig? For a few hundred bucks you could be aborting attacks until the cows come home.

Ironic that insurance won't pay for O2, which is relatively inexpensive, but they will pay for the hip replacement that results from overuse of steroids.


GREAT POINT !!! LISTEN TO BREW !! The Prednisone might seem like a life saver now, but if you keep doing what you are doing ... YOU WILL PAY FOR IT LATER !!

Edited to add: AVN can mean hip replacements, shoulder replacements, knee replacements, ankles replacements, jaw replacements, and SPINE .... uhh .... no replacing that ... not that I'm aware of anyways .... Sad
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« Last Edit: Oct 12th, 2011 at 7:15pm by Imitrex4Breakfast »  
 
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Mike NZ
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Re: Prednisone Works For Me
Reply #7 - Oct 12th, 2011 at 10:42pm
 
Imitrex4Breakfast wrote on Oct 12th, 2011 at 7:12pm:
...and SPINE .... uhh .... no replacing that ... not that I'm aware of anyways .... Sad


No hope for most politicians then!

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Guiseppi
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Re: Prednisone Works For Me
Reply #8 - Oct 13th, 2011 at 8:32am
 
Mike NZ wrote on Oct 12th, 2011 at 10:42pm:
Imitrex4Breakfast wrote on Oct 12th, 2011 at 7:12pm:
...and SPINE .... uhh .... no replacing that ... not that I'm aware of anyways .... Sad


No hope for most politicians then!


I just KNEW someone would grab that line! Grin

Joe
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LasVegas
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Re: Prednisone Works For Me
Reply #9 - Oct 29th, 2011 at 12:08pm
 
My recent 2 week-long Pred taper did not abort cycle, nor provide much relief except for the 1st few days. 

Everybody is different, as some cycles one might get the luck of a cycle being broken and/or very helpful w/ reducing the frequency and intensity of a CH; while other cycles one may experience minimal or no relief.

Side effect I noticed this Pred taper is both of my knees and lower spine (two previous injury areas) are absolutely in chronic pain.

"Risk/Reward"
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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019
 
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Tate
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Re: Prednisone Works For Me
Reply #10 - Nov 14th, 2011 at 4:54pm
 
Oh, you all are speaking directly to me. I have become quite dependent upon the prednisone during my cycles...taking it it for the duration. That used to mean around 6 weeks to 2 months but during my last cycle I got cocky and did not something I had never done before and drank alcohol during the cycle...when I came off the pred I was still in the cycle. The dr said it had nothing to do with the alcohol, but I really think it threw off my chemistry, but who knows. Anyway, I then tried getting on verapamil, was already on some topamax and I just could never get a handle on it, went back on the steroids, the headaches never went away as normally with pred and I was all over the place with dosage and then of course you have to taper off so I was on the pred the full six months of my cycle. I had many side effects most involving the gut and the verapamil was a horrible drug for me as well. So...as my cycle should be approaching within the next 6 months I am trying to become as prepared as possible. Years ago I tried oxygen but without the proper flow direction or mask. I am seeing a new dr on tues, Lawrence Newman and I am hoping to get the proper scripts for oxygen. The thing is, with all that has been written above and all that I know rationally, I am scared to death not to down the prednisone, (I no longer drink alcohol at all) and hope for no headaches at all after the first one... How to gain the strength to battle the headaches with oxygen?? You have to endure the pain for an average time of??? What is this energy drink trick? I travel frequently... Is there something people use for travel? I have back to back headaches day and night and then maybe 2 days off...and then again 5 days on unrelenting...at least last cycle. The previous three I masked totally with prednisone. It is truly amazing how you can forget the intensity of the pain until the headache hits and then you think how could I possibly forget? Thanks for listening and nice to meet you! This is my first post!!! Smiley
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wimsey1
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Re: Prednisone Works For Me
Reply #11 - Nov 15th, 2011 at 8:25am
 
Hey Tate. You asked:

Quote:
How to gain the strength to battle the headaches with oxygen?? You have to endure the pain for an average time of??? What is this energy drink trick? I travel frequently... Is there something people use for travel?


Actually, the O2, while it is hard work to hyperventilate, provided me with immediate pain relief and even at low flow (15lpm) and with a poor mask, I was amazed at how the relief hit. Then it took about 15-20 minutes to abort a hit, which was shorter than my usual hit pattern of 45 minutes.

With better equipment (high flow regulator and clustermask) I found abort times dropping to within 3-5 minutes.

The energy drink tip is sometimes used to abort hits all by itself, but for me, chugging a Monster at the first sign of a hit and then getting on O2, not only reduces abort time but also prevents the recurring or rebound hit that often comes.

The good thing about this is no terrible side effects and fairly universal agreement this is the way to go for aborting the beast's intrusions.

Tell us more about yourself and how you've been trying to prevent the attacks. Blessings. lance
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markca
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Re: Prednisone Works For Me
Reply #12 - Nov 15th, 2011 at 5:47pm
 
I (we) can all understand how you feel when going into a cycle.  Two cycles ago my Dr. recommended prednisone.  I took 70mg/day with a taper over 2 weeks.  Totally knocked them out for two weeks, but came back with a vengance.  Last cycle, same thing.  This cycle (I'm at the very end of one now) I did a two week taper starting at only 20mg/day.  Knocked them out for 5 or 6 days, but then started getting hit.

Previous to trying prednisone, my attacks were only 1x or 2x per day, and I could set my clock by them (I've been episodic for over 30 years).  Imitrex injection worked well and using the 4mg injections I really wasn't "overdosing" on the trex. 

On the prednisone, while I found some relief in the beginning, my cycle has been all jacked up-- especially this last one.  This last one I got up to 5 CH per day, at all times of the day and night.  Then I'd go a day or two PF, then they'd return.  Also, before prednisone my CHs would be generally around a kip 5 or 6, with every 3rd or 4th a 9 or 10.  The cycles with prednisone nearly all attacks were a kip 8-10, setting in *very* quickly.

This cycle, I was amazed to find how well the o2 worked.  I added red bull at the onset with the o2 and that worked well.  I also tried very intense exercise at the onset with wonderful results (adding red bull at the beginning as well).  Imitrex injections have always worked well, but too much trex and the rebounds are a MF!

Where am I going with all this?  Try the o2, even if you have to buy the stuff yourself (in the grand scheme of things it's not that expensive).  The folks here have made great advances on the proper use of o2 as an abortive.  Two cycles ago (for me) o2 wasn't that well developed.

My next cycle I will not do prednisone.  I'm convinced that overall my attacks were greater in number, and intensity, even if I did have a few more PF days during the cycle.  o2, properly used, has had awesome results for folks here.  And no side effects.  Personally, I'd rather do that than take prednisone and face the nasty side effects.

Just my .02.  Your results may vary. 
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Re: Prednisone Works For Me
Reply #13 - Nov 15th, 2011 at 7:37pm
 
Thank you, Lance and Mark. Exhale...I can rationalize the whole thing now as I am headache (PAIN) free...I just know it will be so difficult to resist taking the prednisone the first time I get that feeling in my eye and I know that the headaches are back.

Also, I am fearful that the oxygen won't work. Lance mentioned some relief even with a regular mask and in 1997 when I tried oxygen I seem to recall my instructions being to stay on the tank for 20 mins and I cannot remember the flow, but I never felt any relief at all. It was hard for me to even sit near the tank with the pain of the headache when I wanted to move around.

That being said I am going back to school in January to become a health counselor and I am really trying to live as healthfully as possible. Prednisone is about as bad as it gets.

I will post more about myself and my headache journey in the getting to know you area. Not so computer savvy, haven't a clue as to how everyone's profiles look as they do with photos and such. Thanks again! Tate
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Re: Prednisone Works For Me
Reply #14 - Nov 15th, 2011 at 7:47pm
 
Tate wrote on Nov 15th, 2011 at 7:37pm:
Thank you, Lance and Mark. Exhale...I can rationalize the whole thing now as I am headache (PAIN) free...I just know it will be so difficult to resist taking the prednisone the first time I get that feeling in my eye and I know that the headaches are back.

Also, I am fearful that the oxygen won't work. Lance mentioned some relief even with a regular mask and in 1997 when I tried oxygen I seem to recall my instructions being to stay on the tank for 20 mins and I cannot remember the flow, but I never felt any relief at all. It was hard for me to even sit near the tank with the pain of the headache when I wanted to move around.

That being said I am going back to school in January to become a health counselor and I am really trying to live as healthfully as possible. Prednisone is about as bad as it gets.

I will post more about myself and my headache journey in the getting to know you area. Not so computer savvy, haven't a clue as to how everyone's profiles look as they do with photos and such. Thanks again! Tate

Oxygen at a high enough flow rate to keep the bag full on the non-rebreather mask that you can purchase here  ROCKS.

           Potter
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« Last Edit: Nov 15th, 2011 at 7:59pm by Potter »  
 
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Re: Prednisone Works For Me
Reply #15 - Nov 15th, 2011 at 7:51pm
 
You wrote the keyword Tate...."Exhale"

co2 is the enemy and hyperventilating with o2 is the only way to kill the enemy with o2 therapy.
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